Archive for the ‘Chemotherapy’ Category

What Breast Cancer Looks Like – Tracy

Tuesday, March 24th, 2009

Tracy says, “I decided to shave my head before my hair started falling out.  I asked my family and some friends to come with me so that I wouldn’t lose my nerve.  It was an extremely emotional day for everyone as you can see from the picture of my husband and children.  But what I found out in the end is that I still looked like me when I looked in the mirror and once I accepted it, my family did the same.  One of my favorite pictures of all time is the picture of my newly shorn head with the hands of my husband, my mother and my two children on it.  I think it shows strength and acceptance and that has been the story of my breast cancer journey.  Strength from family and friends, strength of my own and acceptance that these are the cards we were dealt.  I have recounted the entire head-shaving day on my own blog and find that it is one of my favorite entries.”

To read more about Tracy and her inspiring journey, visit her blog here.

Want to show me what you think breast cancer looks like? Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.

Weighing on my mind

Friday, March 20th, 2009

I admit it, I’m concerned about my weight. Not worried about it, just concerned about in a way that makes me work at keeping it right where it is. But I don’t exercise and eat right (yesterday doesn’t count) for weight reasons alone. I also do it for my overall health, which really is a bigger concern for me than the numbers that stare up at me from my scale each day.

A healthy lifestyle as it relates to cancer prevention gets a lot of press. It’s pretty much a fact nowadays that by eating certain foods, ditching all the junk and working up a good sweat most days of the week, we can ward off all sorts of disease. Simple stuff. Also pretty high pressure.

Now that I’ve had cancer, I know that the way I live my life can quite possibly keep me from getting it again. So I do my best. But when I cheat and eat that plate of chicken nachos or skip a day (or week or month) on the workout circuit, I feel guilty, as if I’m rejecting the medicine that can keep me well. It’s a weird mix of motivation and burden. Knowing I have the key to a long, healthy life makes me want to eat veggies for all of time. But knowing I have the key to a long, healthy life makes me feel like I’m doing myself a major disservice when I steal fries of my kids’ dinner plates.

I know, I’m human, and I can’t be perfect all that time. Still, it weighs on my mind. Which is why today, I walked for 3.5 miles, and tomorrow, I plan to lift a few weights. A fruit salad is on the menu for breakfast this morning, and I’m recommitting to a ban on most packaged foods. It’s the least I can do to ensure I’m here for the long haul.

Photo courtesy of Pink Sherbet Photography on flickr

Have wig, will send it

Saturday, March 14th, 2009

Today, I shampooed, conditioned and combed my old wig. It sits drying on my bathroom counter. When it’s all done and pretty, I’ll mail it off to my friend Carmen, who just the other day had her first chemotherapy for breast cancer.

This is not Carmen’s first experience with chemo, and it’s not the first time I’ve sent her my wig. This is her second dance with the breast demon, you see, and so she’s had chemo before, she’s lost her hair before and she’s worn my wig before. She’s not happy she must do it all again. I’m not either. I am happy to help, though, and that’s why I’m eager to get my hair to her, so she can be ready when everything comes tumbling from her scalp for the second time. Hopefully, for the last time.

Dear Carmen,

Best wishes to you. I know life must seem crappy and uncertain right now, but there is one thing you should know for sure: You will look so much better wearing this wig the that styrofoam head wearing it right now. Your eyes are more sparkly, your skin is more radiant and your nose is so much prettier (what the heck happened to that thing?). You are beautiful, my friend — hair, no hair or fake hair. And when you get all your new parts, you will be one hot momma.

Hang in there, Carmen — your battle might be new, but your fierceness is not. Fight with all your might, and you will again emerge from the darkness. And remember these words, because if cancer ever invades my body again, I want you to throw them right back at me.

All my love,

Jacki

Fighting Cancer

Friday, February 27th, 2009

I’m still fighting cancer. Sort of. It’s my hair, actually. It’s the hair cancer gave me that causes me to resist. It’s the curl, which really is more like a wave, that makes me plug in my flat iron each morning and straighten every bend and turn in my once poker-straight, once very blond hair.

Yesterday, I let my brownish, curly-ish hair go. I shampooed it, dried it and let every strand do as it pleased. I was OK with it at first. Then I went out to lunch, saw my reflection in the glass door of my favorite Heavenly Ham restaurant and realized I’m a straight-hair kind of girl. Flat looks better on me. Full and fluffy looks better on other people.

I couldn’t wait to get home. First, though, I had to get my boys from school. Joey’s first words when he spotted me waiting for him outside the front doors: “What happened to your hair?” Then I greeted Danny. “Why is your hair curly?” he said in the car after tracking me with his eyes for a while. “I just did it differently,” I told him. “Do you like it?” Joey piped in: “It’s not my favorite.”

It’s not my favorite either. Damn cancer. Why must it give me curly hair? Sure, it’s better than no hair. It’s just not ideal hair. Which is why I fight it. Today, the flat iron comes out again.

Photo courtesy of kaboodle.com

Dog Walking – and Other Life Ambitions

Wednesday, February 11th, 2009

The following article was previously published in Gainesville Parenting Magazine.

Danny wants to be a dog walker when he grows up. He’s had a bit of practice walking his Nana’s dogs and is pretty sure this career path suits him well. If it doesn’t pan out, he has another option.

“When I grow up, I want to be a football guy,” 5-year-old Danny told his daddy the other day. If he ever asks me for guidance, I’ll push him in the doggie direction. It may not be as glamorous a job as football, but it’s got to be easier on the body. Should Danny opt for football, though, and end up needing medical attention, his brother Joey can respond.

Joey wants to be a doctor. He sprang his decision on me one day while we were walking through the parking deck at North Florida Regional Medical Center. We happened to be on the level where doctors park their cars, and we were admiring all the fancy vehicles when it clicked for 7-year-old Joey: If doctors have nice cars and nice cars cost lots of money, then doctors must be rich. On the spot, he named his future profession. He will be a doctor—or a “blogger.”

“I don’t want a job,” Joey declared recently while strolling around the yard. “I want to be a blogger, like mommy.”

I guess blogging—and all the other writing I do—doesn’t seem like much of a job to a kid who just knows his mom is with him all the time. That’s precisely why it’s such an ideal endeavor for me. I get to stay home with my kiddos, write when they are in school, and then seem completely unemployed when they return home. Still, I have a job. Joey will realize this some day, when he figures out the ways of the world. For now, I’ll let him bask in the simplicity of life, until his lease on this gift runs out.

There’s something so innocent and basic about how children approach life, something that makes it easy to dream of walking dogs and fixing bodies one minute and playing football and blogging the next. Wouldn’t it be grand if adult minds could arrive, if only for a moment, at the very place where kids imaginations run wild—the place where everything seems to make perfect sense.

After Joey announced his plans to become a doctor and just before a school drop-off one morning, I noticed a slick, sporty little car driving next to our worn and tattered mini-van.

“Look at that nice car,” I commented to my boys. Looking in the direction of the woman driving this cool ride, Joey said with absolute certainty: “She’s a doctor.”

Yep, life is simple for little ones. And how fun it is to be the mom of two of the greatest dreamers around—and to have a job that allows me the time to marvel at the wonder of my glorious guys.

The first cancer day

Tuesday, February 10th, 2009

~Merete on flickrThere you are, plugging along with your day, happy as can be and fully expecting that nothing can disrupt your groove. All the while, something deadly is growing inside your breast and even though you do your self-exams, perhaps even get mammograms, you have no idea it’s there. But it is. And it continues to grow, sometimes for as long as eight to 10 years before it can be detected. And then the day arrives when it appears, maybe underneath your fingertips in the shower, maybe in a annual exam, maybe in the form of dimpling skin or nipples that suddenly invert, maybe after your infant refuses to breastfeed because it becomes apparent that something is wrong. But there it is. The tumor. The mass. The cancer. And it wrecks the day. Totally and completely wrecks the day. To be honest, cancer wrecks many days. But the first cancer day really sucks.

My friend’s sister-in-law just had her first cancer day. And so I wrote her an e-mail and said this:

Breast cancer is both a horrible and wonderful disease. It might be hard to believe the wonderful part at this moment and I can tell you for sure that in my early days with the disease, there was absolutely no bright side. Now, however, I have this head full of hair I like better than ever, I have a writing career that was born from cancer, I have a deeper love and appreciation for my family and friends, I worry and stress less (well, sometimes) and I have met some of the most glorious survivors who assure me I am not alone.

It’s my somewhat standard message to those new to the disease. And I mean every word of it. Cancer can be horrible, especially on that first day. But the days do get better. They can even return to happy. And then you get back to plugging along, happy as can be. Am I fully expecting nothing can disrupt my groove? No, not anymore. I am prepared for the ball to drop at any moment. I don’t think it will. But I’m ready.

Photo courtesy of ~Merete on flickr

25 Things About Me

Thursday, January 29th, 2009


1)    I have two beautiful boys who made big entrances into the world: One was 10 pounds, 9 ounces and the other was 10 pounds, 2 ounces. No C-sections. Just lots of drugs, lots of a pushing, a vacuum and two whopper episiotomies.
2)    My big boys left me with big tummy skin. Five years after the second baby arrived, I had a tummy tuck. I must say it was one of the best moves I’ve ever made. Something about sitting down and not having a roll of skin flop over the top of my pants is quite liberating.
3)    My biggest boy (Joey, he’s 8 years old) won’t stop growing. The kid wears my same shoe size, is something like four feet nine and weighs well into the 80s. His doc thinks he may be six feet six when he “grows up.”
4)    A tummy tuck is not the only surgery I’ve had. Before kids, I had a breast reduction and lost 4 pounds of dense, heavy tissue. I went from a 34 DDD to a 34 C. Another great move.
5)    My reduction may have saved my life, because 8 years later, a cancerous tumor showed up in my left breast. Had all that tissue not been removed, the mass could have been buried deep inside, detectable perhaps only at a late stage.
6)    My breast cancer was caught early (I found it while taking a shower). It was stage I, with no spread to lymph nodes. Still, it was aggressive and so my treatment was quite harsh.
7)    Being bald was the toughest thing I’ve ever had to endure.
8)    I am a licensed cosmetologist. Thought I didn’t want to go to college, so I did a vocational program in high school. Then realized I did want to go to college and spent the next seven years there.
9)    I got my undergrad degree from Kent State University and my grad degree from the University of Florida.
10)  I was born in Ohio and lived the majority of my years there. Yet Florida seems more like home, maybe because my mom and sister live here.
11)  Someone I know thinks my mom, sister and I look exactly alike. I guess that means I look 62 or my mom looks like she’s in her 30s. I’m going with the latter.
12)  For 30-some years, my sister and I were never told we looked alike. Then my hair grew back brown instead of the blonde it had always been, and it’s like we’re twins or something.
13)  I have very poor vision. What someone with perfect eyesight can see from 400 feet, I can only see from 20 feet. I hid my glasses in my bedroom closet for the whole year I was in first grade. Wonder if that made things worse.
14)  It took me 37 years to learn how to eat well. I figure a healthy lifestyle is my key to surviving cancer so no red meat, alcohol or sweets for me. I only drink water (although not enough, I’m pretty sure) and try to consume lots of fruits and veggies. I watch calories and fat but sometimes go overboard on the bad carbs. I just can’t resist restaurant bread.
15)  I’ve been known to exercise obsessively (to maintain my weight and stay healthy too) but am sad to report that I’m just not feeling the motivation lately. Burnout, maybe.
16)  I’m a neat freak but not a clean freak. I don’t clean once a week or anything, just when I notice the dust piling up. But everything must be in place at all times.
17)  I traveled to Europe just after graduating from high school and for the whole month I was away, I wanted to be home. I never want to go back.
18)  I hate to travel. I hate packing, driving or flying long distances, living out of suitcases. I was miserable on a flight to Hawaii many years ago, and while traveling from Ohio to Florida as a kid, I could will myself to sleep for almost the entire drive.
19)  My boys have never seen snow but can’t wait to see it. And I can’t imagine ever getting them to a snowy location, because it will require travel.
20)  My boys want a baby sister. I don’t want another baby.
21)  I miss my grandma, who died three weeks after my second guy was born.
22)  I love candles and silence.
23)  I love when my boys are really happy. My heart breaks when they are really sad.
24)  I have been married for 13 years. John remembers exactly what I was wearing the day we met. I remember that he complimented me on my cute toes.
25)   I’ve worked at a hair salon, a yogurt + tanning salon, as an RA at Kent State and a judicial officer at UF, as a college administrator, a preschool assistant teacher and as a server of booze at Blossom Music Center in Ohio. My favorite jobs, though, without question: Mommy and writer.

Blog Book Tour – My Life With Laura: A Love Story

Wednesday, January 14th, 2009

I must admit it’s tough for me to write this post, to share with you passages from a woman’s very personal diary, a young woman who had breast cancer, fought it and then passed away. It’s tough because it makes me sad that Laura, a young wife and mom to little girl Charlotte, had to die. It’s tough because Laura had the same disease I had, and that makes me consider my own mortality (again). I also feel guilty, in a weird sort of way, that I’m living and she isn’t.

It’s all so unfair, the way breast cancer swoops in, takes over and does what it wants. There’s no changing it at this moment in time, I know, but I like to think that awareness is a pretty powerful tool for clobbering the disease. Because if we know about breast cancer, how to help prevent it, how to empower those who have it and how to honor those whose lives are lost along the way, we can surely make strides. And this is why I pay tribute to Laura today.

What follows are a few excerpts from Laura’s journal, each one included in the book “My Life with Laura: A Love Story,” written by Laura’s Husband, Chad Moutray. If you like what you read and want more, please order your own book right here.

And so we begin.

In May 2006, after experiencing breast-feeding difficulties, Laura was diagnosed with stage three breast cancer in her left breast and surrounding lymph nodes. She went through the “ringer,” she wrote, thought she was in the clear and then the disease can back.

June 8, 2006

I started chemotherapy today. More on that later, but for now, I feel seasick, mild headache between eyebrows, a little warm. Drinking lots of water and staying still. Numbness coating legs, feet, knees so a little wobbly. Loud noises are a little startling. Foggy brain.

Late June/Early July 2006

I have breast cancer, And now everyone else knows it, too, because my hair fell out and I have to wear scarves. But it’s okay because I’m getting better.

After a trip to the emergency room, a four-day stay in the hospital for low white blood cell counts, viral and bacterial infections and surgeries, Laura wrote:

I am learning to find a deeper peace with God.

Chad writes that things go well for a bit. Laura feels better, they don’t need to rely on volunteers as much and Laura does a little potty-training with Charlotte. Chad and Laura are optimistic. So are doctors. Then things go downhill. Laura experiences severe pain, suspicious spots are found on her hip and Laura has back surgery to fix a fractured vertebra. Her disease had progressed.

After contemplating the real possibility that she might die from her cancer, Laura wrote a letter to her husband, Chad. A few of the sentences she wrote:

I’d like to be creamated because it takes up less space, is cleaner, and quick/easy/cheaper.

If you want to remarry (which is fine, you deserve it), find someone who wants to be a good mother to Charlotte. Maybe someone who could give her some brothers and sisters.

Please let her be in contact with my family, even if it’s only once a year at the holidays if you choose to move away. They love her, and I want her to really know and love them, too.

On November 13, 2007, Laura passed away. But her legacy lives on in My Life With Laura: A Love Story, a book dedicated to little Charlotte, so she will forever know her mother.


Ouch!

Friday, January 9th, 2009

Chemo was bad. The next worst thing about breast cancer, though, was this nasty allergic reaction I had to the tape/latex used during my surgery to remove the tumor that threatened my life. What started as a few red bumps grew into quite a mess of blistery yuck. It burned and itched, made my skin crawl and sent me nearly over the edge. My surgeon (and a dermatologist he pulled into the case) had never before seen anything like it, and they hadn’t a clue what to do about it. They gave me Xanax to get me through.

The reaction happened again, in response to an antibiotic I received while hospitalized for low blood counts. And now, it’s happened again.

Tegaderm tape could be the trigger of this allergy. Well, either that or latex. So I always list both as allergies when asked by medical professionals. I’m sure it’s on my chart at the dermatologist office, but somehow I was sent home after my skin cancer surgery on Monday with bandages containing, oops, latex (there they are, pictured above, apparently “ouchless”). Sure enough, I slapped them on my arm, covered my stitches and then 12 hours later discovered the mistake I’d made. A mess of blistery yuck. It burns and itches, makes my skin crawl and is sending me nearly over the edge.

Double check. That’s what I’ve got to do from now on. No more assuming that someone else is going to look out for my best interests, that someone else is going to actually read my patient paperwork for a listing of my allergies. Nope. It’s all on me. Well, all over me, right now. Which is proof that no one can take better of me than me.

Hair by cancer

Saturday, December 27th, 2008

First, my hair was blond. Then it was gone. It grew back dark and curly. Now it is less curly (but only entirely straight when I flat iron it). And it’s lighter (without the assistance of any chemicals), like it’s going back to its original color. Funny what cancer did to my hair. And how I like it better now than ever before.

Bump

Friday, December 19th, 2008

Last night while John was reading the boys’ favorite Goosebumps book, 5-year-old Danny curled up in my lap (I love that), tugged at my shirt and asked, “Where’s that thing, where you had that bump?” I knew just what he meant. He wondered where to find the area where a port once poked up from underneath my skin. (My port lived near my collarbone for almost two years so that chemotherapy drugs had easy access to my veins.) I pointed to the area, now marked by a very faint scar about two inches long.

“Oh,” he said, and then returned his attention to the story about a boy who became a wax figure in a museum.

Danny doesn’t have much memory of breast cancer. A “thing” and a “bump” pretty much sum up his recollection of a disease that entered his life when he was just 18 months old. It seemed sad way back then to have a baby and cancer at the same time. Now, it seems a blessing. He doesn’t have a clue really. And that’s just how I think it should be.

Lucky Laura wins a prize

Wednesday, December 10th, 2008

It’s an emotional time for reader Laura. She’s just completed chemotherapy for breast cancer and will soon head for a mastectomy and reconstruction. A perfect time for a shiny, new necklace, don’t you think?

Lucky Laura. She won the hand-crafted breast cancer awareness necklace that my blogger friend Christine made and offered for my recent giveaway.

“I look so forward to wearing it,” Laura tells me. “I feel honored!”

Ditto. I feel honored to know these women, both of whom have their very own blogs. Visit Christine at Color Me Pink. And stop and see Laura here.

Been through a lot worse

Saturday, December 6th, 2008

This morning, I had my eyes dilated during an eye exam. I hate that. So much so that last year, I refused to let my very nice doctor place those evil drops in my nearly-blind eyes. You need them, she told me, and I told her I’d come back in a few months. I never did. One year later, today, I complied. I permitted the dilation, and I’ve been suffering all day.

Those drops, given after the also-hated glaucoma drops that numb my eyelids, make my vision blurry and prevent me from seeing anything up close. They make light much brighter than it should be, and they give me a killer headache. Have I used the word hate yet?

“Gosh, your pupils are so dilated,” my doctor told me as I was paying for this torture. “I know, I hate it,” I told her. Her wise response: “You’ve been through a lot worse.”

She’s right. I have been through a lot worse. A growing tumor or yucky eye drops? I’ll take the eye drops. Chemotherapy or blurry vision? Blurry is better. Radiation or a day-long headache? OK, so the headache isn’t so bad.

Geez, I’m such a whiner. The funny thing is, I really only whine about the little things, like dilated eyes. Somehow, I rise to the occasion for the big stuff. Cancer scared me. But I didn’t whine about it. Same with childbirth. Big, painful stuff. No whining at all. What’s wrong with me? Nothing, actually. My eyes checked out just fine. And I don’t have cancer anymore. I have absolutely nothing to whine about. Well, until next year’s eye exam.

Got Brain Fog? Then read this

Tuesday, November 11th, 2008

By Jennifer Chown, of Maximum Capacity

Health care professionals and researchers are finally beginning to accept the reality of cancer-related “brain fog,” though cancer patients themselves have been talking about it for years.

Once affected by cancer, no matter how successful the treatment, some still struggle with changes in themselves that neither medications nor therapy seem to overcome. These are the cognitive changes, or changes in the way we think.   This cognitive disruption affects as many as 75% of cancer patients and can happen not only after treatment but also as soon as the cancer is first diagnosed or first appears. Those affected describe a loss in mental sharpness that is both frustrating and life-changing. The symptoms of  “brain fog” (often called “chemo brain”) include changes in memory, trouble finding and using the right word, poorer attention and concentration, trouble doing more than one thing at a time, and changes in mood or general feelings of psychological well-being.  Each of these symptoms, either alone or in combination, can have a huge impact on how a person functions from day to day.

Scientists are just beginning to unravel why “brain fog” happens.  One culprit may be the chemotherapy itself. Some studies have shown that patients receiving high-dose chemotherapy are at greater risk for cognitive problems after treatment than patients receiving low-dose chemotherapy.  This may be why the term “chemo brain” was first coined by cancer patients.  However, other studies have shown that some patients experience “brain fog” symptoms even before any form of chemotherapy treatment has been given or after other forms of treatment such as radiation.  This suggests that the cancer itself or other factors (such as anxiety, depression, post traumatic stress disorder, fatigue, genetic factors, different treatment, etc.) may also play a role.  What this also suggests is that unless there is more concrete evidence that one specific factor is to blame (for example chemotherapy), people should not be so afraid of brain fog that they let it affect their choice of cancer treatment.

Although the exact cause or combination of causes which lead to “brain fog” is not yet fully understood, the good news is that there are ways to compensate.  The term “cognitive enhancement” refers to a method of improving the way you think.  In cognitive enhancement programs (either in small groups or on a one-on-one basis) you learn about the issues affecting your thinking and then work to become more self-aware of the mistakes being made.  Then, using new techniques and old techniques (techniques you may have been using all along) you can work to get back to better thinking.  Successful cognitive enhancement has resulted in even minor treatment effects having an enormous positive impact on the lives of those affected.

How does a person with “brain fog” begin to make changes?  First, by acknowledging the problem.  These cognitive changes are not just your imagination!  Second, by realizing that just as the physical symptoms of cancer and treatment can vary from person to person, so can the cognitive (or thinking) changes. While one person may think a little more slowly, another may remember a little less, and others might get a little muddled when they do more than one thing at a time.  So how do you know if your cognitive changes are normal or not?  Keep a log of your slip-ups.  When you review your log, ask yourself, is this normal or to be expected given my diagnosis and treatment? How is this different from how I was acting before the cancer? Make a conscious effort to reduce your blunders and monitor any changes over time. Ask yourself if your mistakes are happening more often and whether they are bigger mistakes than you used to make (for example, are you forgetting where you parked, or whether you took the car to the store at all?). Compare notes with others and openly talk about your changes and concerns with peers, family members and your health professional.  Look for local cognitive enhancement programs that you can take. There are many different causes for cognitive change.

Don’t let cancer get the best of your thinking.  Play a proactive role in your cognition. Stay mentally and physically active. Learn and practice strategies and techniques for cognitive enhancement. Talk about the changes, don’t hide them. Take the “fog” out of the cancer experience and help yourself think more clearly.

Jennifer Chown is the Programs Manager for Maximum Capacity: Strategies for Cognitive Enhancement, a company devoted to helping people improve the way they think. www.maximumcapacity.org

Chemo and Angels

Thursday, October 16th, 2008

During chemotherapy, I had a few angels—chemo angels, to be exact. They wrote me letters, filled my mailbox with gifts, sent good wishes my way, and brightened many of my cancer days.

If you’re enduring chemotherapy, you too can have a chemo angel, maybe even more than one. And if you are lucky enough to not be enduring chemo, you can be an angel.

Check out this website
, where you’ll learn that Chemo Angels is a volunteer organization dedicated to adding a ray of sunshine to the lives of those undergoing IV chemo treatment. The angel folks believe people going through the physical, emotional, and mental rigors of chemotherapy deserve some encouragement.

Indeed, they do.

Be an angel or get an angel—I think you’ll be happy either way.

Hip Hats With Hair

Monday, October 13th, 2008

One day, while in the midst of chemotherapy and walking for exercise, a neighbor noticed me and waved. A few days later, she told my sister: “That’s so great your sister didn’t lose her hair.” Ah, but I did. My neighbor just couldn’t tell because my wig was pretty darn deceiving.

My pretty-darn-deceiving wig came from a pretty great place called Hip Hats With Hair. I bought something called Underhair, which isn’t a full wig but this really soft cotton thing with hair on the sides and back. Hats, scarves, or wraps go on top. There are other products—the PonySport, the Scarfabulous, the PonyMode, and the SydneySwim. All made from human hair, these cool cancer cover-ups can be cut, washed, dried, and styled. You can even request hair samples and check out various colors, textures, and lengths.

These hip hair options are not cheap (they can cost hundreds of dollars) but for people like me, who want to look not so bald, price might be a non-issue. Looking like I didn’t have cancer was my issue. If it’s yours too, check out this pretty great place, right here.

Oh, get your doctor to write you a prescription for a wig and you might save some bucks. My insurance covered $40 for me.

Dianne

Friday, October 10th, 2008

A friend of a friend called me the other day to thank me for loaning her a book. The book: Love, Medicine and Miracles: Lessons Learned about Self-Healing from a Surgeon’s Experience with Exceptional Patients
Love, Medicine, and Miracles
by Dr. Bernie Siegel. It’s a book about exceptional patients—you know, the ones who do battle with diseases like cancer not only with surgery, chemotherapy, and radiation, but with attitude. Not just any attitude. I’m talking positive, hopeful, this-won’t-get-me-down-or-kill-me attitude. I thought it was an appropriate book for this young woman, a wife and stay-at-home mom of two little boys, who finds herself fighting stage 3 lung cancer. But what I realized when I talked to Dianne on the phone is this: The girl doesn’t need this book. She’s already exceptional.

Dianne is a non-smoker, an active gal who had no risk factors for such a horrible disease. She got it anyway, though, and by golly, her mission is to get rid of it. Knee-deep in both chemotherapy and radiation, her spirit is amazing. She’s strong, tough, and willing to do what it takes to crush cancer. Crush it is exactly what I think she’ll do. She’s an exceptional patient, after all. I think she’ll realize this as she flips through the pages of her new book and realizes she’s the very person Dr. Siegel discusses. Yes, Dianne, is going to do just fine. It’s the cancer that won’t fare so well.

I hate tumors

Monday, October 6th, 2008

There’s nothing fair about the way it happened, the way Amy died just 15 months after a breast cancer diagnosis seemingly similar to mine. She heard the same string of chilling words—you have cancer—as I did, just months after a doctor hurled them at me, over the phone, a day before Thanksgiving. Both in our early 30s with husbands and small children, Amy and I felt like two peas in a pod, situated in what we believed were almost identical positions. We were both young, both with early stage breast cancer. We both knew our cancers, while caught early, were considered aggressive because of our age—young women tend to have aggressive forms of the disease—but we also knew we had a high likelihood of survival, about 93% for at least five years.

Amy and I had common hopes, fears, and worries, and on several occasions we cried tears we were sure flowed from the same well. We also shared an instant urge to reach others with our breast cancer stories. Amy welcomed local newspaper reporters into her world and allowed them to capture through words and photographs her most intimate cancer moments. I began authoring my own breast cancer blog and then ventured into the world of freelance writing. We both wanted to make our experiences matter. And judging by the flood of reaction we received from our combined efforts, it’s clear we did.

Amy and I shared victories—we both managed to escape the threat of lymph node involvement—and we shared cards and e-mails. Thank you for holding my hand through this journey—it would have been pretty lonely without you, Amy wrote in one e-mail.

Amy and I also shared care packages, family photos, even hats. If misery loves company, then Amy and I were in love. And in celebration of our love, we basked in the glory of our most important similarity—our cancers had not spread. This was key to our survival. Or so we thought.

A mutual friend—her high school buddy and my college roommate—matched Amy and me. Ericha was one of a few close friends who after my diagnosis offered to hop on a plane and come to my rescue in Florida. I never accepted her offer—I was sure I could handle cancer all on my own—and so she stayed in Ohio where Amy, also an Ohio girl, welcomed her assistance. It worked out well this way.

Ericha helped Amy as she recovered from surgery, reconstruction, chemotherapy, and countless physical and emotional twists. She watched Amy’s kids—ages four and one at the time—and cleaned her house and drove her to appointments and selflessly assumed some of the burden drowning this young wife and mother who continued working as a nurse while managing a life with cancer.

“I quit my job,” Amy told me just after she announced her cancer had returned. She said she should have quit after her first diagnosis. She should have taken better care of herself. She should have played with her children, spent time with her husband, given up the chore of work. She would do it right this time, she said. She would crush cancer. She was sure if it.

I wrote and published a post about Amy on The Cancer Blog just after she told me how cancer had shown up in her brain and lungs, just five months after her chemotherapy for breast cancer ended. I wrote about my shattered hope, my fear this would happen to me, my complete and total sadness. And then Amy left a comment on my post. She wrote:

Jacki, I am not giving up. I will beat this again. Don’t you give up yet. I have Luke and Ella and they alone are worth fighting for. Just everyone send me your prayers and positive vibes. Quoting the cancer crusade couple, “Setbacks are a chance to pause and review the lesson of life.”

Amy, the one staring down death—doctors said she had two to 12 months to live—was comforting me. Amy, with her spunk and spirit, convinced me she would annihilate this evil disease. I believed her.

Amy lived for only five weeks after she wrote these words. Ericha called me with the news of her death just as I was leaving my house one Saturday morning to run in a race. I stopped in my tracks when Ericha told me—Amy passed yesterday—and I felt nothing but shock and sorrow for the duration of the run I struggled to finish. I finished for Amy, though. If she could fight cancer—twice—then I could surely pound out a few miles in honor of a friend whose face I never did see.

Amy and I talked about meeting at the beach with our families one day after we’d survived cancer for a few years. We dreamed of going on the Oprah show and proudly announcing our survivorship. We talked about a lot in our short 15-month friendship. What we didn’t talk about was that our situations really were very different. Perhaps we weren’t aware of it at the time. Perhaps we subconsciously chose to find common ground in the midst of our harrowing journeys, to ignore the fact that we were not traveling the same path at all.

Amy had a family history of breast cancer. I did not. Just after Amy completed her chemotherapy, her mother was diagnosed with the same disease that now has affected four generations in her family. Additionally, Amy’s tumor was slightly larger than mine, she received a different chemotherapy protocol than I received, she was not eligible for a year-long drug treatment I accepted to keep cancer at bay and because she had chosen the radical route of removing both of her breasts—I had a lumpectomy—Amy was not a top candidate for the radiation therapy that zapped me five days per week for seven weeks. She wondered if she should have demanded this treatment. She wondered if it would have made a difference in her survival.

The final and perhaps most significant difference in our diseases is that while Amy’s cancer, like mine, had not spread to her lymph nodes, it had found a way to penetrate her bloodstream and was spreading in a secret, silent, and deadly fashion. My oncologist, who dried my tears when I sobbed about the unfairness of Amy’s death, said some young women have a very aggressive disease right away. Amy was one of these women. I, apparently, am not.

There’s nothing fair about the way it happened, how Amy died just 15 months after a breast cancer diagnosis I have now survived for almost four years, how Amy died so quickly and I didn’t, how there is no cure for this mysterious disease that strikes far too many women and some men too.

Amy’s husband sent me an e-mail just after she died. He wrote:

You were a great inspiration to Amy. Your quote ” Fight the Good Fight” was front and center on our fridge. Please don’t let this news get you down, Amy would want your chin up, would want you to keep fighting. Thanks for all your support.

My chin is up. I am fighting. And Amy—thank you for your support.

To have hair

Sunday, September 21st, 2008

It was a shot in the dark when I asked my two little boys last night on they way home from our dinner out: “Who wants to do mommy’s hair when we get home?” Who knew both boys would shoot a hand in the air, like they eagerly wanted to answer a teacher’s question at school, and simultaneously repeat, “Me,” “Me,” “Me,” Me,” until I happily informed them they both could do my hair.

I love to have my hair done. And since I’m not sure my growing boys will want to play beauty shop for much longer, I’m capitalizing on this game while I can. I’m all-willing to let them do as they please, too. Spray bottles full of water? Sure. Yanking and pulling as they fumble a rubber band around clumps of my hair? Yep. A delayed bedtime so they can turn my hair into a tangle of knots? Of course.

“Mommy, your hair is so long,” Joey told me as his bedtime hour slipped away and he soaked my hair with blasts of water—it’s easier to brush this way, he tells me. “I remember when it was, like, one inch long,” he continued.

“Yeah, me too,” I told him, realizing I like this hair playtime for many reasons. One, it’s relaxing. Two, it gives me time with my boys. Three, it gives them time with me. Four: It means I have hair.

Gosh, is it nice to have hair—to have someone tear a brush through it and twist it into all sorts of unrecognizable styles, to pull it back into a ponytail, to have the pleasure of complaining about what this crappy Florida humidity does to my chemotherapy-acquired waves, to have an appointment on Thursday to get it cut because it’s too long.

Yes, my hair is long. Too long even.

Gosh, is it nice to have hair.

Giveaway: Now this is one smooth deal

Wednesday, September 10th, 2008

n18624175908_572416_9142.jpgFirst, let me tell you that Smoothie King is offering a freebie for all of you, whether you enter this giveaway or not. On September 18, during the hours of 7:30 and 10:30 AM, the king of all smoothies will give away one 20 oz. coffee smoothie to each customer who wants one. Check out SmoothieKing.com to find your nearest location. Click here for more information on the freebie event.

OK, now back to all things cancer.

Smoothie King supports the cancer crusade, even offers a smoothie tailored to chemotherapy patients struggling to eat healthfully and maintain weight throughout treatment. The Hulk, this smoothie is called and if you are so inclined, in the spirit of breast cancer awareness, you can get it in strawberry pink. Perfect.

There are so many other flavors at Smoothie King and if you win this giveaway, you can spend your winnings on a creation, well several creations, of your choice.

So, Smoothie King is offering one $25 gift card to the winner of this giveaway. Just check out this website, pick your favorite smoothie, and share in a comment what you declare as tops. One week from today, on Wednesday, September 17, a name will be chosen randomly, and then announced here, and then my Smoothie King friend Leah will send her gift to the winner.

Smooth deal, eh?

Thank you, Leah and Smoothie King.