my Breast Cancer blog

2004, age 34 — this is my story

Reality

When my friend Amy called me recently, I knew instantly that she was crying and in true distress. Her first words to me were, “Do you ever have really bad days?” My first word back to her was, “Yes.”

Amy was diagnosed with breast cancer after me and has survived a mastectomy, reconstruction, and six rounds of chemo. She is now living in the post-treatment world with that nagging fear that cancer may come back. That fear alone can make for a bad day but Amy had just learned of a neighbor who had died of breast cancer and she, as a nurse, had just witnessed the cancer death of a patient. It’s a reality. People die from cancer. Every day. What makes Amy — or me — immune to this reality? Both of us had cancers that did not spread to our lymph nodes. Maybe this is an indicator that we will be okay. Maybe our attitudes will help us survive. Maybe the power of prayer kicks in. Maybe luck plays a part. Maybe we will defy the statistics that say we may have a recurrence sometime in our lifetime. There’s no way to predict our futures. We can only live each day like it’s our last and fight for our lives at the same time. This is what I told Amy, anyway. It was easy advice, really — I was feeling good and positive and hopeful at the moment.

Then I learned about my mother-in-law’s neighbor — a young woman in her 30s with three small boys and a husband — who died last week from breast cancer that had spread throughout her body. I do have really bad days. And this was one of them.

This woman, Beth, was diagnosed 18 months before I was diagnosed. I knew of her breast cancer before I knew of mine. I knew that she had chemo. I knew that her hair was growing back when mine was gone. I knew that she was strong and courageous and was bouncing back to life. Until she was told that her cancer had spread. The doctors were not hopeful but she tried chemo again and at some point realized that the treatment was just buying moments of time — that she would not survive long. So she prepared to die. She accepted hospice into her home. She planned her service — with a slide show and music — and she peacefully left this world and was truly OK with her departure.

I feel crushed by sadness when I think of this tragedy. I am so sad that a young woman is gone forever. I am sad that three little boys are left without a mom and that a husband watched his wife die and is instantly trying to raise his motherless children alone. And I am sad that deaths like this are a reality.

I don’t think I will die from this disease. I know it’s possible but the only way I can really enjoy my life — now — is to believe that I am fine. So I am sad about Beth. And I am also humbled by the knowledge that young women do die from this disease. It keeps me on my toes. It reminds me to live fully, to enjoy the moment, to take advantage of opportunities before they are gone. To appreciate the world around me.

Unlike Amy, I am not yet living in a post-treatment world. I still have the safety of Herceptin treatment. And after yesterday’s dose, I have five more infusions before I am set free from the constant care of doctors and nurses and pharmacists. Set free to live on my own, without the crutch of medicine. I think I will be okay then. And I think I am lucky to have received Herceptin. Not all women are candidates for this revolutionary treatment. And it just may be the thing that makes me immune to the reality that people die from cancer.

I can only believe this is true.

Jacki Donaldson

Posted under: Death & Dying, Diagnosis, My Story, Survivors

7 comments

  • Jane on 4/7/2006 at 5:37 am said:

    Dearest Jacki .. I didn’t even want to tell you about Beth’s passing. But .. it is the reality of this dread disease. This wonderful young woman came from such a place of strength. The only way we can honor her, and others like her, is to believe so many of you will beat this evil thing. Hers was too far gone to overcome. You found yours early. We all know early detection is key. I spread the word to check, find out if something is there. It matters not if you are young or old. Be sure. You have so much to lose if you don’t.

    You will survive this, Jacki. You have many angels watching over you .. you know their names.

    UTTS Jane

  • Renee on 4/7/2006 at 12:45 pm said:

    Another powerful and emotional entry.

    I cannot imagine living with a condition that has caused the death of so many others. Like you, I am a daughter, a mother, a wife, a sister… but no one dies from any of those “conditions”!

    I have friends who, like you, are victims of a dreaded disease. They are stricken with cancer, or multiple sclerosis, or diabetes… all of which carry an uncertain future. And again I cannot imagine the moments you must spend just wondering… wondering if you will be the lucky one, wondering if you have prayed hard enough and lived right, wondering if the next miracle drug will cure it all… wondering how long you will call yourself a survivor.

    I am inspired by the times that your entries are so upbeat… focused on issues “other” than your disease… descriptions of the “good days”. But these powerful entries remind me of a reality that always lingers. And that saddens me that you have these bad days… that anyone has these bad days.

    Thank you for having the strength to have the good days… and for reminding us that the bad days are still here.

    And thank you also to Jane… for the reminder to visit my doctor often and always be “sure” that I am doing everything possible to stay healthy… forever!

    Love,
    Renee

  • April on 4/7/2006 at 9:21 pm said:

    I am so sorry that this disease has claimed another person in your circle friends. I am so sorry that this has to be a “constant” in your life. To always hear of another diagnosis or passing of a loved one has got to take its toll on your heart. Just as you are humbled by others, I am humbled by you and your strength. You are the constant in my life that reminds me to treasure every moment and reflect on every emotion. I know you will survive all of this!!!
    April

  • KD on 4/8/2006 at 5:32 pm said:

    Jacki – I am sorry to hear about Beth and can, unfortunately, imagine her family’s grief. You are so smart to take care of yourself and live in the moment. Every day IS a gift and we choose how we will use it. You have spread hope, respect and joy into the lives of so many. Cancer is certainly not a path any of us would choose but you have used it as a blessing.

    You and your family are in my daily prayers -KD

  • Amy on 4/8/2006 at 11:25 pm said:

    Jacki,
    I often think back to something you said to me so long ago-”fight the good fight my friend, and you will win and someday be a stronger ,wiser woman for it”. Those words and so many others bring me such strength. WE WILL WIN -because even if cancer returns we will beat it again. I know in my heart that you and I will survive. Thank you for being on the other end of that phone line that bad day-don’t ever forget I am here for you too!!!
    Sisters through experience,
    Amy

  • Bev on 4/10/2006 at 8:02 am said:

    Jacki,

    I can remember you telling me about your neighbor’s breast cancer. I am so sorry she died. God is watching over her family.

    You also need to hear the positive stories. Those that have faced cancer and are doing well. My mother-in-law has had breast cancer three times. First time was in her late 30s. She is in her 50s now and clear. On her last reoccurence a few years ago, she told me, “I beat this twice and will beat it again.”

    I am grateful you are eligible for herceptin. And I am wishing new drugs and therapies are just around the corner to help you. You’re right, “today you are fine”.

    Bev

  • I just wanted to stop for a second and thank you for sharing your experiences with others. Words fail me right now. I’ll keep you in my prayers, but I believe your strength and character will make you the victor in this battle with cancer.

    ana

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