Archive for October, 2005

The here & now

Wednesday, October 19th, 2005

my hairIt feels good to know that Herceptin is such a promising drug. Just today, after receiving my fifth dose of this treatment, I heard on ABC news that Herceptin is simply a wonder potion. In fact, the drug was taken out of clinical trials early so doctors could start putting it to use. The results were that good.

It also feels good to know that through other people’s eyes, my hair looks good. Today while at the Cancer Center, a physician assistant said it was “gorgeous.” Another woman admired my hair while we stood in the infusion center. A 36-year-old lymphoma patient whose hair was just beginning to grow back, she was speculating about how her hair would look once it was as long as mine. As long as mine. It does seem long compared to the days when all I saw was a shiny scalp. But when I consider that it’s been eight whole months since my hair started growing, my dark locks don’t seem that long at all. It doesn’t seem that gorgeous to me either. Some days I do like it. I like that it’s easy. I like that it looks stylish on a good day. I like the dark color sometimes too. But mostly, I am struggling to accept my new look. It’s strange to look in the mirror and recall the blond, straight hair I had for 34 years. I never would have cut my hair this short, or added so much dark curl, so to look at this extreme makeover is still startling. It’s minor really. I am alive and would give up all my hair forever if staying alive was guaranteed for a really long time. But in the here and now, it’s an adjustment. The compliments help, though. It’s flattering to know others like my hair. One day I may really like it too.

Despite the promise of Herceptin and my still overall feeling that I am going to survive my cancer battle, there are moments when I feel so unlike I once felt. Maybe it’s the hair that changes my whole appearance. Or the port that sticks out of my chest and today shows where a needle stuck me twice — once so painfully I wanted to scream. Maybe it’s the thought every time I wash myself in the shower that I might find another lump. Or that chemo is not preventing cancer cells from traveling through my body. Maybe it’s the mammogram I will receive in November — the first one since my breast cancer diagnosis. It could be anything — and it’s probably everything — that has changed my life, my perspective, my hopes and fears.

These chemo days bring everything to the forefront. They remind me of what I’m fighting for — my life. And that is daunting. But also a reality check. And now I can proceed with the next three weeks, thankful that I am right now a healthy and productive recipient of the life-saving Herceptin — with a head full of thick, dark, curly hair.

Jacki Donaldson

Gratitude

Saturday, October 15th, 2005

Biggest FundraiserThe American Cancer Society people were grateful for the amount of money I raised for the Making Strides Against Breast Cancer walk. But I didn’t really do all the work — the 50 people who opened their wallets and generously shared their hard-earned money are the ones who did most of the work. I am grateful for these people — family and friends and friends of friends. They shared a total of $3,310 and made me the top individial fundraiser, second to a team of people that raised about $5,000. This morning, after the 5K walk, I was presented with a special keychain to acknowledge this significant contribution. I will carry this keychain with me each day and will never lose sight of why I have it — because of the support and love and concern that still flows richly in my direction.

Breast Cancer Walk.Walking with me today were my mom, Tracy, and Jordan. We traveled 3.2 miles together and joined upwards of 1,000 people in pink and white shirts. We saw women and men and babies and kids. We saw bald heads and short hairstyles like my own. We saw survivors and their friends and family members. We saw a network of strength and power and unity.

My strength comes from my own personal network of supporters and caregivers. My boys — John, Joey & Danny — who were in my audience today and are with me for every moment on this journey. My mom, Tracy, and Jordan — my female companions on this ride. My family and friends who lift my spirits, brighten my days, and endlessly motivate me.

Raising $3,310 is not my own accomplishment, although I was rewarded for it today. This success belongs to so many other people. And the American Cancer Society is not the only beneficiary. I am too. This financial gift is a tangible indicator of all the love and support I have circling me each day. And for that, I am truly grateful.

Jacki Donaldson

Medicine & love

Saturday, October 8th, 2005

I have a card hanging on my refrigerator — it’s a card with a picture of roses and a pink breast cancer ribbon. It’s from my friend Nicole in Ohio — she sent me a beautiful bracelet in the mail the other day with this pretty card. Joey just noticed the card today. He looked at it and said, “Is this cancer?” I asked him what he meant and he replied, “Is this card cancer?” He must have recognized the pink ribbon which he has seen around our house and in the community too — especially since this is breast cancer awareness month. I told him the ribbon signifies cancer. And I asked him if he knows what cancer is. He said, “It’s medicine and love.” I think he’s right in a simple sort of way. For him, cancer translates into medicine. For almost a year now, he has been shuffled around during my endless doctor appointments. He sees my port and knows that’s where medicine goes. He saw me in the hospital connected to tubes full of medicine. He sees my pill case that sits on the kitchen counter. He knows medicine made my hair fall out.

And he knows cancer means love. How could he not? He’s seen people deliver meals and send flowers. He stood on the front porch with me when friends delivered my hand-made quilt and and he watched me open my new bracelet from Nicole.

The love is endless — as is the medicine. And Joey’s wisdom continues to amaze me. I never knew a 4-year-old could be so smart.

Jacki Donaldson

Hope

Monday, October 3rd, 2005

On Saturday, my mom and I attended a half-day seminar on the topic of breast cancer. It was sponsored by Shands Hospital and many of the speakers were my own medical people — a surgeon who took my blood prior to my lumpectomy for research purposes, an oncologist who treated me both times I was hospitalized during my first chemo regimen, my physical therapist, and the woman who coordinated my initial care when I was first diagnosed. I already knew a lot about what they talked about but I learned that there is a lot on the horizon for breast cancer detection and treatment — like new radiation techniques that can limit the treatment time from seven weeks to just one week and methods for detecting the smallest trace of breast cancer before it begins to grow. My physical therapist is studying cancer-related fatigue (I think I have it!) and how to manage it. It amazes me that these medical professionals are spending their work days seeking cures and miracles. What a huge responsibility. What a noble cause. I am lucky to be in their care.

But after hearing about all the science and hope and possibilities, I am reminded mostly of one loud and clear message I heard on this day. The oncologist spoke about the components of breast cancer tumors — there are about six criteria that are taken into consideration when studying a tumor, such as age, stage, grade, lymph node status, hormone receptivity, and HER-2 status. My criteria are: age 34 at diagnosis, stage 1 (out of 4), grade 2 (out of 3), lymph node negative, ER/PR negative, and HER-2 positive. Some of this is good; some not so good. A balance that has left me feeling okay about my personal situation. But the oncologist said, “even a good tumor in a young women is a bad tumor.”

I guess I knew this. My age is what qualified me for aggressive treatment — because young women have the most aggressive tumors. But to hear it spoken in a formal teaching setting, and in somewhat of a grim tone, is troubling. But I’m OK. I’m not wounded by this bit of information and I’m not anxious like I once would be. I still feel like I am winning my battle, so I can take this in stride. And if cancer comes back to me one day, I’ll just keep fighting — like this young woman who is quoted in the book, “Hope Lives: The After Breast Cancer Treatment Survival Handbook.”

“Why do I keep going through treatment when there is no permanent cure? I ask myself this every time. There are no options other than death, which to me is no option. It’s not that I fear death. I really don’t anymore. I just love life too much to quit. It’s a race against time. Treatment buys me time until they come up with new drugs or new ways to treat this illness. I’m not quitting.”

Robin, age 38, diagnosed 1996, 1998, 1999

Jacki Donaldson