Flashback: December 24, 2004

Side effect of radiation: limited range of motion in my left arm

Side effect of cancer treatment: limited range of motion in my left arm

I do have my breast. And I have a fairly good prognosis. My lump was removed and measured 1.1 cm, which is small. My lymph nodes were negative for cancer, although four were removed for biopsy purposes. My margins were clear, and there was no apparent spread of cancer. My cancer is considered stage 1. And that is good. I have two incisions, one in my armpit where lymph nodes were taken and one underneath it, on the side of my breast. They are both about 3.5 inches long. Besides a bad skin reaction to the tape I was bandaged with, everything went well. There are minor inconveniences right now. As my incisions heal and my skin tightens, it’s harder to lift my arm. So I have exercises I must do each day. Because of the missing lymph nodes, I may have trouble with swelling in my arm so I have to watch for that. I have not been able to shave my armpit since my surgery on December 3.

And now I await the next step in this battle. I will begin receiving chemotherapy in mid-January. This will last for three months. I will go for treatment four times, once every three weeks and will have a combination of drugs sent through my body via IV. The purpose of chemo is to kill rapidly growing cells, and cancer cells are rapidly growing. Unfortunately, all rapidly growing cells are killed, like hair cells and bone marrow cells. The chemo should kill any cancer cells that floated away from my breast, if any did. I don’t know how I will react to this process, as each person responds differently. At the very least, I hear I will be tired at times during each three-week time frame. I may also be tired from the radiation. This will begin three weeks after chemo ends.
NOTE: It didn’t happen exactly like that: Instead of receiving chemo every three weeks, I had it every two weeks — it’s called dose-dense chemo, and if the patient can tolerate it, it’s thought to be more effective. Did I tolerate it? Well, I survived, but I was hospitalized twice because it was so hard on my body.

I will receive radiation every day for 6 weeks. The purpose of radiation is to zap the actual area where the cancer was found to prevent it from recurring. Many women take a drug after chemo and radiation to prevent recurrences. The drug (usually tamoxifen) is taken for five years. My body will not respond to this type of drug due to negative estrogen receptors (if they are positive, the drug can be taken) so chemo and radiation will be my only two real treatments.
NOTE: Radiation went just fine. It was a breeze compared to chemo, and my skin didn’t burn too badly. The biggest hassle was the drive to and from the appointments. And while it’s not such a big deal, my left arm has limited range of motion due to the combo of surgery, scar tissue and radiation. See photo above — my right arm touches the ground, but my left arm won’t.

For now, I am trying to keep life simple. Joey and Danny help me do that. Joey knows I am frequently going to the doctor for a “boo-boo” I had in my “booby” and he has been very attentive. One day after a doctor appointment, he said, “Mommy, you need to go home and rest. I’ll bring you a banana.” He is almost four years old. Danny, at 19 months, does not seem to know anything is going on and it’s my hope that he never has any recollection of this path our lives are taking. I will never forget it, though, and that’s OK. I will take this experience and make it matter. A friend sent me a breast cancer bracelet inscribed with trust your journey. I do. I trust that I will be fine in the end. And I trust that I was given this fight so I can help others. That is why I have written this. I hope everyone who reads about my journey is affected in some way. Perhaps it will increase the amount of women who do self-exams. Maybe it will arm others with information to help loved ones who are affected by this common disease (about 1 in 8 women will get breast cancer at some time in their lives). Maybe it will spread hope. At the very least, writing helps me. And for now, that is enough.
NOTE: Writing still helps, five years later.

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9 Responses to “Flashback: December 24, 2004”

  1. Melissa says:

    It’s really fascinating following your story in hindsight, and it’s especially nice because I know the happy ending. Love from Austin.

  2. Mia says:

    Jackie, If you’re still having problems with range of motion, I’d suggest physical therapy and/or yoga. You are young, and you shouldn’t settle for limitations. Also, may I thank you for the comfort and pleasure of your writing, which has indeed helped others? Mia

  3. Jacki says:

    Thanks, Mia. Yes, still probs — that pic was taken last night. I have been to physical therapy, both during treatment and then again a year or so ago to address the issues. Exercises, massage, you name it, and the tightness is still there. I consider it pretty minor, really — just another “scar.”

  4. Jacki says:

    Thanks for flashing back with me, my Austin friend! Hope your holidays have been fabulous — and mostly healthy, too!

  5. Melissa says:

    If by “mostly healthy” you mean lots of salads followed by a giant chocolate chip cookie and 2 Russian teacakes, then yes! It’s been mostly healthy :-)

  6. Michelle says:

    Congrats! sounds totally like me although i am just in middle of chemo… all others same bar .7mm bigger tumor size.. am making big plans for after radiotherapy .. new career etc. to focus on going forward. XXX

  7. Jacki says:

    Michelle — Best wishes to you!

  8. The chemotherapy is really the most painful phase not physically, but emotionally. My sister-in-law underwent a breast removal surgery after being diagnosed stage 2 borderline 3. The following chemotherapy had serious side-effects. She lost all the hair and had to stay in home for months together.

  9. carmen says:

    I live in Puerto Rico and saw your comments. I need support. I will be having chimo, and then operation. I will like write you and answer some doubts and questions I have, that the doctors wont tell. Thanks and I hope you are doing well.

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