Archive for the ‘Radiation’ Category

Grateful, plus the Curse of Cancer Treatment

Friday, June 18th, 2010
Photo: LaserGuided, Flickr

Photo: LaserGuided, Flickr

I’m a grateful girl. Really, I am. In fact, I can’t even put into clear and concise words how very thankful I am for the breast cancer treatments that have kept me alive for five years. If I even try to put my thoughts into words, I promise you tears will stream down my cheeks. I’m about to turn 40 on Sunday, and WOW, I wasn’t sure I’d make it to that age, what with birthday No. 34 followed by such fear and uncertainty.

Just so we’re clear: I am so. very. happy. to be alive and writing this. I’m simply amazed by what medicine has done for me.

I’m amazed by what medicine is doing to me, too. Five years later, and it finds a way to make me a little bit miserable. Right now, actually, a lot miserable.

I’m covered in red, itchy, drive-me-crazy bumps on my shoulders, chest, back, and areas around my armpits. It happens every year, and it’s called something like UV Recall. Years after treatment, the sun reacts with my skin and the poisonous drugs, and the remnants of radiation, and sunscreen (I’m not sure about what order this all follows or if it’s one or several of these factors), and my skin pays the ultimate price. You’d think I’d have figured it out after all this time, but I haven’t, because sometimes (like last year at the beach), nothing bad happens. I find a sunscreen for sensitive skin, lather it from head to toe, and I’m just fine, maybe even a tiny bit tan, which is a treat for a fair-skinned gal like me. Other times (like this year at the beach), I find a sunscreen for sensitive skin, and, well, the bumps begin — just a few here and there, then some more, until they’ve climbed all over my body, making me more and more wacky by the day.

“Are you not so happy?” Danny asked me today.

Gosh, how I’m trying to be happy, plodding along through these summer days like everything is fine. But it’s not. I’m itchy and scratchy, showers hurt my skin, clothing bothers it, too, the Florida heat (it’s been like 100 degrees here lately) agitates every inch of me, and well, no, Danny, I am not so happy. (Add head cold to the equation, and you might imagine how poorly I really feel.)

The end is near, I know. The bumps will dry up and slowly disappear, and I will do what I always do — slink into the shadows at the pool, sit under an umbrella at the ocean, hide under the bimini of a boat. It’s no fun to be the mom always seeking shade and avoiding fun in the sun. I guess that’s why, year after year, I keep trying to jump waves, and find sea shells along the seashore, and splash in the pool — because I want to think cancer treatment won’t keep plaguing me. But it does, and it probably always will. And that’s just how it is. The very thing allowing me the pleasure of birthdays is torturing me, too.

OK, I’m getting a grip here. This skin ordeal is short-lived. It will consume about a week of my life (couple more days to go), and then I’ll move on. Maybe I’ll even be free and clear by Sunday, when I blow out 40 candles and celebrate another year of life.

See, I’m grateful. Really, I am.

Note: If you caught this post just as it published, you got a glimpse of what I look like. But the photo I put up at first has been taken down. It’s just too icky, and while it’s definitely educational, I decided to shield you from the yuck. And me, too. Looking at the mess in the mirror is enough. Online is just too much. And so I give you: flowers, pretty flowers.

Deviant Jeans Stitches Together Support

Wednesday, June 2nd, 2010
deviant-jeans-200jd060210

deviantjeans.com

I’d love to take this great story about Deviant Jeans and put it into my own creative words, but I’m afraid I just wouldn’t do it justice.

So, I’m going to do what no writer really ever wants to do — copy and paste.

It’s the only way, though, for you to feel the emotion that powers this company.

Yes, I’m cheating a little. But right after I cheat, you’ll find something I did work on myself — an interview with Deviant Jean’s Kristin Dudley.

OK, here goes:

Deviant Jeans began in a hospital room at the Dana Farber Cancer Institute when a genetic counselor broke the news that Kristin Kantner’s mother, Doris, tested positive for a gene no one else had. After a moment of silence, all her family in the room began laughing at the notion that within their perfect mother was a little deviance — a “deviant gene.”

Kristin’s mom, a positive, independent, and fashion conscious woman, recognized during her cancer treatments that she had to compromise her style in order to be comfortable and compliant to doctor’s orders. As side effects of her treatments persisted, she found buttons, zippers and the basics of adorning regular clothing a challenge. Kristin watched her mother struggle to match practicality, comfort and fashion and decided to take action…

Kristin collaborated with her entrepreneurial neighbor and friend, Jane Hoffer, and by a twist of fate, the two met Kristin Dudley, a Philadelphia based fashion designer focused specifically on designing for women’s wellness. After a year of planning, designing, and caring, Deviant Jeans™ apparel is now “MADE WITH LOVE IN PHILADELPHIA,” and available to women nationwide.

And now for the fancy interview:

Tell us exactly how some of your products make life easier for cancer patients.

A major consideration in all of our designs is for our apparel to transition from every day to treatment days, without the need to disrobe when receiving chemotherapy or undergoing testing. The Deviant Heart Camisole is especially helpful for women undergoing breast cancer treatments. It is designed with a comfortable shelf bra, and features a contoured neckline to allow for easy port access. The straps are wide, which alleviates the shoulder of the digging and indentations that typically occur from bra and spaghetti straps.

How do you determine what women need?

I have been designing products and apparel for women’s wellness for the past 4 years. Throughout this time, women have approached me with requests for apparel designed to suit their changing bodies and lifestyles. I began receiving faxes with hand drawings of what they were seeking! I have met with many medical professionals as well, who also influenced my design. I address the construction issues, and then I add style!

You’re not just about selling stuff — you’re charitable, too. Tell us more.

When initiating Deviant Jeans, there was one thing that was clear between my partners and myself: we are here to make a difference, not a fortune. We decided to give the customers the unique opportunity to choose their preferred charity they wanted a portion of their purchase to benefit. We offer a list of different charities to choose from at our online checkout, and accept requests from those who wish to support their local support group or other charity.

Name one great clothing tip for women making their way through treatment.

Light layers are essential! Hospitals tend to be very cold inside, yet at the same time, you never know when a hot flash may pop up. Begin with your favorite camisole and layer with a loose fitting button down shirt or tunic. Bring an open front sweater or wrap to wear on top of that. Have fun with your middle layer — seek brilliant colors and wild prints! Think of your clothing as your armor, and fight your battle boldly!

Pretty cool, stuff, isn’t it? Well, it’s going to get even cooler, because very soon, Kristin and I are going to be sponsoring a fun contest. Called “Message of Strength,” it involves calling up your artistic talents, and it could win you a free EMPOWERWRAP. More to come, so, keep checking back.

What Helped Me Move Forward

Thursday, May 20th, 2010

My friend Lexi over at Jeans Cream asked me to write a guest post for her blog and I did. It published today. Here it is: http://bit.ly/9BOMdJ

Surviving Cancer — and Its Side Effects

Monday, March 22nd, 2010
Oncology: a branch of medicine that deals with tumors (cancer).

Oncology: a branch of medicine that deals with tumors (cancer).

I went for another cancer check-up this morning, the first since my 5-year cancerversary. Mostly, everything is A-OK — so well, in fact, that I now get to see my favorite doctor once a year instead of every six months.

But with the happy hooplah of surviving cancer for a good amount of time comes the fact that I need to start thinking about surviving the side effects of cancer for a good amount of time. There are certain issues that come with life after cancer. For me, it’s mostly heart stuff.

Three things that might affect my heart: the chemo drug Adriamycin (I had four doses), radiation (it was delivered right on top of my heart) and Herceptin (the wonder drug I received for one year). All three of these life-savers can compromise heart function over time. “You should be so lucky to get heart disease in 20 years,” someone once told me, “because it means you will have survived cancer for 20 years.” Yea, that doesn’t make me feel so relieved. In fact, it’s apparently cause for a consultation.

Someone is going to contact me soon to discuss survivorship issues, says my doc, and this person will notify my primary physician of potential concerns, too, so he can monitor me appropriately. I’m not overly concerned about this, really. I’m basically just thankful to be alive, with a heart that today is very strong. For now, that’s just enough.

Jeans Cream Soothes Radiation Skin: Giveaway

Wednesday, February 3rd, 2010
jeanscream.com

jeanscream.com

My skin did pretty well during radiation. For weeks, nothing at all happened, and then at the very end of my 30+ days of treatment, a mild burn showed up. No blistering, though, or peeling, or anything else that made me horribly uncomfortable.

You (or those you know who are getting zapped) might not fare so well. Lucky you (actually two of you!), because right here, right now, you can enter to win a free tube of Jeans Cream. It’s a natural and revolutionary product that soothes and protects skin with high-potency vitamins and botanical extracts. And it’s not made by just anyone — creator and founder Jean is a two-time breast cancer survivor, and so she knows first-hand that this stuff really works.

Jeans Cream is good for more than just radiation-affected skin, it can effectively treat eczema, sunburn, diabetes-related skin issues, contact dermatitis, wound care, and you can even use it for daily moisturizing.

What are you waiting for? Leave a comment, and you just might score this valuable gift!

  • Leave a comment and share why you need this cream!
  • Leave your comment no later than 5PM ET on Wednesday, February 10, 2010.
  • You may enter only once.
  • Open to legal residents of the 50 United States, and the District of Columbia, who are 18 and older.
  • One winner will be selected in a random drawing.
  • Two winners will receive one 7-ounce tube each of Jeans Cream (valued at $45 per tube).
  • Winners will be notified by email, so make sure to check next week to find out if you’ve won!

Flashback: December 24, 2004

Thursday, December 24th, 2009
Side effect of radiation: limited range of motion in my left arm

Side effect of cancer treatment: limited range of motion in my left arm

I do have my breast. And I have a fairly good prognosis. My lump was removed and measured 1.1 cm, which is small. My lymph nodes were negative for cancer, although four were removed for biopsy purposes. My margins were clear, and there was no apparent spread of cancer. My cancer is considered stage 1. And that is good. I have two incisions, one in my armpit where lymph nodes were taken and one underneath it, on the side of my breast. They are both about 3.5 inches long. Besides a bad skin reaction to the tape I was bandaged with, everything went well. There are minor inconveniences right now. As my incisions heal and my skin tightens, it’s harder to lift my arm. So I have exercises I must do each day. Because of the missing lymph nodes, I may have trouble with swelling in my arm so I have to watch for that. I have not been able to shave my armpit since my surgery on December 3.

And now I await the next step in this battle. I will begin receiving chemotherapy in mid-January. This will last for three months. I will go for treatment four times, once every three weeks and will have a combination of drugs sent through my body via IV. The purpose of chemo is to kill rapidly growing cells, and cancer cells are rapidly growing. Unfortunately, all rapidly growing cells are killed, like hair cells and bone marrow cells. The chemo should kill any cancer cells that floated away from my breast, if any did. I don’t know how I will react to this process, as each person responds differently. At the very least, I hear I will be tired at times during each three-week time frame. I may also be tired from the radiation. This will begin three weeks after chemo ends.
NOTE: It didn’t happen exactly like that: Instead of receiving chemo every three weeks, I had it every two weeks — it’s called dose-dense chemo, and if the patient can tolerate it, it’s thought to be more effective. Did I tolerate it? Well, I survived, but I was hospitalized twice because it was so hard on my body.

I will receive radiation every day for 6 weeks. The purpose of radiation is to zap the actual area where the cancer was found to prevent it from recurring. Many women take a drug after chemo and radiation to prevent recurrences. The drug (usually tamoxifen) is taken for five years. My body will not respond to this type of drug due to negative estrogen receptors (if they are positive, the drug can be taken) so chemo and radiation will be my only two real treatments.
NOTE: Radiation went just fine. It was a breeze compared to chemo, and my skin didn’t burn too badly. The biggest hassle was the drive to and from the appointments. And while it’s not such a big deal, my left arm has limited range of motion due to the combo of surgery, scar tissue and radiation. See photo above — my right arm touches the ground, but my left arm won’t.

For now, I am trying to keep life simple. Joey and Danny help me do that. Joey knows I am frequently going to the doctor for a “boo-boo” I had in my “booby” and he has been very attentive. One day after a doctor appointment, he said, “Mommy, you need to go home and rest. I’ll bring you a banana.” He is almost four years old. Danny, at 19 months, does not seem to know anything is going on and it’s my hope that he never has any recollection of this path our lives are taking. I will never forget it, though, and that’s OK. I will take this experience and make it matter. A friend sent me a breast cancer bracelet inscribed with trust your journey. I do. I trust that I will be fine in the end. And I trust that I was given this fight so I can help others. That is why I have written this. I hope everyone who reads about my journey is affected in some way. Perhaps it will increase the amount of women who do self-exams. Maybe it will arm others with information to help loved ones who are affected by this common disease (about 1 in 8 women will get breast cancer at some time in their lives). Maybe it will spread hope. At the very least, writing helps me. And for now, that is enough.
NOTE: Writing still helps, five years later.

Every Scar Tells a Story

Saturday, August 22nd, 2009

Every scar tells a story. Here’s Angi’s:

angi-port-scar-240jd1082209

Angi Navarro

I got my first port in April 2005.  I was told I should probably get a port prior to chemo (for breast cancer), so I found a general surgeon who could perform the surgery ASAP.  I only had to do four rounds of chemo, but I didn’t want to take any chances with ruining my veins.  As it is, I only have one arm which can be used since I had lymph nodes removed on the other side.  After I completed my chemotherapy, I went ahead and set a date to have it removed, since it was pretty much useless as far as using it instead of an IV for surgery and such. My general surgeon didn’t find it necessary to take me back into the OR to remove my port. Instead she did it right in her office, claiming it wouldn’t hurt.  At the time I had it removed, only three months had passed. So when she took a scalpel and sliced through the original incision, she was cutting through a healing wound — and it hurt. The site never healed correctly after that. Scar tissue formed on top of scar tissue. But still, it wasn’t all bad.

In 2008, when my cancer returned, it was thought that I would have to endure chemo again. So when the breast surgeon went in to remove bits of my chest wall, she placed a port so I wouldn’t need another surgical procedure. It wound up unnecessary, as I underwent radiation instead. The port sat unused until April of this year. I was undergoing breast reconstruction surgery, so my plastic surgeon removed it. Not long after, as it was healing, I noticed some areas that hurt when I touched it. Upon closer inspection, I found that I had very small bits of nylon surgical sutures poking out of the scar. I couldn’t pull them out or cut them any closer to the skin. These stitches sticking out, along with scar tissue on top of scar tissue, made for a pretty uncomfortable area. When I found out that I would be having revisions made to one of my breast implants, I asked my surgeon if he could make it a little less sightly. He agreed to revise the scar for me as part of my procedure on Monday. I’m looking forward to being able to wear my seat belt and bra straps comfortably again.

There’s a lot more to Angi’s cancer story than this. You can read all about it on Cancer is NOT a Death Sentence.

If you’ve got a story you’d like to share, please leave a comment, and I’ll be in touch.

Been through a lot worse

Saturday, December 6th, 2008

This morning, I had my eyes dilated during an eye exam. I hate that. So much so that last year, I refused to let my very nice doctor place those evil drops in my nearly-blind eyes. You need them, she told me, and I told her I’d come back in a few months. I never did. One year later, today, I complied. I permitted the dilation, and I’ve been suffering all day.

Those drops, given after the also-hated glaucoma drops that numb my eyelids, make my vision blurry and prevent me from seeing anything up close. They make light much brighter than it should be, and they give me a killer headache. Have I used the word hate yet?

“Gosh, your pupils are so dilated,” my doctor told me as I was paying for this torture. “I know, I hate it,” I told her. Her wise response: “You’ve been through a lot worse.”

She’s right. I have been through a lot worse. A growing tumor or yucky eye drops? I’ll take the eye drops. Chemotherapy or blurry vision? Blurry is better. Radiation or a day-long headache? OK, so the headache isn’t so bad.

Geez, I’m such a whiner. The funny thing is, I really only whine about the little things, like dilated eyes. Somehow, I rise to the occasion for the big stuff. Cancer scared me. But I didn’t whine about it. Same with childbirth. Big, painful stuff. No whining at all. What’s wrong with me? Nothing, actually. My eyes checked out just fine. And I don’t have cancer anymore. I have absolutely nothing to whine about. Well, until next year’s eye exam.

Dianne

Friday, October 10th, 2008

A friend of a friend called me the other day to thank me for loaning her a book. The book: Love, Medicine and Miracles: Lessons Learned about Self-Healing from a Surgeon’s Experience with Exceptional Patients
Love, Medicine, and Miracles
by Dr. Bernie Siegel. It’s a book about exceptional patients—you know, the ones who do battle with diseases like cancer not only with surgery, chemotherapy, and radiation, but with attitude. Not just any attitude. I’m talking positive, hopeful, this-won’t-get-me-down-or-kill-me attitude. I thought it was an appropriate book for this young woman, a wife and stay-at-home mom of two little boys, who finds herself fighting stage 3 lung cancer. But what I realized when I talked to Dianne on the phone is this: The girl doesn’t need this book. She’s already exceptional.

Dianne is a non-smoker, an active gal who had no risk factors for such a horrible disease. She got it anyway, though, and by golly, her mission is to get rid of it. Knee-deep in both chemotherapy and radiation, her spirit is amazing. She’s strong, tough, and willing to do what it takes to crush cancer. Crush it is exactly what I think she’ll do. She’s an exceptional patient, after all. I think she’ll realize this as she flips through the pages of her new book and realizes she’s the very person Dr. Siegel discusses. Yes, Dianne, is going to do just fine. It’s the cancer that won’t fare so well.

Healthy boobs & other cancer facts

Friday, September 5th, 2008

ss_101261622.jpgSee that left breast? Once home to a tumor the size of a frozen green pea and marked in preparation for radiation here in this photo (taken April 2005), my boob—and its buddy on the right side—are apparently healthy and well. My radiation oncologist—and her very cute and very nice med student from Tennessee—told me so today. Yay for that.

I always learn something when I go for cancer follow-ups, which amazes me really. Leaving my appointments every six months, I never fail to think: How did I not know that? I mean, I've been in the cancer system for nearly four years and I still don't have a full understanding of breast cancer, its crazy way of operating, its implications for all the years I have ahead of me. Here, a few tidbits I picked up today.

Fact:
Breast cancer that doesn't spread to the lymph nodes can still spread to other organs through the blood. I knew this. What I didn't know is that my cancer (it didn't spread to nodes) is often as treatable as someone's whose cancer has spread to lymph nodes. In fact, 25% of women with node positive cancer will survive without any systemic therapy. Surgery and radiation alone do the trick. This is very hopeful for these women. This is very scary for me—it means just because my nodes were clean, I'm not necessarily safe.

Fact: Chemotherapy is most effective at killing a minimal spread of cancer. Say my cancer did spread through my bloodstream. Chances are it was minimal since I caught my disease early, and my harsh chemo treatments probably worked. That may be why I am A-OK right this very minute.

Fact: I only had four lymph nodes removed during my lumpectomy—all for biopsy purposes. I thought this puts me at low risk for developing lymphedema (swelling in the arm and hand area). But maybe not. Apparently, it can still happen and my risk may not be as low as I'd imagined.

Fact: It would be a very good idea for my sister to have a baseline MRI. She already gets a mammogram and ultrasound every six months due to her increased breast cancer risk, but she's been told she doesn't need an MRI. My doctor believes she should have one—just one, for comparison sake should she need another in the future.

Clearly, I'm still a student of breast cancer. Haven't graduated and received my degree yet. Don't think I ever will.

It could be worse

Saturday, August 30th, 2008

jt-aug-2008-034.JPGJoey's new mantra: It could be worse. He uses it to excuse his questionable behavior—like when he was playing at the dinner table recently, waving his arms all around like we tell him not to do, and he knocked over his cup of milk. "It could be worse," he announced after locking eyes with my frustrated gaze. Not exactly my preferred response—"I'm sorry, mom, I know I shouldn't have been horsing around and it won't happen again" would have been my pick—but hey, the kid is seven. How much can I expect, really? Besides, he's right. It could be worse.

Sometimes Joey is wise beyond his years. The kid always gives me something to think about. Once Joey told his dad about the grandfather he never knew (he died before Joey was even born): "Don't worry that your dad can't see you anymore. He's in the sky now and the clouds are his eyes." He told me three years ago that cancer is "medicine and love." Pretty good way to sum it up—I got lots of medicine and lots of love. I'm not sure in hindsight that I'd describe it much differently.

It could be worse. I keep thinking about this and realizing Joey is right on with this perspective.

Back to cancer.

I found a lump—early. It could have been worse. It could have spread. It could have been larger.

I had a lumpectomy. It could have been worse. I could have had a mastectomy.

I had chemo, and it made me sick. It could have been worse. My cancer could have been so bad chemo wouldn't have worked.

I was hospitalized twice during treatment. It could have been worse. I could have been hospitalized three, four, five times.

I had radiation, and my skin burned slightly. It could have been worse. My skin could have been left sizzled and scorched. I could have been in pain. I wasn't.

I had more drug therapy. It could have been worse. I could have been a non-candidate for the treatment (Herceptin), which could be the very thing saving my life.

I went to counseling for more than one year and took an anti-depressant too. It could have been worse. I could have denied these forms of help and could be battling depression and anxiety at this very moment. I'm not. I'm happy.

I could go on and on, but I think you get my drift. I hope you get how this applies to your life too. Try this next time you’re down in the dumps: Tell yourself: It could be worse. See if it makes a difference. It does for me.

And Joey too.

100%

Wednesday, August 20th, 2008

There is no 100% when it comes to cancer. There just isn’t. No doctor will ever tell you 100%: you won’t get cancer, or 100%: cancer won’t come back, or 100%: surgery and chemotherapy and radiation will save a life. This is why actress Christina Applegate’s recent comment about her breast cancer battle bothers me.

“I’m clear,” Applegate, 36, told Good Morning America the other day. “Absolutely 100 percent clear and clean. They got everything out so I’m definitely not going to die from breast cancer.”

Now, I’m all for hope. Gosh, I I’d love to say I’m definitely not going to die from breast cancer. But I just can’t say that with complete conviction. No one can. Applegate’s own mom has had breast cancer—twice. And the actress herself has tested positive for the genetic mutation BRCA-1, a big risk factor for breast cancer diagnosis and recurrence—and for ovarian cancer too. There is simply no lifetime guarantee on breast cancer survival.

I know it’s only been a few weeks since Applegate had her double mastectomy and perhaps the girl is just elated that she caught her cancer early and feels in her gut it will not return. I understand—my instinct tells me mine won’t come back either. But to broadcast to the masses, most of who may know nothing about breast cancer and its implications, that beating the disease is as simple as removing breasts and moving on, seems a little simplistic. When explaining why she opted for a prophylactic mastectomy when her cancer was early stage and had not spread, Applegate said: “I didn’t want to go back to the doctors every four months for testing and squishing and everything. I just wanted to kind of be rid of this whole thing for me.”

OK, so she won’t need mammograms anymore—there’s nothing to squish and squash anymore—but breast tissue remains. And cancer cells sometimes get away—my friend Amy had both breasts removed and then discovered cancer in her lungs and brain. She died 15 months after her initial diagnosis.

My bottom line is this: There is no 100% when it comes to cancer. I wish there was. But there just isn’t.

Photo courtesy of tanakawho on flickr

See my boobs

Sunday, July 13th, 2008

dsc_0195.JPGSee these boobs? Protruding outward in all their glory. Pushed up in a fancy bra, positioned under a tight pink shirt, pointing right at you as you read this post. These are the very boobs that threatened to take my life almost four years ago. Well, the cancer inside the boob—just the left one, to be exact—is what made the threat. The boob was simply the packaging for the tumor that presented itself underneath my fingertips on that horrible November day, in that hot, steamy shower where I thought I would merely wash my body, not find a cancerous mass.

A mass I did find—a mass a surgeon removed, an oncologist poisoned, another oncologist radiated, and the first oncologist targeted with the glorious drug Herceptin. Thanks to these two men and one woman, the mass I found is gone. So are all traces of cancer that could have started pouring through my system but for now, have not.

Yes, the mass is gone. My boobs, they are not. And this is such great news that I just have to share—my joy, my relief, my pride over having two very healthy and hearty boobs that will be featured in published form in September when they hit the newsstands inside Family Circle magazine.

My story

Wednesday, March 12th, 2008

I don’t often tell my entire breast cancer story all at once. I usually share just bits and pieces of it. This afternoon, I talked about a few chapters with a fellow mommy while waiting in a doctor’s office. It turns out while I was being diagnosed with cancer three years ago, this woman found herself in a serious car accident. We talked about physical therapy, our long lists of doctors, our respective survivals. Our chat was short and sweet—and powerful.

This morning, I told my whole story. I talked about diagnosis, surgery, chemotherapy, hair loss, radiation, drug therapy, counseling, anti-depressants, hospitalizations, and doctor relationships. I talked about my hopes, my fears, my attitude, and my state of mind every step of the way. It took more then one hour of phone time to pour out every last detail for the researcher who will somehow use my information to help better the business of cancer. Our chat was long and involved—and powerful.

Talking about cancer is emotional. It forces me to revisit my travels with a life-threatening disease. It also helps me appreciate how far I’ve come, how well I’m surviving, how important it is to talk.

I told my researcher guy today that I’m willing to talk about anything related to cancer. Sure, I could be private about it all. I could keep my information inside. But I figure that doesn’t do anyone any good. Talking—and writing—about cancer is what helps. It helps me. I hope it helps others.

If you want to know something about cancer, especially breast cancer, ask me. My information is yours for the taking.

The big deal

Thursday, February 28th, 2008

Tomorrow is the day I report for a visit with my radiation oncologist, the woman who designed and delivered my radiation therapy, those 30 some daily sessions that blasted the site of my tumor in order to prevent a local recurrence of breast cancer. So far, its doing its job. My cancer has not returned.

I return for radiation follow-ups every six months. I get weighed, my arms get measured to check for swelling caused by lymphedema, my breasts get manipulated by several sets of hands, and I get a chance to report any new symptoms, to ask any pressing questions. I don’t have either at this time.

This appointment is not really a big deal anymore. Except that when I really think about it, it actually is. There’s a lot at stake as I present myself before the medical students, residents, fellows, and doctors who will study me. There’s a chance they may find something suspicious, after all. And if they do, the could-it-be-cancer? wheels will start in motion. The prospect of that stings a bit.

My gut tells me that I am fine, that my cancer is long gone, that I’ll walk away from my appointment as confident and happy as I’ll be when I arrive for it. My gut has served me well throughout my cancer years. If it’s on target as usual, then I will be well. And I won’t have to worry about this high-stakes visit for another six months. Well, not exactly.

I also see my medical oncologist—also known as my chemo doctor—every six months. The same basic scenario occurs—substitute blood work for arm measurements—on a different time schedule and in a different office. Also not a huge deal anymore.

Except that when I really think about it, it is.

Goodbye cancer, hello fitness

Wednesday, September 12th, 2007

My days writing for The Cancer Blog have come to an end. The site is being retired, effective September 14, and so my thoughts will no longer be consumed with the disease that came barreling at me three years ago. Blogging about cancer for a year and four months was a great gig, and I truly believe I’ve somehow contributed to the world by informing readers about all sorts of cancer-related tidbits, both informational and personal. Still, I’m happy to move on.

I’m still blogging for pay, this time for a blog called That’s Fit. It’s about fitness, health, nutrition, and overall well-being. It’s right up my alley. Since May, I’ve been overhauling my own approach to diet and exercise (no sweets, no soda, low sugar, low fat, no red meat, and lots of fruits, veggies, and exercise) and so this career path suits me well. Plus, the content at That’s Fit is positive, light, happy, and has very little to do with cancer. It’s a refreshing change.

Come visit me when you can. That link above will take you directly to my posts. And keep stopping back here at my personal site. I intend to update it from time to time. Promise.

The long and short of it

Wednesday, November 22nd, 2006

Two years ago, I wanted another baby. Instead, I got breast cancer.

It was the day before Thanksgiving when the surgeon who performed my biopsy called me at home with the news. And for the entire Thanksgiving holiday — that seemed to last an eternity — I grappled with the fear and confusion and uncertainty that accompanies the discovery of a life-threatening illness.

It’s been a long road — complete with surgery, chemotherapy, hair loss, two hospitalizations, one blood transfusion, radiation, a year-long drug therapy, physical therapy, counseling, and more. But it also seems like a short trip. And today — two years after I learned the tiny, hard lump in my left breast was in fact cancer — it’s hard to believe so much time has passed. But it has. And the passing of time is marked by the scars under my armpits, a scar where my port once lived, hair that has grown so much it almost reaches my chin, and the growth of my two little boys who two years ago were 18 months and almost four years old. Now three and a half and almost six, it’s clear time has stormed right by.

Two boys are all I have. Cancer took the place of a third child. And while I still want another baby, I don’t know if I will have one. Because I am still grappling with the fear and confusion and uncertainty that accompanies life after cancer.

If I never have another child, I will be okay. Because I have my life. And I am thankful to simply be alive.

Normalizing

Wednesday, June 22nd, 2005

I am returning to my old self. My hair is growing back — and on most days, I actually like my dark, short, wavy hair. My skin is back to normal which means the effects of radiation are gone — no redness or irritation or pain. Just a regular armpit with a few scars. My menstrual cycle has returned — so I will not enter menopause at my young age and I now have back the option of getting pregnant. There are many issues to consider, and it’s recommended that I wait one year before making a decision, but the choice is mine and that is enough to make me happy for now.

My energy is normal again too. Joey and I were on my bed the other afternoon, watching TV. It was the first time in a long time that I let my body rest without fighting sleep. I was wide awake, not tired at all. There were times in the past months when fatigue surrounded me. One day I feel asleep in a living room chair and woke to Joey saying, “mommy, did you have a nice rest?” I am no longer desperate for sleep during the day. I like that.

Today I saw my surgeon again — seven months after he removed my lump and four lymph nodes — and he looked at my breast for a possible infection. He determined it is not infected. He said I am well. He told me I’m good for another 10,000 miles. I hope I exceed 10,000 miles.

Jacki Donaldson

Peace of mind

Monday, May 23rd, 2005

Today I learned that my CA 125 test was negative. That means that there is no indication that I have ovarian cancer. But because I have breast cancer and the two are cancers are linked, I will continue to be screened for both. I also learned that Friday will be my last day of radiation. It was scheduled to end on Tuesday, May 31st but my radiation oncologist thought I could end on Friday and not come back after the Memorial Day holiday. She will adjust my treatment doses so that I get what I need this week. Four more days.

My real peace of mind came today from a discussion I had with my radiation oncologist. She is a well-respected doctor and has been highly recommended by many. So I have been interested in her opinion about my chemotherapy treatment but have been afraid to ask her. Since I’ve had two different opinions (one to continue with chemo and one to stop), I was scared she would say I should continue. I do not want to continue and do not think my body could even tolerate the treatment. But I still second-guess myself and have had some dark moments contemplating whether or not I cut myself short on treatment. This oncologist said I did not. She agreed that I should not have received Taxol, the drug I refused. Like others, she said the benefit would be so small and the toxicity could be so great. She said she would not have done it herself. And she said if I do have a recurrence of cancer, it will not be because I didn’t receive Taxol. This brings me great peace.

I hope to gain more peace of mind with my therapy — which begins tomorrow.

Jacki Donaldson

Countdown

Thursday, May 19th, 2005

I have seven more radiation treatments — the end is near. My remaining treatments are “boosts” and are quicker than my previous treatments. I do not have to use the breathing device and this time, a machine moves very close to the tumor site and zaps the area for about 30 seconds. Then I’m done. For this entire radiation process, it has taken me longer to drive to and from the hospital than to receive the treatment. The treatments have been very short — and I rarely have to wait. It’s a smooth system. With the boosts, it’s even quicker. Today I dropped my boys with my mom at 9:45 AM. After radiation and a quick stop at the grocery store, I was back for them at 11:00 AM. And what followed was the best part of the day — we visited the preschool that Joey will attend beginning June 6th (he got to meet his teacher, play on the playground, and see his classroom). Then we went strawberry picking. On the ride home, Joey said, “Don’t you love that we got to pick strawberries?” I told him, “yes, I do” and realized that soon my life will be back to normal — free of treatment and fatigue and full of family fun and one day — a head full of hair.

Jacki Donaldson