Archive for July, 2005

An alligator, an infusion, & a new friendship

Wednesday, July 27th, 2005

Tonight I went with my three boys to Lake Alice on the UF campus. Lake Alice is known for alligators and there are warning signs that surround the lake. So we don’t get too close to the water and we watch from a distance to see alligators of all sorts and sizes. Tonight we saw one that was about 6 feet in length. But it wasn’t in the water. It was crossing the street. The alligator had crawled out of Lake Alice, over the curb and stopped to rest right in the middle of the street. Traffic was blocked in both directions and cars honked to get the gator’s attention. The honks worked. The alligator turned and headed back into the water. What a sight.

Herceptin.My close proximity to an alligator may have been the closest I came to danger today because so far, I have survived my first infusion of Herceptin without incident. I spent the afternoon in the infusion center with my mom and for a time, with Jordan and Tracy too. While John, Joey and Danny played at home, I sat in a private room as this new drug dripped for 2.5 hours through my port and into my bloodstream. I did not have an immediate allergic reaction, which has been a recent worry, and right now I feel no different than I have felt for the past few months.

I do feel something different, actually but it’s not an adverse reaction to cancer-fighting drugs. It’s a connection, a bond, a friendship formed in a short amount of time because of a shared experience.

Jacki with Jordan.My mom, Jordan and I visited with two women while we waited for my turn in the infusion center. One was a mom. One was her daughter. It was not clear at the time who would be the recipient of treatment and these women later shared that they wondered which of us would also receive treatment, me or my mom. So without sharing any personal details, we visited. They admired Jordan. And we talked, not about cancer but about life in general. We went into the infusion center at different times and reconnected at the end of day when I departed my private room and the mother of this pair was still receiving her treatment. They asked about my situation and they shared their story. We have different cancers and treatments and paths but we share a similar medical journey: diagnosis, chemo, radiation, the search for compassionate doctors, worry, hope, transition, strength, and the miracle of the mother-daughter relationship. Our brief visit was powerful and emotional and touching. We all wiped tears from our eyes as we parted. And I am still thinking about them, the mother who lives out of town and is staying in the Hope Lodge near Shands Hospital, where she lives temporarily so she can receive treatment each day. And her daughter, who has taken a leave from work to accompany her mom on this unexpected adventure. I will always remember them, just like I won’t forget the man who sang to me during my first chemo regimen or the older couple I saw on occasion during this same time. They had been battling cancer for years, with no clear end in sight. These faces are etched in my mind, daily reminders of courage and bravery and compassion. These people inspire me, motivate me, help me heal. I am proud to have known them, even if for fleeting moments. They may never know how they have touched me. But I know.

Jacki Donaldson

Peace

Sunday, July 24th, 2005

Today I feel normal — good, even. I can’t pinpoint the reason for this better day but I won’t question it. I’ll just enjoy it. While my boys are out fishing, I walked and ran and did some things around the house. I’m in no hurry to accomplish anything today. I feel at peace.

I now know the logic behind taking one day at a time. There’s no guarantee for what tomorrow will bring. I may get out of bed and feel great and I may feel not-so-great. There is no use anticipating what may come. It’s out of my control really. But I have today — and it’s a good day. So I’ll go with it.

Jacki Donaldson

Anxiety

Saturday, July 23rd, 2005

I am anxious today. I feel unsettled and nervous and far from that peaceful feeling I have been enjoying on most days. I am scattered in my thoughts and emotions and feel like I did months ago, before therapy and anti-depressants. I think this is temporary — an “off” day, a low point.

I am never really sure of the exact cause of my anxiety. But I can guess that this time it comes from the approach of my year-long Herceptin therapy which begins on Wednesday. I am nervous about my first infusion of this new drug. I don’t know how my body will react and I wonder if I will have any side effects. I don’t know if it will damage my heart or if I will function normally for the next year. There are too many unanswered questions in my head and I can’t seem to manage them all. I know one day I will look back at this time as nothing more than a necessary step in my recovery process. That’s how I see all my previous treatments and procedures and worries and anxieties. They are short-lived and my body will find peace again.

So Wednesday will come and go and somehow, I will survive the day.

And probably the whole year too.

Jacki Donaldson

Celebration

Sunday, July 17th, 2005

Daytona Beach.

In the past 10 years, John and I have lived in several cities. We’ve moved six times. Together, we’ve had five paying jobs, six cars, and two kids. We’ve had many vacations, bunches of friendships, occassional disagreements, and a whole lot of laughs. We’ve survived a few car accidents, kidney stones, a miscarriage, family deaths, parenting dilemmas, and breast cancer. And this past weekend, we celebrated it all.

Friday marked our 10th wedding anniversary. We went to Daytona Beach, where we lived before kids and budgets and a mini-van. While the boys stayed with my mom, we stayed in a nice hotel on the beach. We walked on the sand and played in the ocean and basked in the sun. We ate out and saw a movie. We went to a bar and we slept until 10:00 am. And we visited with the friends we left behind in this city — and for me it was an emotional journey back.

I had not seen these friends in one year. Not since I was diagnosed. They have all been involved in my cancer journey through phone calls, e-mails, and visits to this web journal. But we have not seen each other face to face since my life took a detour. This weekend, I saw their faces. It was a powerful reunion for me. They wrapped me in their arms and filled me with warmth and love. They let me cry and heard my story. They helped me heal.

So the weekend was a celebration — a celebration of 10 years of marriage and a celebration of friendship. And I am back at home now, recharged and motivated and feeling stronger than ever.

Jacki Donaldson

Consent

Tuesday, July 12th, 2005

Yesterday I gave my consent for Herceptin — my next round of chemo that will take me back to that infusion room with the pink lounge chairs. I will begin the first week in August for a “loading dose,” will report back one week later for a normal dose and then will return every three weeks after that for one year. In two days I will have my heart tested for a baseline reading and my heart will be monitored every three to four months throughout treatment. Apparently, Herceptin affects that pumping of the heart. So a nice steady pump might slow down or become erratic. My doctor says this can normalize within six months — and for some it takes one year. It’s uncharted territory, really. Because Herceptin is so new, there are no 10 or 20-year studies to draw from. There are just women who have been studied in clinical trials for the past few years. And no huge conclusions have been drawn yet — except that Herceptin is showing great promise for saving lives.

So I have consented to this therapy because it may save my life. I hope my heart can take it.

Jacki Donaldson

Inspiration

Sunday, July 10th, 2005

Today I needed some inspiration. Most days I am fine. I feel happy and healthy and motivated. Other days I feel emotional and overwhelmed and worried. Today, thinking about my health and my future and all the options and choices that float around in my head, I felt a bit of panic. So John reassured me. My mom hugged me. Joey said, “I love you, mommy.” And Danny told me before he went to bed, “you’re a cutie.” And then I watched a video my sister forwarded to me a few days ago. It’s uplifting. Now I feel better.

http://www.TheSurvivorMovie.com

Jacki Donaldson