In the hours that follow each Herceptin treatment, I have a routine of sorts. Not a purposeful routine. Things just seem to fall into place the same way each time, making every third Wednesday afternoon strikingly similar to all the other third Wednesday afternoons.
I leave the infusion center when my treatment is complete, feeling no ill effects, and I walk to my car. As I drive home, I call John and the boys to tell them I’m on the road and will soon be home. I return home, get a running hug from Danny and a passing glance from Joey, and ask John promptly about what I missed during my 3-4 hour absence from the most important guys in my world. John usually tells me that they wandered in the outdoors or visited Home Depot or just played at home. I always want more details than I get — I want the play-by-play rendition of what I see every day but miss so much when I am away. But I settle for the basics. Do I really need to know, after all, who ate what and who said what and who was happy and who was sad? And could I, myself, accurately recall all this detail if asked? Probably not. So I jump back into the swing of things — which includes dinner and bath and book, an easy bedtime for Danny, and a not-so-easy bedtime for Joey. And then I tend to myself.
I get undressed for a shower and look for the first time since my infusion at the small round bandaid that covers the port that is buried underneath the skin on the right side of my chest. I peel the bandaid off and see the tiny red dot where the IV needle poked me, sat in my skin for a few hours, and then was pulled out. It no longer bleeds but it looks sore and irritated. It is not painful really — but it gives me a queasy feeling to look at it and this is the first tangible reminder of my treatment earlier in the day.
There is something about tending to my own medical needs that makes me queasy — like pulling off the bandaid and really thinking about this foreign item under my skin. I have felt like this when removing bandages after surgeries, when applying ointment to my own wounds, when merely considering the thought of giving myself an injection. And I feel this when I first go the bathroom after my Herceptin treatment. Herceptin has a unique odor and I can smell the drug as it exits my body. It repulses me — and is my second reminder of what occurred hours before this moment.
And then, perhaps because of a physical reaction to Herceptin but mostly due to a mental habit, I take one Zofran pill — to combat the nausea I begin to feel or think I feel. It’s all I need. I never go on to feel any nausea during the three weeks that follow treatment. Life continues on normally. I have normal happy thoughts and normal sad thoughts and thoughts about whether this drug is making me feel bloated (Joey told me tonight, “When I see this loose skin on your tummy, I think there’s another baby in there.”) and thoughts about new diets and health regimens I’d like to follow once my treatment ends.
I conclude my routine by writing this entry.
And then my night resumes like any other night. I get ready for bed. I relax. I call my mom. I talk with John. I watch TV. I mentally prepare for another day with two busy boys who will keep me completely and fully occupied for each day that follows until my next infusion takes place. And I do it all over again.
Jacki Donaldson
Renee on 2/23/2006 at 7:56 am said:
Aren’t routines a wonderful thing!?
In a strange sort of way, your treatment has become the most ‘normal’ day of your week. It is the day you can recall all the details… the day you can count on knowing what comes next… the day you spend taking care of yourself. Most other days blend together with random chaos with no attention to the self.
And one day in the near future this ‘routine’ will end, and you will slip back into a world of total chaos! I hope you never give up your time of reflection and your time for you though. Your stories have become a routine in my day… something I can count on… something I know will inspire. It is amazing how much you help others by simply spending time caring for yourself!
Enjoy your day… I hope it is a blur of activity!
Love,
Renee
Jane on 2/23/2006 at 11:28 am said:
You write so beautifully, Jacki. I wonder if that ability has not been a very good tool to get you through this time of difficulty. What if you weren’t able to express your thoughts ? You words would be buried inside you ! Once you let them free, you’re able to move on to the next moment, day, or concern. Having the boys and John anchor you in the real world. When this is over … and it will be … always write for us all to enjoy !
Love, Jane
April on 2/23/2006 at 4:20 pm said:
Again I am amazed by your strength and willingness to share these important details of your life with us. I have said before that I always feel like I am right there talking to you when I read your entries, and that holds true for this one as well. I also have found it a routine to check your blog on a regular basis and start to get concerend if I haven’t read a new entry from you in awhile. I worry that something has happened to keep you from writing to all of us. What is funny is that you are probably just continuing with your day-to-day life like all of us, but we have made reading about you a part of our daily life. I am glad that this has become so routine for you because that means you are healing and you are not letting it get you down. Once again you continue to be a survivor.
April
Emily on 2/23/2006 at 4:41 pm said:
Hi Jacki,
I love your blog. In the midst of such a trying personal battle, you are providing such a service to so many women by sharing your story. I run a website for breast cancer patients and their loved ones, and I would love to talk to you about your blog and your experiences.
Best wishes,
Emily
john sell on 2/26/2006 at 2:31 pm said:
Wow! I read your post(s) about what you are going through, and I am left a bit speechless. I guess one truly never realizes how “easy” he has it until he reads a moving story like yours. You are an inspiration. On a similar note, last night (February 25th) I attended a Cystic Fibrosis benefit in Allentown, PA. It was heart-wrenching to hear the stories and see the faces of those affected by that terrible disease. My wife and I sat there counting our many blessings. I don’t think anyone ever knows what to say to someone who is enduring difficulties that he/she cannot relate to well. I guess all we can do is let you know that we care. So that being said (and I hope I don’t offend here). There is someone in Magnolia, Delaware who will pray for you today.
Sincerely,
John Sell
Jennifer on 3/3/2006 at 9:27 pm said:
Routines are so soothing. Hearing about yours makes me reflect on mine as well. To be honest, I enjoy my infusion days. I always seem to meet someone while sitting in that chair that helps me realize how blessed my life is, even dealing with cancer. I also am glad you mentioned the smell of Herceptin. I sort of thought I imagined it, but I also know the smell of Herceptin leaving your body.
I love reading your blog and thank you for your comments on my site as well.