Archive for the ‘Hair loss’ Category

Hair Loss: How Did You Handle It?

Wednesday, June 23rd, 2010
Photo: "passamanerie", Flickr

Photo: "passamanerie", Flickr

It’s got to be one of the hardest things about cancer — hair loss! And I know my friend is hating the idea of being bald, just like most of us do, but still, she is handling it with such grace. Her technique: she cut her very long hair very short in anticipation of the big fallout. I like her approach, which is so totally different than mine.

I kept my very long hair around until the very last moment. I think I wanted so badly to not lose it, that I fought back by making not one single preparation. Silly me. The docs and nurses and every other breast cancer survivor I’d met told me it would happen, plus pretty much exactly when it would happen (about day 11-16 after the first chemo treatment), and still, I crossed my fingers tight and hoped like mad that I’d be the exception. And on the day of my second chemo dose (day 14), I wore a hat on my head to hold each hair in its place — it was starting to fall out in clumps, wash away in the shower, and it was pulling so hard on my head it hurt — when I should have accepted the inevitable and surrendered. I did surrender that night — cut off three ponytails, and handed the clippers to my husband and 4-year-old, who shaved while I cried — but only because I could no longer hold onto the hair I so desperately did not want to lose.

My friend has accepted the inevitable, and I love that about her!

How did you handle your hair loss?

Cancer Survivor Rebecca Needs Your Vote!

Wednesday, June 9th, 2010
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Vote right now! And thank you!

My new two-time-cancer-surviving friend Rebecca needs your vote. You see, she is trying to get a charity called Hair 4 You off the ground. It’s a great one, and the goal is that it will provide free wigs for kids and teens with medical hair loss. In order to make it all happen, though, Hair 4 You needs to become an official non-profit 501(3)c, which means Rebecca needs some funds.

No, she doesn’t want your money, just your vote (voting is absolutely free and requires only an email address and password).

So, can you pretty please stop by the Pepsi Refresh Challenge website and cast your vote for this 24-year-old, who would really love to win a $25,000 prize. Imagine what she could do to brighten the worlds of young people who just want to feel normal. And hey, you can vote once every day, so start now, then keep voting through June 30.

Rebecca thanks you.

I do, too.

Also, you should consider becoming a Facebook fan of Hair 4 You. This way, you’ll get updates on how Rebecca’s cause is coming along.

For the Love of Hair

Thursday, February 18th, 2010
Photo by Joey, 9 years old

I love my hair!

I’ve long had a love affair with hair. My mom suspected it the moment I got my first Barbie doll and started cutting away, and she was convinced by the time I owned a whole score of dolls, all with the same short styles. My intention was always to make Barbie more beautiful and stylish than ever. How she ended up looking more like Ken, I’m not sure.

I got better at my art as time went on. I mean, I knew a good pony-tail when I saw one, and that’s because I rarely saw one on my own head. My mom just never could get the hair smooth enough and perfect enough, and forget about two matching ponies — the part was forever zig-zaggy, and I always felt lop-sided, with more hair on one side than the other. This motivated me to master my craft, and I practiced on any head of hair I could get my hands on — sister, friends, sister’s friends, friends’ kids — and whenever I got to see my grandma, we practiced the French braid. It became my signature thing, and my best friend Kim always had a beautiful braid or two when she ran up and down the basketball court in high school.

When I was old enough, I enrolled in a high school Cosmetology program, and I spent my junior and senior years prepping to pass the Ohio State Board exam. And I did, which means I got my very own license to do hair. I still have it. It’s not valid in the state of Florida, and I never did keep up with continuing education or anything, and I don’t really broadcast that I have it, because I don’t want to do anyone’s hair anymore (well, except for family, and, of course, French braids for little girls). I just keep it in a drawer by my bedside — right next to my one remaining Barbie doll, whose hair I never did cut. It’s long, blond, curly and just as it should be.

My point in telling you this story: I love hair, especially my own. It’s because I spent a fair amount of time without hair that I adore it so. And on days when I sit in hair salons, looking at every strand that pours from my scalp, I realize just how important hair really is. Look at the industry built around it and the time we spend washing, conditioning, curling, straightening and coloring what we’ve got. Consider the moods that are born of bad-hair days, the celebrities whose hair we copy and the styles that will go down in history (’80s hair, the Mullet, the Mohawk my 9-year-old wants so badly).

OK, so hair is not everything, and if I had to go bald for the rest of my life to ensure I’d never, ever get cancer again, I’m pretty sure I’d do it. Still, I think you know what I mean, and that’s why I share with you my hair (above). I just got it cut today, and, well, I love it.

Wishing You Well

Saturday, December 19th, 2009
SuperFantastic, Flickr

SuperFantastic, Flickr

Sending out some well wishes to a few friends — Carmen, who, on her second run with breast cancer, is recovering from tram flap surgery. And Lynea, she’s navigating the murky waters that come flooding in after a new breast cancer diagnosis. Also, Stacie, sporting a newly-shaved head as she fights her way through the burden of chemotherapy. Genne, too. She is healing from a mastectomy and reconstruction, and the whole ordeal has challenged her to the core.

If you are somewhere along the path of cancer survival and would like a wish sent your way, please leave a comment and tell me what’s going on in your world.

Straight Talk on Chemo Hair

Friday, October 9th, 2009
straight hair

Photo courtesy of Jordan Pfaff, almost 5 years old

I’ve never really liked the curly hair I got post-chemo. Now, it’s not as curly as when it first sprouted, but it’s definitely wavy and full, and on a humid Florida day (that would be, like, seven days a week, mostly year-round), it grows really big. Thank goodness for the flat iron, because I use my pretty pink one every. single. day. no. exceptions. (Well, except for that one day I let my locks go natural and Joey greeted me after school with an enthusiastic, “What happened to your hair?”)

OK, so I overuse my flat iron, and the crazy-hot heat is damaging my hair for sure. So realizing my strands really needed a break, I had this hair-straightening procedure done two weeks ago. Here’s how it worked: My hair stylist washed my hair and dried it, rubbed and combed in this solution, dried it again and then flat ironed it all over. For three days — OMG, three days — I could not wash my hair (ewww!), supposedly so the magic could lock itself in and straighten my hair for up to four months. And now that I’ve been washing and conditioning my hair for a bit (with special no-salt products), I’m here to tell you what I think about what cost me $150 (plus tip, plus $30-ish for products).

The Coppola Keratin Complex Smoothing Therapy seems to have some merit. It has not worked miracles, and I still have a sort-of bend in my hair, and it’s not immune to the effects of weather, but my hair is smoother and straighter now than it was pre-expensive treatment. I can blow-dry it and leave it as is, if I’m OK with a tiny bit of fluff, or I can dry it and pass through a couple of times with the flat iron — which is what I’ve been doing. My ideal scenario would have been to pack away the iron entirely, but my hair is just not as poker straight as I’d dreamed it would be, so I use it a little — much less than before, though, so that’s a good thing.

When four months is up, or whenenver the effects wear off, I’m not sure I’ll do this again. Truth be told, the no-shampooing thing was really hard, mostly because I like to exercise and sweat every day (so hair washing really is a daily necessity for me) and also because my hair got heavier and greasier by the day, and that just basically grossed me out. I guess if after three days I was rewarded with perfectly super-straight hair, I’d take the plunge and empty my wallet again, but it’s just not. It’s an improvement. Just not dead-on straight — you know, like the hair I had pre-cancer, the hair I permed non-stop because I was sure I wanted curls forever. Well, I was wrong. I don’t.

It’s a Wrap, For Free

Wednesday, August 19th, 2009
www.franceluxe.com

www.franceluxe.com

For the most beautiful hair ornaments in the world, France Luxe is the place to shop. Headbands and barrettes are the specialty at Laurie Erickson’s store, but for those without hair, she’s got something pretty amazing, too.

Through her Good Wishes program, Erickson is donating silk headscarves to women and girls losing their locks to illness or treatment. Why? “Our goal is to provide a small bit of comfort and share the power of positive thinking and good wishes with these individuals on their path to healing and recovery,” says the company website.

Yes, you can score a scarf for free (value: $72-$94) if you are dealing with the crappy state of hair loss. Even better, you get to pick your print. Just call this number to request your fancy freebie: 888.884.3653.

Comfort From a Boy

Tuesday, July 7th, 2009

Writer Abigail Thomas offers in her book “Thinking About Memoir” the following writing exercise: Write two pages (one post) in which a child comforts an adult.

That’s easy.

The child was Joey. The adult was me. And it happened in February, 2005, one day after I realized my hair was shedding from my scalp faster than I could say chemotherapy. It had been 13 days since my second treatment with the toxic breast cancer drugs Adriamycin and Cytoxan, and not a rubber band nor a hat could hold my wisps in place. My scalp was sore, each hair still attached to my head hung with a weight that was nearly unbearable, and it had become abundantly clear that the moment had arrived: It was time to shave my head.

“Don’t worry, mom, you’re not going to die,” announced my almost 4-year-old boy, who was taking his turn shaving away the last of my chemo-stricken hair. “It’s only a haircut,” he assured me.

Whether he knew it or not, Joey was absolutely right. It was only a haircut. I didn’t die. And while some of his comments during my years fighting breast cancer weren’t as comforting — “You look like an alien,” he revealed while visiting me in the hospital in March of that same year — this is the one that still brings tears to my eyes, because, well, it was innocent, it was real and most of all, it was damn comforting.

joey-shaving-head-400jd0708

The child, almost 4 years old

The adult, 34 years old

This post can also be found at Braving Boys.

Look Good … Feel Better

Friday, May 22nd, 2009

nancy_both

The toughest part of my dance with breast cancer was losing my hair. Seems crazy, doesn’t it, that a tumor was living in my body, threatening to take my entire life away, and I was worried about my hair. Yea, crazy. I know that now that I’m alive, probably because the same drugs that left me bald also wiped out a treacherous disease. Still, it’s heartbreaking to lose a headful of hair. Even Farrah Fawcett, who is courageously fighting her own cancer battle, hung onto her famous hair for as long as she could, only succumbing recently to the toxic hair-stealing chemotherapy drugs.

The reality of cancer treatment is that many people will lose their hair. And lots of them, like me, will determine it a tragedy. That’s why the Look Good … Feel Better (LGFB) program exists — to help women face the challenge of a lifetime. LGFB (organized by the American Cancer Society) offers workshops to help cancer survivors feel better. I attended one, and I learned how to draw on eyebrows (yes, chemo takes those too), apply make-up on blotchy skin and cover my head with wigs and scarves. I went home with my very own cosmetic kit, matched to my skin tone, and I met a whole bunch of women walking in shoes that were much like mine. LGFB also offers one-on-one consultations, self-help materials and a 24/7 toll free information and help line — 1-800-395-LOOK.

Take advantage of LGFB if you can. And suggest it to any loved ones who might need it. And do you know of any survivors who deserve to win a trip to NYC (you, maybe)? Check out this contest. LGFB is celebrating its 20th anniversary by searching for five Women of Hope they can pamper with a complimentary make-over and a trip to the annual DreamBall, a black-tie gala and the program’s largest annual fundraiser.

By the way, that’s Nancy up top. She’s a LGFB participant. Doesn’t she look good?

Bald

Thursday, May 7th, 2009

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I haven’t been watching much of “Grey’s Anatomy” lately, but I do know that Katerine Hiegl’s character Izzie Stevens has cancer, so when I caught tonight’s episode, I was somewhat prepared for the storyline. What I wasn’t prepared for was my reaction to the end of the show, when Izzie pulls fistfuls of hair from her head.

She cried.

I cried.

I cried big, sobbing tears, because even though I am almost five years removed from that same helpless, hopeless feeling, it was still there, right in the pit of my stomach, waiting to be called up.

My cancer memories are vivid. Every one of them. But nothing is as vivid as the feeling that suffocated me the day my hair started falling out, when it washed from my head in the shower and gathered in the drain, and wound around my brush, and then covered my pillowcase when I woke up the next morning.

“That was the worst,” I told my husband as “Grey’s Anatomy” ended tonight and Izzie sat in a hospital bed with a completely bald head. “You survived it,” John said. Yes, I did. But I’ll never forget it.

Pink for the Sink

Saturday, April 4th, 2009

41jy4ciww7l_sl500_aa280_Every time I look down into my kitchen sink, I see this breast cancer strainer drain. A mommy friend gave it to me, way back when I was knee deep in chemotherapy, not a hair on my head. This momma was one of many who dropped by meals for me and my boys, and along with the food she delivered on her assigned night, she brought me this.

If you’re looking for a simple, yet meaningful and not-so-expensive gift for someone touched by breast cancer, this just might fit the bill. Click right here to purchase your very own.

Photo by: Amazon.com


What Breast Cancer Looks Like – Kara

Thursday, April 2nd, 2009

first-port-access

The first time they accessed my port for chemo. My chest is pretty flat because they haven’t filled my expanders with saline yet.

pic2

My sister cutting my hair. This was soooooo hard. My boys were watching. Very emotional time for me.

pic3

The finished shave. It felt really weird.

boys

A big hug from 3 of my boys. They were very supportive, even though it was very traumatic for them, having to watch my head being shaved.

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Post chemo. You can see that I’ve lost most of my eyebrows and lashes. My face is a little puffy from the steroids they put me on during chemo. This was a good day – I was waiting at the airport for my son to get off the plane – he was returning after 2 years on an LDS mission in Japan.

Want to show me what you think breast cancer looks like? Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.

What Breast Cancer Looks Like – Lisa and her Mom, MaryJoe

Wednesday, March 25th, 2009


Lisa says, “My mom is on her second fight with breast cancer. She was diagnosed this last time near Mother’s Day and I was getting married in September.  Last June she had a bilateral mastectomy, then 18 weeks of chemo, and then 30 treatments of radiation. During her first appointment with the oncologist she told her doctors to do what they needed to do, but she was going to my wedding (in Vegas) in September. I offered to change the wedding and she didn’t want me to do that. It was right in the middle of her chemo and she said it was a goal she set in her mind to get to that point. She went and got her chemo treatment that morning before we jumped in the car to go. She had all her instructions and whatnot in case she needed to go to a hospital out of town. Nothing was going to stop her … through out everything she kept the most positive attitude. She is amazing.

My day was so wonderful and special. I married a fabulous guy, but also a lot of that was b/c my mom was able to be there.  She is the rock in my family and I was so blessed that she was able to attend.”

Want to show me what you think breast cancer looks like? Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.

What Breast Cancer Looks Like – Tracy

Tuesday, March 24th, 2009

Tracy says, “I decided to shave my head before my hair started falling out.  I asked my family and some friends to come with me so that I wouldn’t lose my nerve.  It was an extremely emotional day for everyone as you can see from the picture of my husband and children.  But what I found out in the end is that I still looked like me when I looked in the mirror and once I accepted it, my family did the same.  One of my favorite pictures of all time is the picture of my newly shorn head with the hands of my husband, my mother and my two children on it.  I think it shows strength and acceptance and that has been the story of my breast cancer journey.  Strength from family and friends, strength of my own and acceptance that these are the cards we were dealt.  I have recounted the entire head-shaving day on my own blog and find that it is one of my favorite entries.”

To read more about Tracy and her inspiring journey, visit her blog here.

Want to show me what you think breast cancer looks like? Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.

What Breast Cancer Looks Like

Sunday, March 22nd, 2009

Breast cancer looks like a lot of things. It looks like scared faces, surgery scars, bald heads, ports, radiation tattoos, growing hair, the color pink, after-treatment celebrations and so much more.

What does breast cancer look like to you?

Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.

Above photo: My journey through breast cancer, illustrated through images of hair, or lack thereof.

Weighing on my mind

Friday, March 20th, 2009

I admit it, I’m concerned about my weight. Not worried about it, just concerned about in a way that makes me work at keeping it right where it is. But I don’t exercise and eat right (yesterday doesn’t count) for weight reasons alone. I also do it for my overall health, which really is a bigger concern for me than the numbers that stare up at me from my scale each day.

A healthy lifestyle as it relates to cancer prevention gets a lot of press. It’s pretty much a fact nowadays that by eating certain foods, ditching all the junk and working up a good sweat most days of the week, we can ward off all sorts of disease. Simple stuff. Also pretty high pressure.

Now that I’ve had cancer, I know that the way I live my life can quite possibly keep me from getting it again. So I do my best. But when I cheat and eat that plate of chicken nachos or skip a day (or week or month) on the workout circuit, I feel guilty, as if I’m rejecting the medicine that can keep me well. It’s a weird mix of motivation and burden. Knowing I have the key to a long, healthy life makes me want to eat veggies for all of time. But knowing I have the key to a long, healthy life makes me feel like I’m doing myself a major disservice when I steal fries of my kids’ dinner plates.

I know, I’m human, and I can’t be perfect all that time. Still, it weighs on my mind. Which is why today, I walked for 3.5 miles, and tomorrow, I plan to lift a few weights. A fruit salad is on the menu for breakfast this morning, and I’m recommitting to a ban on most packaged foods. It’s the least I can do to ensure I’m here for the long haul.

Photo courtesy of Pink Sherbet Photography on flickr

Have wig, will send it

Saturday, March 14th, 2009

Today, I shampooed, conditioned and combed my old wig. It sits drying on my bathroom counter. When it’s all done and pretty, I’ll mail it off to my friend Carmen, who just the other day had her first chemotherapy for breast cancer.

This is not Carmen’s first experience with chemo, and it’s not the first time I’ve sent her my wig. This is her second dance with the breast demon, you see, and so she’s had chemo before, she’s lost her hair before and she’s worn my wig before. She’s not happy she must do it all again. I’m not either. I am happy to help, though, and that’s why I’m eager to get my hair to her, so she can be ready when everything comes tumbling from her scalp for the second time. Hopefully, for the last time.

Dear Carmen,

Best wishes to you. I know life must seem crappy and uncertain right now, but there is one thing you should know for sure: You will look so much better wearing this wig the that styrofoam head wearing it right now. Your eyes are more sparkly, your skin is more radiant and your nose is so much prettier (what the heck happened to that thing?). You are beautiful, my friend — hair, no hair or fake hair. And when you get all your new parts, you will be one hot momma.

Hang in there, Carmen — your battle might be new, but your fierceness is not. Fight with all your might, and you will again emerge from the darkness. And remember these words, because if cancer ever invades my body again, I want you to throw them right back at me.

All my love,

Jacki

Blog Book Tour – My Life With Laura: A Love Story

Wednesday, January 14th, 2009

I must admit it’s tough for me to write this post, to share with you passages from a woman’s very personal diary, a young woman who had breast cancer, fought it and then passed away. It’s tough because it makes me sad that Laura, a young wife and mom to little girl Charlotte, had to die. It’s tough because Laura had the same disease I had, and that makes me consider my own mortality (again). I also feel guilty, in a weird sort of way, that I’m living and she isn’t.

It’s all so unfair, the way breast cancer swoops in, takes over and does what it wants. There’s no changing it at this moment in time, I know, but I like to think that awareness is a pretty powerful tool for clobbering the disease. Because if we know about breast cancer, how to help prevent it, how to empower those who have it and how to honor those whose lives are lost along the way, we can surely make strides. And this is why I pay tribute to Laura today.

What follows are a few excerpts from Laura’s journal, each one included in the book “My Life with Laura: A Love Story,” written by Laura’s Husband, Chad Moutray. If you like what you read and want more, please order your own book right here.

And so we begin.

In May 2006, after experiencing breast-feeding difficulties, Laura was diagnosed with stage three breast cancer in her left breast and surrounding lymph nodes. She went through the “ringer,” she wrote, thought she was in the clear and then the disease can back.

June 8, 2006

I started chemotherapy today. More on that later, but for now, I feel seasick, mild headache between eyebrows, a little warm. Drinking lots of water and staying still. Numbness coating legs, feet, knees so a little wobbly. Loud noises are a little startling. Foggy brain.

Late June/Early July 2006

I have breast cancer, And now everyone else knows it, too, because my hair fell out and I have to wear scarves. But it’s okay because I’m getting better.

After a trip to the emergency room, a four-day stay in the hospital for low white blood cell counts, viral and bacterial infections and surgeries, Laura wrote:

I am learning to find a deeper peace with God.

Chad writes that things go well for a bit. Laura feels better, they don’t need to rely on volunteers as much and Laura does a little potty-training with Charlotte. Chad and Laura are optimistic. So are doctors. Then things go downhill. Laura experiences severe pain, suspicious spots are found on her hip and Laura has back surgery to fix a fractured vertebra. Her disease had progressed.

After contemplating the real possibility that she might die from her cancer, Laura wrote a letter to her husband, Chad. A few of the sentences she wrote:

I’d like to be creamated because it takes up less space, is cleaner, and quick/easy/cheaper.

If you want to remarry (which is fine, you deserve it), find someone who wants to be a good mother to Charlotte. Maybe someone who could give her some brothers and sisters.

Please let her be in contact with my family, even if it’s only once a year at the holidays if you choose to move away. They love her, and I want her to really know and love them, too.

On November 13, 2007, Laura passed away. But her legacy lives on in My Life With Laura: A Love Story, a book dedicated to little Charlotte, so she will forever know her mother.


Skin cancer, indeed

Friday, January 2nd, 2009

It’s skin cancer, that little red spot on my arm that I watched and watched and watched. It must have taken me months to get my butt into the office of my dermatologist. What’s wrong with me? I know what’s wrong: Even after having a serious form of cancer, I still believe the darn disease isn’t going to happen to me. A red patch on my arm? Probably nothing. So I plug along, until it hits me that the thing isn’t going away, that its changing shape and color is probably a sign of something I don’t want. Cancer.

I think I knew the day of my biopsy what the outcome would be. And my phone call this morning confirmed it. Basal cell skin cancer. Bummer. It’s not a big, scary deal, though. Most skin cancers are of this variety and are largely curable.

I’m headed to have this cancer removed on Monday. A doctor will dig deep and remove everything she can. And I won’t have it anymore. And then hopefully, I will learn my lesson and report to her office for anything else that looks remotely suspicious. That’s my plan, anyway.

I love you, a little bit

Friday, January 2nd, 2009

Danny recently made his Nanny a thank-you card for the Christmas gifts she gave him. He drew pictures of her favorite things—a butterfly, a flower, a swimming pool, a rainbow, an alligator, a snail and a wolf (a cat is what he intended, but he said he couldn’t draw one). When I told him I really liked the snail, he announced that he would make me something. “It’s a secret,” he said. “Don’t look.”

I didn’t look. But I couldn’t help but notice the fit he threw when he messed up on his masterpiece. Crayons went flying. Scissors hit the floor. Groans and moans filled the room. I was mad. I told him his behavior was not appropriate, that he needed to calm down and start again. He eventually did. I praised his ability to recover and told him, “I love you, Danny.”

“I love you, too,” he said. “A little bit.”

I’m OK with this. I know Danny loves me more than he lets on. He proved it by making me four perfect snails, one for each person in our family (”This one is daddy, this one is you, this one is me when I was a baby and this one is Joey when he was two”). He put them in brown lunch bag, folded it over, taped it closed and asked how to spell “Jacki.” I told him. He wrote it down. And then he presented me with his gift.

“It doesn’t matter if the letters are backwards,” he declared while handing over the bag. No it doesn’t. A backwards “J” works just fine for me.

My four little snails, drawn with orange marker and cut out in kindergarten fashion, sit next to me at this very moment. They are beautiful. And so is Danny. I really love that guy. A lot.


Hair by cancer

Saturday, December 27th, 2008

First, my hair was blond. Then it was gone. It grew back dark and curly. Now it is less curly (but only entirely straight when I flat iron it). And it’s lighter (without the assistance of any chemicals), like it’s going back to its original color. Funny what cancer did to my hair. And how I like it better now than ever before.