Archive for the ‘Hair loss’ Category

Lucky Laura wins a prize

Wednesday, December 10th, 2008

It’s an emotional time for reader Laura. She’s just completed chemotherapy for breast cancer and will soon head for a mastectomy and reconstruction. A perfect time for a shiny, new necklace, don’t you think?

Lucky Laura. She won the hand-crafted breast cancer awareness necklace that my blogger friend Christine made and offered for my recent giveaway.

“I look so forward to wearing it,” Laura tells me. “I feel honored!”

Ditto. I feel honored to know these women, both of whom have their very own blogs. Visit Christine at Color Me Pink. And stop and see Laura here.

Happy Love Your Body Day

Wednesday, October 15th, 2008

Today is Love Your Body Day. We’re talking about it on That’s Fit, readers here on my personal blog are sharing what they love most about their bodies for my latest giveaway—click here, reveal your most prized body part, and enter to win a dazzler of a dress—and now, I’ll tell you what I love about this 38-year-old body that belongs to me.

To be honest, I’ve always been a bit hard on my body, generally wishing it was thinner, stronger, tanner, tighter, more toned. I’ve even gone as far as reducing my once-too-big boobs and tucking in my sagging-skin tummy. I explain my breast reduction as necessary for comfort—four pounds of heavy, dense tissue were removed—and I justify the tummy tuck too. Comfort again. After seven years, I just couldn’t deal anymore with the excess post-pregnancy stuff hanging from my middle. Comfort aside, though, I admit both surgeries gave me an appearance I wanted: Small boobs and a flat tummy, both better matches for my other body parts.

I love my boobs and my tummy now. Truly love them. There are other parts I love too—parts never reconstructed or enhanced, like my toes.

John told me on one of our first dates that my toes are cute. I agree. They look best in flip-flops, painted just right with my favorite really dark color.

I also love my hair. Never thought I’d say that after shaving off my blond locks nearly four years ago in preparation for the big chemotherapy fall-out. But my hair grew back better. And my hair stylist Trippe cuts it perfectly, which makes me love him almost as much as I love my hair.

Other parts I love: My arms, for toning up so nicely; my legs, for allowing me to run lots of miles; my brain, which is getting smarter by the day, thanks to second-grade homework and four tests per week; the whole darn thing, really. I mean, this body of mine delivered two whopper-sized baby boys and beat breast cancer too. I love it. Simply love it.

What do you love about your body? Name something. Anything. Your eyes, your ears, your lips, your fingernails. Surely, there’s something that makes you happy. Think about it, and share by leaving a comment, either here on this post or on the giveaway post, where you stand to win something pretty.

Hip Hats With Hair

Monday, October 13th, 2008

One day, while in the midst of chemotherapy and walking for exercise, a neighbor noticed me and waved. A few days later, she told my sister: “That’s so great your sister didn’t lose her hair.” Ah, but I did. My neighbor just couldn’t tell because my wig was pretty darn deceiving.

My pretty-darn-deceiving wig came from a pretty great place called Hip Hats With Hair. I bought something called Underhair, which isn’t a full wig but this really soft cotton thing with hair on the sides and back. Hats, scarves, or wraps go on top. There are other products—the PonySport, the Scarfabulous, the PonyMode, and the SydneySwim. All made from human hair, these cool cancer cover-ups can be cut, washed, dried, and styled. You can even request hair samples and check out various colors, textures, and lengths.

These hip hair options are not cheap (they can cost hundreds of dollars) but for people like me, who want to look not so bald, price might be a non-issue. Looking like I didn’t have cancer was my issue. If it’s yours too, check out this pretty great place, right here.

Oh, get your doctor to write you a prescription for a wig and you might save some bucks. My insurance covered $40 for me.

Boo-Boo in my boobie

Saturday, October 11th, 2008

I wrote this essay on December 4, 2006 for Orato.com. It still appears on this site in its original published format. Keep in mind that it’s a two-year-old story. My boys are not four and 18 months anymore. They are seven and five. It has not been two years since my diagnosis. It’s been almost four.

Two years ago, I told my two little boys—then four and 18 months—that I had cancer. I told them cancer meant I had a boo-boo in my boobie. I told them doctors would take it out, I would take medicine, my hair would fall out, and I would get better. They heard my words, translated them into their own meanings, and have been caring for me ever since that November day in 2004 when my life suddenly appeared anything but a guarantee.

My breasts have been abundantly front and center in my life for dozens of years. First they were too big—34 DDD—and I tried valiantly to disguise the bulk on my chest with large shirts, harness-type bras, and rounded shoulders to shelter others from my most obvious feature. Then came a breast reduction surgery to remove four pounds of dense tissue and to augment my waning self-confidence. Cute bras, tight shirts, and better posture became staples in my life. My breasts made me happy—finally—despite surgery scars, occasional numbness, and an eventual inability to breastfeed my babies.

My small, perky breasts made me happy for eight years. Then I found a lump in the left one—a hard, pea-sized lump that presented itself right beneath my fingertips one day while I was in the shower. It became my obsession for the days leading up to my official clinical examination. I touched it and maneuvered it and examined it until I was sure it was growing with each moment.

And so was born the boo-boo in my boobie—the boo-boo my family and friends and doctors predicted was nothing to worry about. The boo-boo that was in fact cancer—housed in a tumor 1.1 centimeters in size, which had not yet spread to my lymph nodes and was considered stage I.

I found my lump early, and my prognosis was good—in some ways. In other ways, I faced a not-so-good prognosis. I was young—34 years old—and tumors found in young women are typically aggressive. My tumor also contained too much of a certain protein that made it wildly aggressive. So for the 24 months that have followed my diagnosis, I have been receiving intensive treatment for a mass that appears treatable and at the same time threatens to take my life.

A lumpectomy took my tumor and four lymph nodes. Four doses of chemotherapy—given every two weeks in a dose-dense fashion— took my hair and my energy and my overall sense of wellness. It landed me in the hospital twice due to fever and a suppressed immune system and was cause for a blood transfusion during one hospital stay. Radiation took hours of my day—five days per week for seven weeks—and left me with temporary burns and ten tiny permanent blue tattoos. And then one year of targeted drug therapy took me back to the chemo room for every-three week infusions of a new wonder drug intended to block that same protein that made my tumor so deadly.

This whole journey, complete with stops for physical therapy, counseling, and treatment with an anti-depressant, is winding down. With surgery and treatment behind me, I have just one final counseling session remaining. And when the session ends and my case is closed, I will begin a new version of my life—free of constant medical intervention and with just a touch of monitoring.

I will visit my medical oncologist every three months for the next five years—when, if cancer has not returned, it will be safe to say I am in remission. For five years, I will also see my radiation oncologist every six months. For the rest of my life, I will receive a mammogram and ultrasound every six months, will report for a breast MRI once every year, and will conduct my own breast self-exams every month. And while there is no comprehensive blood test or can available to offer me peace of mind that cancer is not taking up residence in my body again, I will closely monitor every bit of pain and discomfort, every bump and lump that gives me reason to worry. And I will pursue it all—with a vengeance—so I can catch anything that creeps up on me with enough time to conquer it.

If cancer must enter my world, I will only allow it to stay for a short time-because I have a lifetime of joy and happiness ahead of me, and I cannot be distracted for long. I have two little boys—now almost six and three and a half—whose lives I must witness. They are the boys who propelled me through my darkest days and have touched me deeply with their unwavering love and concern and simple wisdom.

When radiation zapped every bit of energy I possessed and caused me to unintentionally fall asleep in my living room recliner, Joey—my oldest—would ask me when I opened my eyes, “Mommy, did you have a nice rest?” One day when I felt terribly ill, he said, “Mommy, you go to your bed and I’ll bring you a banana.” He worried that my port—or stone, as he called it—might hurt me and when I told him it did not hurt, he replied, “Won’t you be so happy when you can be on your own without cancer?”

I’m not sure Joey has ever really understood the magnitude of cancer. Still, he sensed I needed him during my battle with this mysterious condition. He assured me the day he and his daddy shaved my head prior to my chemotherapy fallout that I should not cry. “It’s only a haircut, mommy,” he said. “You are not going to die.”

He was right. It was only a haircut. And Danny—my youngest—may not even remember that my hair, now dark and curly, was once blond and straight. He has just recently started catching on to the series of cancer events unfolding in our household. A few months ago, he asked, “Why you keep doing that?”

“Doing what?” I asked him.

He replied: “Going to the doctor.”

I told him I go to the doctor so I can stay healthy.

Two years ago, I told my two little boys I had cancer. I told them cancer meant I had a boo-boo in my boobie. I told them doctors would take it out, I would take medicine, my hair would fall out, and I would get better.

This is exactly how it happened.

I hate tumors

Monday, October 6th, 2008

There’s nothing fair about the way it happened, the way Amy died just 15 months after a breast cancer diagnosis seemingly similar to mine. She heard the same string of chilling words—you have cancer—as I did, just months after a doctor hurled them at me, over the phone, a day before Thanksgiving. Both in our early 30s with husbands and small children, Amy and I felt like two peas in a pod, situated in what we believed were almost identical positions. We were both young, both with early stage breast cancer. We both knew our cancers, while caught early, were considered aggressive because of our age—young women tend to have aggressive forms of the disease—but we also knew we had a high likelihood of survival, about 93% for at least five years.

Amy and I had common hopes, fears, and worries, and on several occasions we cried tears we were sure flowed from the same well. We also shared an instant urge to reach others with our breast cancer stories. Amy welcomed local newspaper reporters into her world and allowed them to capture through words and photographs her most intimate cancer moments. I began authoring my own breast cancer blog and then ventured into the world of freelance writing. We both wanted to make our experiences matter. And judging by the flood of reaction we received from our combined efforts, it’s clear we did.

Amy and I shared victories—we both managed to escape the threat of lymph node involvement—and we shared cards and e-mails. Thank you for holding my hand through this journey—it would have been pretty lonely without you, Amy wrote in one e-mail.

Amy and I also shared care packages, family photos, even hats. If misery loves company, then Amy and I were in love. And in celebration of our love, we basked in the glory of our most important similarity—our cancers had not spread. This was key to our survival. Or so we thought.

A mutual friend—her high school buddy and my college roommate—matched Amy and me. Ericha was one of a few close friends who after my diagnosis offered to hop on a plane and come to my rescue in Florida. I never accepted her offer—I was sure I could handle cancer all on my own—and so she stayed in Ohio where Amy, also an Ohio girl, welcomed her assistance. It worked out well this way.

Ericha helped Amy as she recovered from surgery, reconstruction, chemotherapy, and countless physical and emotional twists. She watched Amy’s kids—ages four and one at the time—and cleaned her house and drove her to appointments and selflessly assumed some of the burden drowning this young wife and mother who continued working as a nurse while managing a life with cancer.

“I quit my job,” Amy told me just after she announced her cancer had returned. She said she should have quit after her first diagnosis. She should have taken better care of herself. She should have played with her children, spent time with her husband, given up the chore of work. She would do it right this time, she said. She would crush cancer. She was sure if it.

I wrote and published a post about Amy on The Cancer Blog just after she told me how cancer had shown up in her brain and lungs, just five months after her chemotherapy for breast cancer ended. I wrote about my shattered hope, my fear this would happen to me, my complete and total sadness. And then Amy left a comment on my post. She wrote:

Jacki, I am not giving up. I will beat this again. Don’t you give up yet. I have Luke and Ella and they alone are worth fighting for. Just everyone send me your prayers and positive vibes. Quoting the cancer crusade couple, “Setbacks are a chance to pause and review the lesson of life.”

Amy, the one staring down death—doctors said she had two to 12 months to live—was comforting me. Amy, with her spunk and spirit, convinced me she would annihilate this evil disease. I believed her.

Amy lived for only five weeks after she wrote these words. Ericha called me with the news of her death just as I was leaving my house one Saturday morning to run in a race. I stopped in my tracks when Ericha told me—Amy passed yesterday—and I felt nothing but shock and sorrow for the duration of the run I struggled to finish. I finished for Amy, though. If she could fight cancer—twice—then I could surely pound out a few miles in honor of a friend whose face I never did see.

Amy and I talked about meeting at the beach with our families one day after we’d survived cancer for a few years. We dreamed of going on the Oprah show and proudly announcing our survivorship. We talked about a lot in our short 15-month friendship. What we didn’t talk about was that our situations really were very different. Perhaps we weren’t aware of it at the time. Perhaps we subconsciously chose to find common ground in the midst of our harrowing journeys, to ignore the fact that we were not traveling the same path at all.

Amy had a family history of breast cancer. I did not. Just after Amy completed her chemotherapy, her mother was diagnosed with the same disease that now has affected four generations in her family. Additionally, Amy’s tumor was slightly larger than mine, she received a different chemotherapy protocol than I received, she was not eligible for a year-long drug treatment I accepted to keep cancer at bay and because she had chosen the radical route of removing both of her breasts—I had a lumpectomy—Amy was not a top candidate for the radiation therapy that zapped me five days per week for seven weeks. She wondered if she should have demanded this treatment. She wondered if it would have made a difference in her survival.

The final and perhaps most significant difference in our diseases is that while Amy’s cancer, like mine, had not spread to her lymph nodes, it had found a way to penetrate her bloodstream and was spreading in a secret, silent, and deadly fashion. My oncologist, who dried my tears when I sobbed about the unfairness of Amy’s death, said some young women have a very aggressive disease right away. Amy was one of these women. I, apparently, am not.

There’s nothing fair about the way it happened, how Amy died just 15 months after a breast cancer diagnosis I have now survived for almost four years, how Amy died so quickly and I didn’t, how there is no cure for this mysterious disease that strikes far too many women and some men too.

Amy’s husband sent me an e-mail just after she died. He wrote:

You were a great inspiration to Amy. Your quote ” Fight the Good Fight” was front and center on our fridge. Please don’t let this news get you down, Amy would want your chin up, would want you to keep fighting. Thanks for all your support.

My chin is up. I am fighting. And Amy—thank you for your support.

A Great Gator and a Shining Star

Saturday, September 27th, 2008

Last week, Joey was crowned Greatest Gator in his second-grade class. One child gets this honor each week, a boy or girl who practices good behavior all week, works hard, and generally goes with the flow of all things school-related. Joey was this boy on September 19 and for the whole week following, he was the man. We made a photo collage he took to school and displayed for all to see. He wrote a page in the Greatest Gator journal, about how happy he was to have emerged victorious. He completed a special questionnaire, won the gift of a pencil and pencil gripper—pencil grippers are, like, all the rage in second grade—and was lucky enough to have a stuffed alligator sit on his desk for five whole days. Now, Joey’s reign is complete—his pal Lauryn is the new Greatest Gator.

Things are still exciting here in our household, though, because yesterday, Danny came home wearing a Shining Star construction paper hat. Second grade has Greatest Gators. Kindergarten has Shining Stars. And this week, Danny is it. He too was awarded a pencil—with a heart-shaped eraser, no gripper—and he brought home his own borrowed journal (he dictated and I wrote all about his family and what he likes to do). He gets to take in photos on Monday, which will be displayed for his week-long tenure, and he’s borrowing two books we’ll read at home and then return. He’s a proud boy. Yesterday, after I scolded him for doing something disruptive, he asked if I was still happy he’s a shining star. You bet I am.

I’m happy my guys are off to a good start this school year. I’m thankful they model their good behavior at school and save their bad choices for home. I’m proud, simply proud to be the momma of a Great Gator and a Shining Star.

To have hair

Sunday, September 21st, 2008

It was a shot in the dark when I asked my two little boys last night on they way home from our dinner out: “Who wants to do mommy’s hair when we get home?” Who knew both boys would shoot a hand in the air, like they eagerly wanted to answer a teacher’s question at school, and simultaneously repeat, “Me,” “Me,” “Me,” Me,” until I happily informed them they both could do my hair.

I love to have my hair done. And since I’m not sure my growing boys will want to play beauty shop for much longer, I’m capitalizing on this game while I can. I’m all-willing to let them do as they please, too. Spray bottles full of water? Sure. Yanking and pulling as they fumble a rubber band around clumps of my hair? Yep. A delayed bedtime so they can turn my hair into a tangle of knots? Of course.

“Mommy, your hair is so long,” Joey told me as his bedtime hour slipped away and he soaked my hair with blasts of water—it’s easier to brush this way, he tells me. “I remember when it was, like, one inch long,” he continued.

“Yeah, me too,” I told him, realizing I like this hair playtime for many reasons. One, it’s relaxing. Two, it gives me time with my boys. Three, it gives them time with me. Four: It means I have hair.

Gosh, is it nice to have hair—to have someone tear a brush through it and twist it into all sorts of unrecognizable styles, to pull it back into a ponytail, to have the pleasure of complaining about what this crappy Florida humidity does to my chemotherapy-acquired waves, to have an appointment on Thursday to get it cut because it’s too long.

Yes, my hair is long. Too long even.

Gosh, is it nice to have hair.

Flashes of Hope

Friday, September 19th, 2008

This little boy has cancer. So do the other kids featured in Parade magazine’s Changing Faces of Cancer feature. It’s all part of Flashes of Hope, a non-profit organization dedicated to creating powerful, uplifting portraits of kids battling cancer and other life-threatening diseases.

Powerful and uplifting they are. Check them out right here.

Pretty good day

Friday, September 12th, 2008

Did a radio show yesterday with Dr. Fitness and The Fat Guy, two guys in Atlanta who strive to make healthy living fun for everyone. We talked breast cancer—I told them how I found my lump, how I coped through treatment, how I started this blog, how I lost my hair. Check me out here. Don’t expect me to belt out any songs on this radio clip. That’s what Danny imagined I’d be doing when I told him the other day about my upcoming appearance.

“When are we going to hear your song?” 5-year-old Danny asked this morning on the way to school, just after I’d turned on some tunes.

“My song?” I asked.

“When are you going to sing on the radio?” he responded with impatience. Sensing my cluelessness, he declared: “You said you were going to be on the radio.”

“Oh, I was on the radio,” I explained. “But I just answered questions.”

“That’s all you did?” chimed in Joey. “About what?”

“About breast cancer,” I told both boys. “I talked about how Joey shaved my head and told me not to cry because it was only a haircut and I wouldn’t die.” I could see Joey smiling as I peeked at him through the mirror.

“You were right,” I told Joey. “It was just a haircut. My hair grew back, and I didn’t die.”

“And you look pretty,” Joey said. “And I like you’re hair better now.”

I told Joey he made my day.

“I thought your day was made by my goodness,” he said.

I asked for clarification.

“I thought your day was already made because I’m being so good,” said my 7-year-old guy.

OK, I get it. You see, Joey gets quite a lot of coaching in the mornings to stay on track and get out the door for school. This morning, he did well. So yes, he had essentially already made my day. And then he made it better.

Today, Joey was good. And he told me I’m pretty. And I don’t think I could have asked for anything more at 7:15 AM on a Friday morning.

A pretty good day, it is.

Beds

Tuesday, August 12th, 2008

img_1758.JPGCancer takes away control. I hate that, because I like to have control—not necessarily over people but over my surroundings, my space, my schedule. I like a neat house, a manageable calendar, a semi-clear view of what's ahead. Losing control makes me nervous. Image my anxiety, then, when I had to wait weeks to learn about my breast cancer pathology—the stuff that determines a treatment plan. Consider how wacky I was waiting for my hair to come tumbling out of my head. Think about my mental anguish over the foggy head I developed after my fourth and final dose of chemotherapy—talk about literally losing control—or my two unexpected five-day stays in the hospital. Cancer was out of my control.

I hate that.

But losing control taught me something. It taught me to chill—a little bit—which is why the state of my kids' beds is not driving me completely bonkers.

My boys, ages 7 and 5, are making their own beds now. I figured it was time to charge them with something more than playing, eating, sleeping, watching TV, and occasionally dragging a trash can from the street to the side of our house. So I told my guys one morning to make their beds. I gave them a simple how-to on the whole process, and I set them free. Now they make their beds every morning, often before I even ask for compliance. I love it. I love the initiative they take, the pride they feel for their accomplishments, the fact that it's one less chore for me. What I don't love: The end result—the lumpy, bumpy comforters that are not nearly as smooth as I'd make them, the crooked pillows, the stuffed animals thrown on top of it all. They do far from a perfect job. Gosh, how I wanted at first to control it all, run in their rooms once they finished to straighten and fix it all. But I didn’t, and I don't, because it's their work, it's age-appropriate, and it's something I no longer need to do. They'll become more skilled with time—and maybe with a refresher course taught by me—but for now, they are doing a beautiful job.

Yes, my boys are in control. I'm not. And that's OK.

Chill.

My story

Wednesday, March 12th, 2008

I don’t often tell my entire breast cancer story all at once. I usually share just bits and pieces of it. This afternoon, I talked about a few chapters with a fellow mommy while waiting in a doctor’s office. It turns out while I was being diagnosed with cancer three years ago, this woman found herself in a serious car accident. We talked about physical therapy, our long lists of doctors, our respective survivals. Our chat was short and sweet—and powerful.

This morning, I told my whole story. I talked about diagnosis, surgery, chemotherapy, hair loss, radiation, drug therapy, counseling, anti-depressants, hospitalizations, and doctor relationships. I talked about my hopes, my fears, my attitude, and my state of mind every step of the way. It took more then one hour of phone time to pour out every last detail for the researcher who will somehow use my information to help better the business of cancer. Our chat was long and involved—and powerful.

Talking about cancer is emotional. It forces me to revisit my travels with a life-threatening disease. It also helps me appreciate how far I’ve come, how well I’m surviving, how important it is to talk.

I told my researcher guy today that I’m willing to talk about anything related to cancer. Sure, I could be private about it all. I could keep my information inside. But I figure that doesn’t do anyone any good. Talking—and writing—about cancer is what helps. It helps me. I hope it helps others.

If you want to know something about cancer, especially breast cancer, ask me. My information is yours for the taking.

About my hair

Monday, November 5th, 2007

download.jpegJoey asked me about cancer last night before he went to sleep. I think it was an attempt at delaying bedtime—he often asks very serious questions at this inopportune time, knowing it will be hard for us to deny him an answer.

"Mommy, why did you cut off all your hair?" Joey asked just as I'd turned off his light and was making my dash out of the room.

"My medicine was making my hair fall out, so I cut it off before it all fell out," I told the boy who helped shave my head on February 5, 2005, just one month after his fourth birthday.

"Cancer made your hair fall out?" Joey asked.

"No, the medicine that killed my cancer made my hair fall out," I told him.

"So the medicine killed the cancer?" he continued.

"Yep, it did," I happily declared.

We went on to discuss my cancer at length. We talked about my operation, how I was sick, and about my scars.

"Can I see your scars?" asked little-brother Danny from a neighboring bed.

I showed Danny my scars, answered a few more of Joey's questions, and then slipped out of sight. My boys were sleeping peacefully moments later.

Perhaps Joey was buying himself some time by asking me about cancer last night. Or maybe he was really curious about my once-bald head, now covered by a mass of dark, wavy hair. Either way, it was my pleasure to talk with him about a topic that will forever be etched in our minds.

If Joey asks again to talk about cancer right at bedtime, I’ll honor his request—again. I won’t tell him that, though. It would be just the invitation he’s looking for in his pursuit of a later bedtime. Nope, this will be my little secret.

The long and short of it

Wednesday, November 22nd, 2006

Two years ago, I wanted another baby. Instead, I got breast cancer.

It was the day before Thanksgiving when the surgeon who performed my biopsy called me at home with the news. And for the entire Thanksgiving holiday — that seemed to last an eternity — I grappled with the fear and confusion and uncertainty that accompanies the discovery of a life-threatening illness.

It’s been a long road — complete with surgery, chemotherapy, hair loss, two hospitalizations, one blood transfusion, radiation, a year-long drug therapy, physical therapy, counseling, and more. But it also seems like a short trip. And today — two years after I learned the tiny, hard lump in my left breast was in fact cancer — it’s hard to believe so much time has passed. But it has. And the passing of time is marked by the scars under my armpits, a scar where my port once lived, hair that has grown so much it almost reaches my chin, and the growth of my two little boys who two years ago were 18 months and almost four years old. Now three and a half and almost six, it’s clear time has stormed right by.

Two boys are all I have. Cancer took the place of a third child. And while I still want another baby, I don’t know if I will have one. Because I am still grappling with the fear and confusion and uncertainty that accompanies life after cancer.

If I never have another child, I will be okay. Because I have my life. And I am thankful to simply be alive.

Happy

Wednesday, January 11th, 2006

Jacki @ chemoMy friend Nicole was with me when this picture was taken at the infusion center today. She said I look happy. Scary may be a better word, but it’s still an important photo for the story it tells.

I sit in a pink chair, usually with my feet propped up and a blanket on my lap, every three weeks on a Wednesday afternoon.

There are pink curtains between each pink chair in the infusion center but I’ve never seen these curtains closed. They remain open and allow for conversation, observation, for the building of community among patients.

I have a port on the right side of my chest, a port that I numb with a cream called Lidosense one hour before my infusion so I can’t feel the thick needle that pierces my skin.

The drug Herceptin drips into the clear tube, into my port, into my jugular vein, and into the rest of the bloodstream. After 90 minutes, saline drips into my body through this same method in order to clean the tube out of Herceptin and to push the remaining drops into my body. Then an injection of blood thinner follows to prevent clots at the site of my port.

The tube is taped to my shirt so I don’t get tangled up in it.

My red bracelet alerts nurses to my allergies to sulfa drugs, the antibiotic cefapime, tegaderm tape, and latex.

I wear shirts to chemo that zip or button so my port can be easily accessed.

My hair is dark and curly, only significant given the fact that it was once naturally blond and straight. My photo albums, yearbooks, framed pictures, driver’s license, credit card photo, campus IDs, and memories capture my previous look. This is new and different and still shocking to me.

My hair is growing. In the five months since my Herceptin therapy started, my hair has changed quite a bit. See photo in July 27 entry.

I clip my hair in the front to manage my new curls that have a mind of their own.

And Nicole is right. I look happy. I am happy. Despite the reason I sit in this pink chair every three weeks and despite the fact that I am fighting to live long enough to see my boys grow up, I am still happy.

Jacki Donaldson

Run for life

Wednesday, November 23rd, 2005

I Run for Life

(Melissa Etheridge)

It’s been years since they told her about it
The darkness her body possessed
And the scars are still there in the mirror
Everyday that she gets herself dressed
Though the pain is miles and miles behind her
And the fear is now a docile beast
If you ask her why she is still running
She’ll tell you it makes her complete

[Chorus:]
I run for hope
I run to feel
I run for the truth
For all that is real
I run for your mother your sister your wife
I run for you and me my friend I run for life

It’s a blur since they told me about it
How the darkness had taken its toll
And they cut into my skin and they cut into my body
But they will never get a piece of my soul
And now I’m still learning the lesson
To waken when I hear the call
And if you ask me why I am still running
I’ll tell you I run for us all

[Chorus]

And someday if they tell you about it
If the darkness knocks on your door
Remember her remember me
We will be running as we have before
Running for answers
Running for more

It’s been one year since they told me about it — one year ago today. The day before Thanksgiving. There have been sad moments and dark moments and moments that seemed to last a lifetime. But mostly, I look back and wonder where the year has gone. I credit my busy little boys who kept me distracted by their innocence and wonder and beauty (and their mischievous antics too). Without even knowing it, they gave me perspective. They still do. And they make me laugh. One night we sat in a restaurant — my three boys with their blond hair and me with my new, dark, very short hair. Someone glanced our way and Joey told me, “Mommy, they think you are the Daddy.” Priceless.

John. He has wiped my tears, listened to my worries, saved me on days I couldn’t find the strength to function, and offered endless advice and comfort and wisdom — all while balancing work and school (he graduates with his Masters on December 17th) and his generous household duties that even on a good day, I don’t handle well — he cooks, gives baths, reads books, and puts Joey and Danny to bed. He has had his own difficult road to travel on this cancer journey, but without the support system I have. The spouse of the cancer patient doesn’t get much attention — but John deserves it. He is a life saver.

My mom and sister. I am blessed simply to live in the same city as them. To see them every day. To share talks and walks. To shop and have lunch. To bask in the joy of our little miracles — Joey, Danny and Jordan. But to have them cushioning my fall for the past year is a true gift. They made life easier. They held me up. They dried my tears. They lost sleep for me. They loved me. They amaze me.

There are so many others — family and friends and acquaintances — who have helped me get through this year. I am thankful for every person who has warmed my heart, held my hand, shared in my sorrows, and lifted my spirits. I am thankful today and tomorrow and every day.

And as I give thanks this Thanksgiving, I begin my second year as a cancer survivor. And I continue to run for life.

Jacki Donaldson

Living in the moment

Saturday, November 12th, 2005

There are three blogs I read regularly — all three written by women with breast cancer. Adriene was diagnosed at about the same time as me, and is recovering from a mastectomy and reconstruction and chemotherapy. Her hair is short and dark now like mine and I follow her progress because it’s similar to mine and because she is a beautiful writer and photographer. Sandee, another woman and mom of three is undergoing chemotherapy regularly to manage breast cancer that has spread to various parts of her body over the span of several years. As chemo takes a toll on her daily life, she continues to fight and to inspire others through her words. And Dori, a mom of two who has been battling breast cancer and its spread, has just welcomed hospice into her home as she has chosen to stop the constant chemotherapy that is robbing her of a quality life. She is brave and courageous and her spirit is powerful and touching and uplifting.

Visiting with these women through their journals is motivating and encouraging. It allows me to find meaning in my own personal struggles and triumphs. It helps me harness the power that cancer has over me and the fear it instills in me. It helps me to live in the moment. To enjoy every moment. To be thankful for every moment.

Thank you Adriene, Sandee, & Dori.

Jacki Donaldson

The here & now

Wednesday, October 19th, 2005

my hairIt feels good to know that Herceptin is such a promising drug. Just today, after receiving my fifth dose of this treatment, I heard on ABC news that Herceptin is simply a wonder potion. In fact, the drug was taken out of clinical trials early so doctors could start putting it to use. The results were that good.

It also feels good to know that through other people’s eyes, my hair looks good. Today while at the Cancer Center, a physician assistant said it was “gorgeous.” Another woman admired my hair while we stood in the infusion center. A 36-year-old lymphoma patient whose hair was just beginning to grow back, she was speculating about how her hair would look once it was as long as mine. As long as mine. It does seem long compared to the days when all I saw was a shiny scalp. But when I consider that it’s been eight whole months since my hair started growing, my dark locks don’t seem that long at all. It doesn’t seem that gorgeous to me either. Some days I do like it. I like that it’s easy. I like that it looks stylish on a good day. I like the dark color sometimes too. But mostly, I am struggling to accept my new look. It’s strange to look in the mirror and recall the blond, straight hair I had for 34 years. I never would have cut my hair this short, or added so much dark curl, so to look at this extreme makeover is still startling. It’s minor really. I am alive and would give up all my hair forever if staying alive was guaranteed for a really long time. But in the here and now, it’s an adjustment. The compliments help, though. It’s flattering to know others like my hair. One day I may really like it too.

Despite the promise of Herceptin and my still overall feeling that I am going to survive my cancer battle, there are moments when I feel so unlike I once felt. Maybe it’s the hair that changes my whole appearance. Or the port that sticks out of my chest and today shows where a needle stuck me twice — once so painfully I wanted to scream. Maybe it’s the thought every time I wash myself in the shower that I might find another lump. Or that chemo is not preventing cancer cells from traveling through my body. Maybe it’s the mammogram I will receive in November — the first one since my breast cancer diagnosis. It could be anything — and it’s probably everything — that has changed my life, my perspective, my hopes and fears.

These chemo days bring everything to the forefront. They remind me of what I’m fighting for — my life. And that is daunting. But also a reality check. And now I can proceed with the next three weeks, thankful that I am right now a healthy and productive recipient of the life-saving Herceptin — with a head full of thick, dark, curly hair.

Jacki Donaldson

Boys with hats

Wednesday, August 31st, 2005
Herceptin. Herceptin. Herceptin. Herceptin.
Herceptin. Herceptin. Herceptin. Herceptin.

My hats were once so important to me. Now they are scattered all over the floor of my bedroom closet. Once my daily camouflage for what cancer had done to me, my hats are now toys. Joey and Danny play with them and toss them around and wear them — sometimes one at a time and sometimes they pile as many as they can on top of their little blond heads. The hats hold no real significance to them — they are just playthings and while Joey can recall that I wore them at one time, the emotion wrapped up in the pale blue sleep cap and the black Nike ballcap and the yellow bucket hat is lost on him. I consider this a blessing — that one day, he and Danny will likely have very little memory of this cancer adventure and that they may only remember what fun it was to wear so many hats.

Jacki Donaldson

Fading

Thursday, August 25th, 2005

I’m fading. It must be the Herceptin. Because for the months of June and July — my only treatment-free months so far — I felt so strong. That’s when I began my over-the-top exercising and felt more alive than ever before. But now I am so tired that I cannot exercise. On Tuesday, I tried to walk on my treadmill and stopped after one mile. I could not continue. My body was heavy and weak and fatigued. Yesterday I tried to walk outside in my neighborhood and after just a short time, I felt like I could hardly lift my legs. So I returned home — defeated.

I thought I was coming back to life. In many ways, I am. My blood looks good. I had it checked again today and my counts are all in a perfectly normal range. My hair continues to grow — and I actually had to get a haircut yesterday. My moods have been positive and steady. But my energy is low which makes my daily routine difficult. This is frustrating and disappointing.

I plan to take it easy. I will get plenty of sleep. I will take some time off from exercise. I will accept help. And I will give myself permission to be feel weak and tired. I have no other choice.

Jacki Donaldson

Normalizing

Wednesday, June 22nd, 2005

I am returning to my old self. My hair is growing back — and on most days, I actually like my dark, short, wavy hair. My skin is back to normal which means the effects of radiation are gone — no redness or irritation or pain. Just a regular armpit with a few scars. My menstrual cycle has returned — so I will not enter menopause at my young age and I now have back the option of getting pregnant. There are many issues to consider, and it’s recommended that I wait one year before making a decision, but the choice is mine and that is enough to make me happy for now.

My energy is normal again too. Joey and I were on my bed the other afternoon, watching TV. It was the first time in a long time that I let my body rest without fighting sleep. I was wide awake, not tired at all. There were times in the past months when fatigue surrounded me. One day I feel asleep in a living room chair and woke to Joey saying, “mommy, did you have a nice rest?” I am no longer desperate for sleep during the day. I like that.

Today I saw my surgeon again — seven months after he removed my lump and four lymph nodes — and he looked at my breast for a possible infection. He determined it is not infected. He said I am well. He told me I’m good for another 10,000 miles. I hope I exceed 10,000 miles.

Jacki Donaldson