my Breast Cancer blog

2004, age 34 — this is my story

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Strong Like a Lion

I was curled up in the fetal position on my kitchen floor in March 2005 when my mom arrived to take me to a genetic counseling appointment to find out whether my breast cancer was caused by a mutation somewhere in my body. I had just completed my fourth dose of chemotherapy, and the cumulative effect of 2 months worth of toxic drugs was wiping out my 34-year-old immune system. I could barely walk or talk, and I am not really sure how my mom shuffled me that day into the car, into the oncology clinic for a blood draw, and into the office of my genetic counselor, who tried to interview me about family history while I struggled to not pass out and while the lab folks examined my blood counts.

My white blood cell count was low. It should have fallen somewhere between 4,000 and 10,000, but it was 700, and that earned me a mask and a swift trip to the hospital, where I was admitted and treated for 5 days. My mom sat with me during the mornings and afternoons, then she relieved my husband from kid care so he could hang with me at night. She did the whole rotation again a few weeks later, when my system crashed for a second and final time.

My mom did a whole lot more than hospital duty during my battle with cancer. She raced to my house the day my doctor called me at home to say, “Unfortunately, cancer cells were found.” She held my hand before a surgeon removed the lump I had found while washing in the shower, was by my side the moment I opened my eyes post-surgery, and nursed me back from a violent skin reaction to the tape that bandaged my parts. My mom joined me for every chemotherapy infusion, watched my little boys for 35 days so I could report for radiation treatments, told me I was beautiful when I hated my bald head and bloated body, and while I know she must have quietly cried about my predicament, she was nothing but a positive force during my journey with a deadly disease I have now survived for 8 years.

My mom, whose house is just a few miles away from mine (lucky me!), is a survivor herself. As a young, divorced, working woman, she raised two daughters on a shoestring budget and without child support. Times were tough, but my sister and I have nothing but cheerful childhood memories, and I am pretty sure our mom’s grit is what has helped us conquer challenging life circumstances. The girl has crushed a major liver disease (she had 95% of her liver removed 12 years ago), she has overcome nasty sports-related injuries, and she has rebounded from two hospitalizations for serious medical scares. Still, my 65-year-old mom is as strong as ever. She is yoga rock star, she walks miles and miles every day, and she can crank out push-ups like a pro. My mom is also a superstar grandmother to her four grandkids, and 2 years ago, my then-fourth-grader wrote an essay titled, “My Nana Rocks.”

She is “strong like a lion,” Joey wrote. “Once, I jogged down to her house, and she was relaxing outside in her favorite Gator chair. When I stepped onto her driveway, I challenged her to do 20 push-ups. She said, ‘Bring it on!’ She got down in her push-up position, and I said, ‘Ready, Set, Go!’ She smiled at me and did 10 push-ups in 5 seconds. I was astonished. Then, before I knew it, she was done. She did 20 push-ups in 10 seconds. I gave her a high-five, and I saw her biceps pumping, so that told me she was really fit and strong.”

See, she is good at push-ups!

And so much more.

Women Who Fight Cancer Are Rock Stars

Me, hospitalized in March 2005 with chemo-induced low blood counts.

In the spirit of International Women’s Day, I honor those who courageously rise and bravely fight cancer — women who are diagnosed with a deadly disease and are put through the rigors of grueling, poisonous, and far-reaching treatment plans that sometimes do not work. Some days, I am bummed I am one of these women, but for most of my moments, I am proud to be part of a group of badass warriors, whose strength inspires me stay strong, focused, and hell-bent on surviving this stupid disease.

Just Hope Geocache Has Been Found

My Just Hope geocache is now officially listed on the Geocaching.com website, and, already, it’s been found. This morning, I received notification that a geocacher located my treasure. This person signed the online logbook, “FTF. Thanks for keeping us all aware of this tragic disease.” (FTF means first to find.)

If you are the person who located Just Hope, congrats on the find. And welcome to My Breast Cancer Blog!

Just Hope Hidden in the Woods

Just Hope is hidden here.

I know it appears that I live in the freezing wilderness of some northern state. I do not. I live in Florida. I just happen to get cold very easily, so my coat, scarf, and gloves come out when the temperature drops to what I deem chilly. Today, the 50s were chilly, so I bundled up on our trek into the woods, so my boys and their cousins could hide my just-assembled geocache.

Joey and cousin Tori hide the Just Hope geocache.

My family is new to geocaching — a free real-world outdoor treasure hunt that allows players to locate hidden containers, called geocaches, using a smartphone or GPS. We’ve been out maybe four times, and already, we love it. That’s why I decided to fashion my own box of goodies, which, of course, is breast-cancer themed. The contents of my Just Hope geocache include cancerspot.org stickers, a logbook and pencils, some trinkets for sharing, and a note that reads as follows:

Congratulations—we “hoped” you’d find this cache, and you did! Way to go.

OK, here’s the deal on this one: The mom in our family was diagnosed with breast cancer at the age of 34 back in 2004. She is still surviving (yay!), and she has been blogging about it ever since the start of her horrible yet wonderful journey (yes, there have been some good moments along they way). We hope you’ll take a sticker and visit her blog—leave a comment if you do to let her know you stopped by—and our wish is that you will find there some speck of hope or inspiration.

Until we hear from you, be well—and happy continued geocaching!

Oh, please sign our logbook, too, and if you leave a trinket, feel free to take one!

Just Hope has been submitted to Geocaching.com, and when it is approved as a worthy geocache, it will be featured on an online map so that treasure hunters can track it down. If you happen to be one of those hunters, we “just hope” you find it.

Here’s the Thing

The thing about all these breast cancer women I know is that many of us have never met in person. We have connected mostly through mutual friends, blogs, and Facebook, and together, we share our stories, raise awareness, spread hope, swap wigs, and find mentors for each other. We share a common bond that makes personal contact unnecessary, and when someone in our community passes away, the sadness runs deep, and the reminder that none of us is immune to death really stings. Tomorrow, I am confident, will be a better day.

Give the Gift of Comfort

I know you’re probably consumed with holiday gift buying right now — I know my head is still whirling from all the madness surrounding Black Friday (no, I didn’t shop on that day) and Cyber Monday (I did order a pair of discounted running shoes) — but if you can take just a teeny tiny moment (3.5 minutes, actually) to watch this video, I think you’ll discover the true meaning of giving.

Giving Comfort welcomes donations for comfort kits that are given to cancer patients in need (donate now!). You can also purchase kits for our own friends and family members (purchase now!). I can’t tell you how many times people have asked me, “What do I get my friend who has just been diagnosed with cancer?” I usually point to books, candles, and comfy socks (these were my favorite goodies). I’m adding comfort kits to my list of suggestions. Starting now.

Raw October — Day 29 (This Never Gets Old) (VIDEO)

Raw Octoberraising breast cancer awareness — one fact, figure, feeling, and photograph at a time.

the power of songThis never gets old, and it never ceases to make me cry. This man sang to me during one of my chemo treatments — he sang to every patient in the infusion room on this January 2005 day.

You know how I mentioned in yesterday’s post how my mom and Jordan sat with me during each session? This is one of those times.

Click on the image to start the video. See if it makes you cry.

Raw October — Day 18 (It Could Be Worse)

Raw Octoberraising breast cancer awareness — one fact, figure, feeling, and photograph at a time.

I wrote the following post in August 2008. At the time, I had survived cancer for a little longer than 3 years.

Joey’s new mantra: It could be worse. He uses it to excuse his questionable behavior — like when he was playing at the dinner table recently, waving his arms all around like we tell him not to do, and he knocked over his cup of milk. “It could be worse,” he announced after locking eyes with my frustrated gaze. Not exactly my preferred response — “I’m sorry, mom, I know I shouldn’t have been horsing around, and it won’t happen again” would have been my pick—but hey, the kid is 7. How much can I expect, really? Besides, he’s right. It could be worse.

Sometimes Joey is wise beyond his years. The kid always gives me something to think about. Once Joey told his dad about the grandfather he never knew (he died before Joey was even born): “Don’t worry that your dad can’t see you anymore. He’s in the sky now and the clouds are his eyes.” He told me 3 years ago that cancer is “medicine and love.” Pretty good way to sum it up — I got lots of medicine and lots of love. I’m not sure in hindsight that I’d describe it much differently.

It could be worse. I keep thinking about this and realizing Joey is right on with this perspective.

Back to cancer.

I found a lump — early. It could have been worse. It could have spread. It could have been larger.

I had a lumpectomy. It could have been worse. I could have had a mastectomy.

I had chemo, and it made me sick. It could have been worse. My cancer could have been so bad chemo wouldn’t have worked.

I was hospitalized twice during treatment. It could have been worse. I could have been hospitalized three, four, five times.

I had radiation, and my skin burned slightly. It could have been worse. My skin could have been left sizzled and scorched. I could have been in pain. I wasn’t.

I had more drug therapy. It could have been worse. I could have been a non-candidate for the treatment (Herceptin), which could be the very thing saving my life.

I went to counseling for more than 1 year and took an anti-depressant, too. It could have been worse. I could have denied these forms of help and could be battling depression and anxiety at this very moment. I’m not. I’m happy.

I could go on and on, but I think you get my drift. I hope you get how this applies to your life, too. Try this next time you’re down in the dumps — tell yourself: It could be worse. See if it makes a difference. It does for me. And Joey, too.

Raw October — Day 8 (Magic of Music)

Raw October: raising breast cancer awareness — one fact, figure, feeling, and photograph at a time.

This boy was 3 years old when I was diagnosed. He shaved my head; told me my bald head, cap, hospital mask, and IV pole made me look like an alien; and revealed just recently that he has no real memory of breast cancer. This boy is now 11 years old, and I am so very thankful that I am alive to witness the magic of his music.

Raw October — Day 7 (There Is Always Hope)

Raw Octoberraising breast cancer awareness — one fact, figure, feeling, and photograph at a time.

 . . . there are two ways of looking at cancer statistics: Is it a 95 percent chance they will die, or a 5 percent chance they will survive? We like to look at that 5 percent—because 5 percent is not zero. So I think there is always hope.

Dr. Shane Dormady, medical oncologist at the El Camino Hospital Cancer Center in Mountain View, California, said that in his “Talking About Cancer Treatment in 2012” interview.

5 percent is not zero.

I love that.

23 Best Breast Cancer Blogs of 2012

Thank you for this honor, healthline.com:

Cancer Blog is full of thoughtful comments about life with a dark passenger: breast cancer. Jacki has recovered from the physical blight of her cancer, but it is clear in her powerful posts that once it has made an entrance, life is never the same. She has a singular take on the aftermath of this illness, and her photographs and pithy reflections put everything in perspective.

My Breast Cancer Blog speaks of one woman’s daily life, but after a few minutes of browsing, readers will discover that Jacki’s experiences are those of survivors everywhere. Thanks for putting words to them!

$3 to Save the Boobies, Score a Button

Teather Sanders wants to help save second base, but she needs a little help. I could tell you all about her hopes, dreams, and entrepreneurial spirit, but I’ll let her do that. Take a peek at the cute and clever video featured below, then read the story behind her desire to make a difference. (In a nutshell, a donation of $3 helps Teather reach a goal and gets you a boobie button of your choice.)

Cancer Is Relevant

"Relevancy" — Jason Arnold — http://redbyrd.tumblr.com/

Says the artist about his iPad sketch, “Relevancy” is about how words are taken for granted until something urgent happens.

For me, cancer was just a word — until it crashed into my world. Now, the word has relevance in everything I do.

What word have you taken for granted that now has relevance?

Eight Birthdays After Cancer

I remember prom like it was yesterday (I think my date probably remembers, too, considering the display of my way-too-big boobs in that white strapless dress), and now, somehow, today is birthday No. 42. Gosh, the time has just disappeared. So have the big boobs, which were reduced in 1996. Funny things, those boobs. They tried to kill me. That was back in 2004. Now, it’s 2012. Eight birthdays since cancer. I love that.

Thankful

Thankful for Thanksgiving-like weather (yea, the 80s went away!).

A mom who *always* makes the turkey + everything else (my only job is eating!).

Kids who seem to still like me (Danny held my hand at dinner last night).

A husband whose compliments are oh-so-kind (he thinks I hold our family together; I think I’ve got him fooled!).

A sister who would do anything for me (wonder if she would run that half marathon in my place).

Nieces who let me braid their hair (not because they like it, but because I do!).

And so much more.

Like friends and family and love and support and food and home and health and …

You’re getting bored, I know.

Happy Thanksgiving.

The First Two Months

This is pretty much what happens in the two months following a breast cancer diagnosis:

  • Mammogram.
  • Ultrasound.
  • Needle-guided biopsy.
  • Echo heart scan.
  • Full-body PET scan.
  • MRI.
  • Muga heart scan.
  • BRCA genetic testing.
  • Numerous blood tests.
  • Portacath inserted in my chest.
  • 3 rounds of chemo.
  • 2 bone marrow generating Neulasta injections.
  • Hair loss.
  • Insomnia.
  • Exhaustion.
  • Nausea/vomiting.
  • Bloating/weight gain.
  • Migraines.
  • Appointments with cardiologists, oncologists, oncology surgeons for my future mastectomy, plastic surgeons for future reconstruction.
  • Too many prescriptions to name.
  • Menopause … fun times.

That could so be my list (except for the PET scan and the mastectomy and plastic surgeon appointments).

But, it’s not.

It belongs to Angela over at It Is What It Is. (That’s her in the pic.)

Angela, 31 years old and mom to a daughter and twin boys, is in the midst of treatment right now, and if you are, too, or you are about to be, or you just want to follow someone amazing who is tackling life despite its hurdles, you really should go visit this spunky gal (who also happens to be giving away a Bondi Band headband).

I think you won’t regret getting to know Angela.

I know I don’t.