Archive for the ‘Chemotherapy’ Category

Pray for Emily

Wednesday, July 28th, 2010

Emily's Cancer Blog :: Pray for EmilyShe is only 16.

And she’s fighting leukemia.

If prayer is a part of your life, please say one for Emily.

This morning I had the realization that I am pumping poison into my own body.
Poison that can cause hair loss, sickness, joint pain, kidney problems, blood clots, bruising, chest pain, mouth sores, eye problems and much more.

All of this is in order to save my life.
My precious little life.

I’m just a kid who has not even begun to experience all that there is.
I’m waiting.
Waiting to explore, experience and live. LIFE. My life.

Sounds melodramatic, doesn’t it. It’s not. It’s my reality. Mine and thousands of people like me. Which is the saddest thing.

That’s why this blog is so amazing to me.
Knowing that I have hundreds of people fighting with me, every step of the way is just incredible.

So lets keep on fighting!

Emily has a Cancer Blog

Friday, July 23rd, 2010
emilyscancerblog.blogspot.com

emilyscancerblog.blogspot.com

This blog is about me, but it’s about so many others, too, and that’s why I write to ask you to take a moment to visit Emily over at Emily’s Cancer Blog.

Emily has only been blogging since this past Monday, and this would be a really good time to start following her. You see, Emily has just been diagnosed with leukemia, and she will begin chemotherapy on Tuesday. She will also turn 16 on Tuesday.

I’m thinking Emily could use some well wishes, some prayers, some words of wisdom, so if you could help hold her hand just a little bit, I’m sure she’d really, really appreciate it.

On Emily’s behalf, I thank you.

Kathy Wins a Healing Book on a Tough Day

Wednesday, July 21st, 2010
Happy for you, Kathy!

Congrats, Kathy!

Sometimes, things happen just as they should.

Like yesterday, when I chose the random winner in my latest giveaway for the book Healing with Words: A Writer’s Cancer Journey, and the name Kathy C. came up.

I didn’t know much about Kathy, just that she wrote this comment to enter herself in the contest:

This sounds like a very inspiring book! I am currently battling the breast cancer dragon, and have tried to be consistent with journaling. This book sounds like just what I need to keep me motivated. Thanks for featuring it on your blog today!

I learned more last night, after informing Kathy of her good fortune, and reading her e-mail response:

I have had an especially “trying” day of managing chemo side effects today, so this is an unexpected blessing!

And now I know, Kathy was meant to win this prize. It may have been the very thing that turned her day around, and when she holds that new book in her hands, and she starts putting it to use, it could just smooth out the rough spots in what’s left on her road to recovery.

Yep, sometimes things happen just as they should. Enjoy your book, Kathy!

Hair Loss: How Did You Handle It?

Wednesday, June 23rd, 2010
Photo: "passamanerie", Flickr

Photo: "passamanerie", Flickr

It’s got to be one of the hardest things about cancer — hair loss! And I know my friend is hating the idea of being bald, just like most of us do, but still, she is handling it with such grace. Her technique: she cut her very long hair very short in anticipation of the big fallout. I like her approach, which is so totally different than mine.

I kept my very long hair around until the very last moment. I think I wanted so badly to not lose it, that I fought back by making not one single preparation. Silly me. The docs and nurses and every other breast cancer survivor I’d met told me it would happen, plus pretty much exactly when it would happen (about day 11-16 after the first chemo treatment), and still, I crossed my fingers tight and hoped like mad that I’d be the exception. And on the day of my second chemo dose (day 14), I wore a hat on my head to hold each hair in its place — it was starting to fall out in clumps, wash away in the shower, and it was pulling so hard on my head it hurt — when I should have accepted the inevitable and surrendered. I did surrender that night — cut off three ponytails, and handed the clippers to my husband and 4-year-old, who shaved while I cried — but only because I could no longer hold onto the hair I so desperately did not want to lose.

My friend has accepted the inevitable, and I love that about her!

How did you handle your hair loss?

Grateful, plus the Curse of Cancer Treatment

Friday, June 18th, 2010
Photo: LaserGuided, Flickr

Photo: LaserGuided, Flickr

I’m a grateful girl. Really, I am. In fact, I can’t even put into clear and concise words how very thankful I am for the breast cancer treatments that have kept me alive for five years. If I even try to put my thoughts into words, I promise you tears will stream down my cheeks. I’m about to turn 40 on Sunday, and WOW, I wasn’t sure I’d make it to that age, what with birthday No. 34 followed by such fear and uncertainty.

Just so we’re clear: I am so. very. happy. to be alive and writing this. I’m simply amazed by what medicine has done for me.

I’m amazed by what medicine is doing to me, too. Five years later, and it finds a way to make me a little bit miserable. Right now, actually, a lot miserable.

I’m covered in red, itchy, drive-me-crazy bumps on my shoulders, chest, back, and areas around my armpits. It happens every year, and it’s called something like UV Recall. Years after treatment, the sun reacts with my skin and the poisonous drugs, and the remnants of radiation, and sunscreen (I’m not sure about what order this all follows or if it’s one or several of these factors), and my skin pays the ultimate price. You’d think I’d have figured it out after all this time, but I haven’t, because sometimes (like last year at the beach), nothing bad happens. I find a sunscreen for sensitive skin, lather it from head to toe, and I’m just fine, maybe even a tiny bit tan, which is a treat for a fair-skinned gal like me. Other times (like this year at the beach), I find a sunscreen for sensitive skin, and, well, the bumps begin — just a few here and there, then some more, until they’ve climbed all over my body, making me more and more wacky by the day.

“Are you not so happy?” Danny asked me today.

Gosh, how I’m trying to be happy, plodding along through these summer days like everything is fine. But it’s not. I’m itchy and scratchy, showers hurt my skin, clothing bothers it, too, the Florida heat (it’s been like 100 degrees here lately) agitates every inch of me, and well, no, Danny, I am not so happy. (Add head cold to the equation, and you might imagine how poorly I really feel.)

The end is near, I know. The bumps will dry up and slowly disappear, and I will do what I always do — slink into the shadows at the pool, sit under an umbrella at the ocean, hide under the bimini of a boat. It’s no fun to be the mom always seeking shade and avoiding fun in the sun. I guess that’s why, year after year, I keep trying to jump waves, and find sea shells along the seashore, and splash in the pool — because I want to think cancer treatment won’t keep plaguing me. But it does, and it probably always will. And that’s just how it is. The very thing allowing me the pleasure of birthdays is torturing me, too.

OK, I’m getting a grip here. This skin ordeal is short-lived. It will consume about a week of my life (couple more days to go), and then I’ll move on. Maybe I’ll even be free and clear by Sunday, when I blow out 40 candles and celebrate another year of life.

See, I’m grateful. Really, I am.

Note: If you caught this post just as it published, you got a glimpse of what I look like. But the photo I put up at first has been taken down. It’s just too icky, and while it’s definitely educational, I decided to shield you from the yuck. And me, too. Looking at the mess in the mirror is enough. Online is just too much. And so I give you: flowers, pretty flowers.

Deviant Jeans Stitches Together Support

Wednesday, June 2nd, 2010
deviant-jeans-200jd060210

deviantjeans.com

I’d love to take this great story about Deviant Jeans and put it into my own creative words, but I’m afraid I just wouldn’t do it justice.

So, I’m going to do what no writer really ever wants to do — copy and paste.

It’s the only way, though, for you to feel the emotion that powers this company.

Yes, I’m cheating a little. But right after I cheat, you’ll find something I did work on myself — an interview with Deviant Jean’s Kristin Dudley.

OK, here goes:

Deviant Jeans began in a hospital room at the Dana Farber Cancer Institute when a genetic counselor broke the news that Kristin Kantner’s mother, Doris, tested positive for a gene no one else had. After a moment of silence, all her family in the room began laughing at the notion that within their perfect mother was a little deviance — a “deviant gene.”

Kristin’s mom, a positive, independent, and fashion conscious woman, recognized during her cancer treatments that she had to compromise her style in order to be comfortable and compliant to doctor’s orders. As side effects of her treatments persisted, she found buttons, zippers and the basics of adorning regular clothing a challenge. Kristin watched her mother struggle to match practicality, comfort and fashion and decided to take action…

Kristin collaborated with her entrepreneurial neighbor and friend, Jane Hoffer, and by a twist of fate, the two met Kristin Dudley, a Philadelphia based fashion designer focused specifically on designing for women’s wellness. After a year of planning, designing, and caring, Deviant Jeans™ apparel is now “MADE WITH LOVE IN PHILADELPHIA,” and available to women nationwide.

And now for the fancy interview:

Tell us exactly how some of your products make life easier for cancer patients.

A major consideration in all of our designs is for our apparel to transition from every day to treatment days, without the need to disrobe when receiving chemotherapy or undergoing testing. The Deviant Heart Camisole is especially helpful for women undergoing breast cancer treatments. It is designed with a comfortable shelf bra, and features a contoured neckline to allow for easy port access. The straps are wide, which alleviates the shoulder of the digging and indentations that typically occur from bra and spaghetti straps.

How do you determine what women need?

I have been designing products and apparel for women’s wellness for the past 4 years. Throughout this time, women have approached me with requests for apparel designed to suit their changing bodies and lifestyles. I began receiving faxes with hand drawings of what they were seeking! I have met with many medical professionals as well, who also influenced my design. I address the construction issues, and then I add style!

You’re not just about selling stuff — you’re charitable, too. Tell us more.

When initiating Deviant Jeans, there was one thing that was clear between my partners and myself: we are here to make a difference, not a fortune. We decided to give the customers the unique opportunity to choose their preferred charity they wanted a portion of their purchase to benefit. We offer a list of different charities to choose from at our online checkout, and accept requests from those who wish to support their local support group or other charity.

Name one great clothing tip for women making their way through treatment.

Light layers are essential! Hospitals tend to be very cold inside, yet at the same time, you never know when a hot flash may pop up. Begin with your favorite camisole and layer with a loose fitting button down shirt or tunic. Bring an open front sweater or wrap to wear on top of that. Have fun with your middle layer — seek brilliant colors and wild prints! Think of your clothing as your armor, and fight your battle boldly!

Pretty cool, stuff, isn’t it? Well, it’s going to get even cooler, because very soon, Kristin and I are going to be sponsoring a fun contest. Called “Message of Strength,” it involves calling up your artistic talents, and it could win you a free EMPOWERWRAP. More to come, so, keep checking back.

Time Heals My Wounds

Thursday, May 27th, 2010
flower-200jd052710

Photo: tanakawho, Flickr

Time may not heal all wounds, but in my case, it definitely blurs them. Let’s talk chemo, that horrible thing from which most of my breast cancer wounds developed.

For each of my four dose-dense infusions of adriamycin and cytoxan, my sister delivered lunch to the pink pretend-leather recliner I called home for hours at a time. There was a yummy gyro, a delish tuna sandwich, a great turkey sub, and I can’t remember the fourth one — which is exactly my point: I can’t remember. Time has erased my memory of the food that so repulsed me I couldn’t eat it for years. Years!

It’s been five years since my chemotherapy ended. And just now have I realized that the thought of these foods does not make me want to vomit. They actually sound pretty appetizing.

All it took was time. The same time that has allowed my hair to grow back, my surgery and port scars to fade, and my fear of recurrence to morph into something almost unrecognizable.

Yes, my wounds have healed — not completely and entirely, but mostly.

I love that.

What Helped Me Move Forward

Thursday, May 20th, 2010

My friend Lexi over at Jeans Cream asked me to write a guest post for her blog and I did. It published today. Here it is: http://bit.ly/9BOMdJ

Peeking in at Breast Cancer: Lynea

Thursday, April 1st, 2010

Lynea was diagnosed at age 39 with breast cancer following a “baseline” MRI. She’d had a mammogram 8 weeks prior, and her OB/GYN’s office pushed for a MRI due to family history, just so she’d have records to look at years from now. Forget years from now — the cancer was already there! Lynea is stage I, triple negative, and her treatment plan includes 4 dose-dense AC and 4 T. No need for radiation. Here is a snippet of her story:

First day of chemo, 2/2/10

First day of chemo, 2/2/10

I came up with the idea of taking pictures at the beginning of my treatment, at mid-point and at the end. I joked that presidents have their pictures taken to show how old they got, so why shouldn’t I have pictures to prove how bad it has made me look — or how well I did!

Halfway done with chemo, 3/30/10

Halfway done with chemo, 3/30/10

I think so far, I don’t feel like I look much different, although, unfortunately, I have found some weight due to the lovely steriods they give me, but I figure there is always time to worry about my weight later.

Just think, Lynea: one day, that tree will be covered with leaves, and your head will be covered with beautiful hair!

Zac Smith Praying to Survive

Tuesday, March 30th, 2010

Surviving Cancer — and Its Side Effects

Monday, March 22nd, 2010
Oncology: a branch of medicine that deals with tumors (cancer).

Oncology: a branch of medicine that deals with tumors (cancer).

I went for another cancer check-up this morning, the first since my 5-year cancerversary. Mostly, everything is A-OK — so well, in fact, that I now get to see my favorite doctor once a year instead of every six months.

But with the happy hooplah of surviving cancer for a good amount of time comes the fact that I need to start thinking about surviving the side effects of cancer for a good amount of time. There are certain issues that come with life after cancer. For me, it’s mostly heart stuff.

Three things that might affect my heart: the chemo drug Adriamycin (I had four doses), radiation (it was delivered right on top of my heart) and Herceptin (the wonder drug I received for one year). All three of these life-savers can compromise heart function over time. “You should be so lucky to get heart disease in 20 years,” someone once told me, “because it means you will have survived cancer for 20 years.” Yea, that doesn’t make me feel so relieved. In fact, it’s apparently cause for a consultation.

Someone is going to contact me soon to discuss survivorship issues, says my doc, and this person will notify my primary physician of potential concerns, too, so he can monitor me appropriately. I’m not overly concerned about this, really. I’m basically just thankful to be alive, with a heart that today is very strong. For now, that’s just enough.

Second Opinions Matter

Friday, March 19th, 2010
Photo: cjc4454, Flickr

Photo: cjc4454, Flickr

My darkest hour arrived while I was cooped up in a hospital room with chemo-induced fever and other mystery symptoms. I was bald and bloated and beyond hope when a well-respected attending oncologist swung by my room with a crowd of med students and announced it could be another cancer causing my illness. Probably leukemia or lymphoma. A bone marrow biopsy would determine my fate, this doc told me, just before he casually strolled away from my despair and moved onto his next patient.

It wasn’t a biopsy that greeted me a few days later. It was a new doc, starting a new rotation.  A second cancer wasn’t even on his radar. Rather, he was convinced my dose-dense chemo (given every two weeks instead of three) was to blame. Nothing some heavy-duty meds couldn’t fix.

A few days later, I was home, healthy, and once again, hopeful.

That was five years ago, and it was not the first time I was misguided by a well-meaning doctor, which brings me to this very important medical conclusion:

Second opinions matter.

I’m living proof.

Doctor Dreams

Wednesday, March 17th, 2010
Photo: Robert Brook, Flickr

Photo: Robert Brook, Flickr

I’ve been dreaming about my oncologist. Just knight-in-shining-armour kinds of dreams — you know, where someone sweeps in and saves the day, or in my case, a life.

Note: In stories about medieval times, knights were soldiers who rode on horses and helped women in difficult or dangerous situations.

Anyway,  my mind has been a bit wonky ever since my body was blasted by chemo five years ago. The whole head thing is sort of cool, really. Sometimes I think something is going to happen, and then it does. Or I wonder why I haven’t heard from someone in a long time, and then that person magically calls or sends me an e-mail. Or, I dream about something that is so telling. I’m dreaming about my doctor, you see, because I have a check-up with him on Monday, and he’s going to take my blood, check for lumps and bumps and determine if I’m still cancer-free. Big stuff. No wonder he’s hijacking my dreams.

Now maybe this pseudo-psychic stuff is not chemo-connected at all, but I don’t recall things like this happening before poisonous potions spilled through my veins, so I tend to merge the two. Either that, or I can’t remember my mindful skills because chemo is wiping out my memory, one cell at a time.

Whatever the case, I’m having doctor dreams, and while I can’t remember them clearly (aha, the memory theory is looking pretty strong), they are generally positive and happy dreams, and I’m taking that as an indication that so will be his news to me on Monday. He is my knight after all, and I’m counting on him to keep saving me.

Speaking of doctors, mark your calendars, because March 30 is National Doctor’s Day. The red carnation is commonly used as the symbolic flower for this special day, so maybe you should deliver one to your own knight at the end of the month.

“Survivor” Jennifer Lyon Dies of Breast Cancer

Wednesday, January 20th, 2010
http://jennlyon.com/

http://jennlyon.com/

Former “Survivor” contestant Jennifer Lyon died on Tuesday night. Breast cancer. She was 37.

And this is exactly why I can work myself into a tizzy about the disease: because very young and otherwise healthy women die from it, and since I’ve had it, and there’s a chance it will come back, it’s pretty hard to not get all worked up about it. Mostly, I have hope, though, and I’m pretty sure I will survive for the long haul. I figure if I have more hope than worry, then life will be a whole lot more fun.

More about Jennifer: According to PEOPLE.com, the reality TV star, who placed fourth on “Survivor: Palau” in 2005 and passed away in her home in Oregon, was first diagnosed with stage-three breast cancer a few months after her “Survivor” season ended. She had a modified, radical bilateral mastectomy, then chemotherapy, then she took Tamoxifen. (Tamoxifen is a drug used to prevent recurrence for those who qualify for it. I don’t.)

Jennifer apparently found something suspicious in her right breast in the summer of 2004, but she chalked it up to scar tissue related to breast implants, and she let it go — for a long time.

Don’t do that, people! Don’t let anything go — if you find something, find a doctor. Right away. Then demand a mammogram, an ultrasound, an MRI — just don’t self-diagnose. The results can be tragic.

If you can remember just one thing about breast cancer, make it this: if caught early, this disease can be stopped. It doesn’t have to grow and spread and take over other organs. Small tumors can be removed, your body can be treated, and you can survive. Really, you can. So check your breasts (forget those who tell you self-exams are unnecessary and mammograms can wait) and report anything — anything — that just doesn’t feel right.

OK?

OK.

Hope

Sunday, January 17th, 2010
2005

2005, post-chemo

Five years ago, I was in a hospital bed, too weak from chemo to stand up.

2010, post-run

2010, post-run

Today, I ran 11 miles.

See, there is always hope.

Flashback: December 24, 2004

Thursday, December 24th, 2009
Side effect of radiation: limited range of motion in my left arm

Side effect of cancer treatment: limited range of motion in my left arm

I do have my breast. And I have a fairly good prognosis. My lump was removed and measured 1.1 cm, which is small. My lymph nodes were negative for cancer, although four were removed for biopsy purposes. My margins were clear, and there was no apparent spread of cancer. My cancer is considered stage 1. And that is good. I have two incisions, one in my armpit where lymph nodes were taken and one underneath it, on the side of my breast. They are both about 3.5 inches long. Besides a bad skin reaction to the tape I was bandaged with, everything went well. There are minor inconveniences right now. As my incisions heal and my skin tightens, it’s harder to lift my arm. So I have exercises I must do each day. Because of the missing lymph nodes, I may have trouble with swelling in my arm so I have to watch for that. I have not been able to shave my armpit since my surgery on December 3.

And now I await the next step in this battle. I will begin receiving chemotherapy in mid-January. This will last for three months. I will go for treatment four times, once every three weeks and will have a combination of drugs sent through my body via IV. The purpose of chemo is to kill rapidly growing cells, and cancer cells are rapidly growing. Unfortunately, all rapidly growing cells are killed, like hair cells and bone marrow cells. The chemo should kill any cancer cells that floated away from my breast, if any did. I don’t know how I will react to this process, as each person responds differently. At the very least, I hear I will be tired at times during each three-week time frame. I may also be tired from the radiation. This will begin three weeks after chemo ends.
NOTE: It didn’t happen exactly like that: Instead of receiving chemo every three weeks, I had it every two weeks — it’s called dose-dense chemo, and if the patient can tolerate it, it’s thought to be more effective. Did I tolerate it? Well, I survived, but I was hospitalized twice because it was so hard on my body.

I will receive radiation every day for 6 weeks. The purpose of radiation is to zap the actual area where the cancer was found to prevent it from recurring. Many women take a drug after chemo and radiation to prevent recurrences. The drug (usually tamoxifen) is taken for five years. My body will not respond to this type of drug due to negative estrogen receptors (if they are positive, the drug can be taken) so chemo and radiation will be my only two real treatments.
NOTE: Radiation went just fine. It was a breeze compared to chemo, and my skin didn’t burn too badly. The biggest hassle was the drive to and from the appointments. And while it’s not such a big deal, my left arm has limited range of motion due to the combo of surgery, scar tissue and radiation. See photo above — my right arm touches the ground, but my left arm won’t.

For now, I am trying to keep life simple. Joey and Danny help me do that. Joey knows I am frequently going to the doctor for a “boo-boo” I had in my “booby” and he has been very attentive. One day after a doctor appointment, he said, “Mommy, you need to go home and rest. I’ll bring you a banana.” He is almost four years old. Danny, at 19 months, does not seem to know anything is going on and it’s my hope that he never has any recollection of this path our lives are taking. I will never forget it, though, and that’s OK. I will take this experience and make it matter. A friend sent me a breast cancer bracelet inscribed with trust your journey. I do. I trust that I will be fine in the end. And I trust that I was given this fight so I can help others. That is why I have written this. I hope everyone who reads about my journey is affected in some way. Perhaps it will increase the amount of women who do self-exams. Maybe it will arm others with information to help loved ones who are affected by this common disease (about 1 in 8 women will get breast cancer at some time in their lives). Maybe it will spread hope. At the very least, writing helps me. And for now, that is enough.
NOTE: Writing still helps, five years later.

Wishing You Well

Saturday, December 19th, 2009
SuperFantastic, Flickr

SuperFantastic, Flickr

Sending out some well wishes to a few friends — Carmen, who, on her second run with breast cancer, is recovering from tram flap surgery. And Lynea, she’s navigating the murky waters that come flooding in after a new breast cancer diagnosis. Also, Stacie, sporting a newly-shaved head as she fights her way through the burden of chemotherapy. Genne, too. She is healing from a mastectomy and reconstruction, and the whole ordeal has challenged her to the core.

If you are somewhere along the path of cancer survival and would like a wish sent your way, please leave a comment and tell me what’s going on in your world.

New Cancer Drug Shrinks Tumors

Wednesday, December 16th, 2009
annnie, Flickr

annnie, Flickr

Gotta love a new breast cancer breakthrough. This one just in: “A new targeted cancer drug has been shown to shrink tumors in women with metastatic breast cancer after an average of seven other drugs, including Herceptin, failed,” says Charlene Laino for WebMD.

The new drug is called T-DM1. The T stands for trastuzumab (that’s scientific for Herceptin), and the DM1 comes from an old chemotherapy drug called maytansine that was abandoned several decades ago after it was found to be too toxic for patients, according to Dr. Ian Krop of the Dana-Farber Cancer Institute in Boston.

Well, isn’t it still too toxic? Nope, because Herceptin only zeroes in on cancer cells that express HER2, says Krop, and DM1 is delivered only to those cells. “The cytotoxic drug goes right to the cancer cells, so it’s not floating around and causing other problems,” he says.  “And Herceptin still does all the things that Herceptin does.”

Herceptin is a drug used to fight HER2-positive cancers — tumors that have too much of a type of protein called HER2. Herceptin, a man-made antibody, binds to and blocks the HER2 receptor that appears on the surface of some breast cancer cells. It was one of my drugs, and it seems to be working — I’m alive five years after my diagnosis. But metastatic breast cancer (the kind that has spread to other organs) can become resistant to Herceptin, which is why researchers have been searching for new drugs to attack HER2.

With this new drug, tumors shrank in one-third of women studied (they all had breast tumors for an average of three years). In another 12 percent, tumors stopped growing for at least six months. The women had previously been treated with therapies including Herceptin, Tykerb and Xeloda, and each had failed.

“This is the first study looking at women who have failed so many other treatments,” reports Krop. He thinks the results (presented at the San Antonio Breast Cancer Symposium December 9-13) are as good as he’s ever seen in such a sick population. And researchers expect T-DM1 will perform even better in women with earlier-stage cancer.

Fight Breast Cancer and Other Major Diseases

Wednesday, November 4th, 2009
clinical-research-400jd1104

ClinicalResearch.com

The following was written by Julie Hurvitz, on behalf of Quintles and ClinicalResearch.com

It’s wonderful to know that approximately 89 percent of women with breast cancer will be there to tell bedtime stories to their children this year. This number is much higher than it was 20 years ago due to early detection and improved treatments. As a daughter of a breast cancer survivor myself, I’m thankful for every single day my mother and I have together and every telephone call that is made and received. Medicines and procedures such as chemotherapy, hormone therapies and targeted biologics slow cancer down and keep it from coming back. And these victories are all due to advancements in medicine made possible by clinical research.

Today, I’m proud to introduce you to www.ClinicalResearch.com, a new resource that provides important facts about clinical research, encourages more people to become champions of clinical research and builds excitement for the promise of tomorrow’s medicines!

Sponsored by Quintiles, www.ClinicalResearch.com presents easy-to-use, comprehensive information for those who have little or no understanding of clinical research and the value it brings to healthcare. With a few clicks, patients who visit www.ClinicalResearch.com can identify ongoing or future clinical trials appropriate for their disease or condition and narrow them down to those that are geographically convenient. What else can ClinicalResearch.com provide?

  • The Web site puts you in touch with supporting information about clinical research
  • www.ClinicalResearch.com also provides videos and news from recent studies

In order to win the fight against diseases such as cancer, diabetes, Alzheimer’s, viral diseases, heart disease and stroke, millions of people need to be aware of and participate in clinical trials and research. But more help is needed!

The clinical trial became the standard in developing drugs in 1962, and since then, the FDA has approved over 1,019 novel therapies. Virtually all the medicines used today are a result of clinical research, including all drugs for cancer, heart disease, depression, HIV, Alzheimer’s and asthma. Clinical research through clinical trials is arguably the greatest medical invention of the 20th century. It continues to deliver life saving medicines and treatments and gives hope to patients in need of better care and effective medicines. Need another reason to consider clinical trials? The research pipeline holds over 9,605 potential breakthroughs!

To hear patients and doctors tell their story about clinical trials, please click here.

Take a moment this afternoon to visit www.ClinicalResearch.com, browse around, and learn more about getting involved.

What Breast Cancer Looks Like: Julia

Thursday, October 29th, 2009
surgery-398jd102909

www.cancervacation.com

First, let me say that Julia’s website is not for the faint of heart. She admits it, with this statement on her blog: “CancerVacation.com features written material, illustrated artwork, digital artwork, and medically-themed photography that may contain nudity, blood, or other things that one might classify as ‘ooky’. If you are under the age of 18, if it is illegal for you to view this type of material, or if it was not your intention to visit this site, then please leave by clicking here.” (Julia heads you back to the Google search page when you click on her site.)

OK, you’ve been warned.

paper dolls

www.cancervacation.com

Now, even though the images you’ll see at CancerVacation might be a little raw, they are completely and entirely breast cancer real. They show surgery (Julia had a mastectomy, plus hysterectomy), hair loss, weight gain (yes, because being sick and bald isn’t quite enough!) and just about everything else central to the fight for life. There’s even some fun stuff,  like paper dolls.

Basically, if you want an authentic look at breast cancer, Julia has the goods.

“When I first found out I had cancer I immediately went online to find out anything I could,” she writes on her blog. “The results were very disappointing.  Nearly all of the photographs, especially, were deficient in multiple ways… usually the best you could find was a grainy, anonymous sort of ‘before’ and ‘after’ set.  There is a very understandable reason for this; a lot of women don’t want to be photographed in any state of undress and especially not during a time when they’re vulnerable and scared.  Most women don’t think, “Wow, I have cancer – I need to take some pictures of this!”  Most people who have just been diagnosed with cancer are shocked and worried and have other things on their mind other than documenting the whole thing for other people.

So here was my opportunity to fix that.  Sure, there weren’t easily accessible photos of what would happen to me during my mastectomy (and the following procedures)… but there will be for the next woman, right?  This is something that (I think) I can fix.”