my Breast Cancer blog

2004, age 34 — this is my story

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Lucky Laura wins a prize

It’s an emotional time for reader Laura. She’s just completed chemotherapy for breast cancer and will soon head for a mastectomy and reconstruction. A perfect time for a shiny, new necklace, don’t you think?

Lucky Laura. She won the hand-crafted breast cancer awareness necklace that my blogger friend Christine made and offered for my recent giveaway.

“I look so forward to wearing it,” Laura tells me. “I feel honored!”

Ditto. I feel honored to know these women, both of whom have their very own blogs. Visit Christine at Color Me Pink. And stop and see Laura here.

Been through a lot worse

This morning, I had my eyes dilated during an eye exam. I hate that. So much so that last year, I refused to let my very nice doctor place those evil drops in my nearly-blind eyes. You need them, she told me, and I told her I’d come back in a few months. I never did. One year later, today, I complied. I permitted the dilation, and I’ve been suffering all day.

Those drops, given after the also-hated glaucoma drops that numb my eyelids, make my vision blurry and prevent me from seeing anything up close. They make light much brighter than it should be, and they give me a killer headache. Have I used the word hate yet?

“Gosh, your pupils are so dilated,” my doctor told me as I was paying for this torture. “I know, I hate it,” I told her. Her wise response: “You’ve been through a lot worse.”

She’s right. I have been through a lot worse. A growing tumor or yucky eye drops? I’ll take the eye drops. Chemotherapy or blurry vision? Blurry is better. Radiation or a day-long headache? OK, so the headache isn’t so bad.

Geez, I’m such a whiner. The funny thing is, I really only whine about the little things, like dilated eyes. Somehow, I rise to the occasion for the big stuff. Cancer scared me. But I didn’t whine about it. Same with childbirth. Big, painful stuff. No whining at all. What’s wrong with me? Nothing, actually. My eyes checked out just fine. And I don’t have cancer anymore. I have absolutely nothing to whine about. Well, until next year’s eye exam.

My friend, with cancer again

My friend, who was diagnosed with breast cancer just after me, who had surgery just like me, and chemotherapy just like me, and radiation just like me, and Herceptin just like me, has just learned that her cancer has returned. She is understandably angry and worried and convinced she will never see her young children graduate from high school. My gut tells me otherwise. I believe she’ll crush cancer once and for all with her double mastectomy and whatever treatment follows. She’s tough. And she knows it. She just needs to remember it. And then she’ll be fine.

All my love and happy wishes are with you, my survivor friend.

For my mom

I am writing in honor of my mom, my most loyal reader, who can’t read what I’m writing today because she’s in the hospital.

It was unexpected, the pain in her belly on Thursday night. And it was unfair, how the ER staff made her wait four and a half hours before examining her. And it was lucky, that she had surgery when she did because had one more hour passed, the results could have been tragic.

My mom is recovering now, in a hospital room that is void of all things personal and warm, with a tube in her nose that makes talking and swallowing difficult, with an incision running up and down her midsection. All for a health scare no one saw coming, which has happily been fixed by the steady hands of a surgeon who deserves lots of praise for a job well done.

Today, I am writing in honor of my mom, who will hopefully be reading these very words before too long.

I hate tumors

There’s nothing fair about the way it happened, the way Amy died just 15 months after a breast cancer diagnosis seemingly similar to mine. She heard the same string of chilling words—you have cancer—as I did, just months after a doctor hurled them at me, over the phone, a day before Thanksgiving. Both in our early 30s with husbands and small children, Amy and I felt like two peas in a pod, situated in what we believed were almost identical positions. We were both young, both with early stage breast cancer. We both knew our cancers, while caught early, were considered aggressive because of our age—young women tend to have aggressive forms of the disease—but we also knew we had a high likelihood of survival, about 93% for at least five years.

Amy and I had common hopes, fears, and worries, and on several occasions we cried tears we were sure flowed from the same well. We also shared an instant urge to reach others with our breast cancer stories. Amy welcomed local newspaper reporters into her world and allowed them to capture through words and photographs her most intimate cancer moments. I began authoring my own breast cancer blog and then ventured into the world of freelance writing. We both wanted to make our experiences matter. And judging by the flood of reaction we received from our combined efforts, it’s clear we did.

Amy and I shared victories—we both managed to escape the threat of lymph node involvement—and we shared cards and e-mails. Thank you for holding my hand through this journey—it would have been pretty lonely without you, Amy wrote in one e-mail.

Amy and I also shared care packages, family photos, even hats. If misery loves company, then Amy and I were in love. And in celebration of our love, we basked in the glory of our most important similarity—our cancers had not spread. This was key to our survival. Or so we thought.

A mutual friend—her high school buddy and my college roommate—matched Amy and me. Ericha was one of a few close friends who after my diagnosis offered to hop on a plane and come to my rescue in Florida. I never accepted her offer—I was sure I could handle cancer all on my own—and so she stayed in Ohio where Amy, also an Ohio girl, welcomed her assistance. It worked out well this way.

Ericha helped Amy as she recovered from surgery, reconstruction, chemotherapy, and countless physical and emotional twists. She watched Amy’s kids—ages four and one at the time—and cleaned her house and drove her to appointments and selflessly assumed some of the burden drowning this young wife and mother who continued working as a nurse while managing a life with cancer.

“I quit my job,” Amy told me just after she announced her cancer had returned. She said she should have quit after her first diagnosis. She should have taken better care of herself. She should have played with her children, spent time with her husband, given up the chore of work. She would do it right this time, she said. She would crush cancer. She was sure if it.

I wrote and published a post about Amy on The Cancer Blog just after she told me how cancer had shown up in her brain and lungs, just five months after her chemotherapy for breast cancer ended. I wrote about my shattered hope, my fear this would happen to me, my complete and total sadness. And then Amy left a comment on my post. She wrote:

Jacki, I am not giving up. I will beat this again. Don’t you give up yet. I have Luke and Ella and they alone are worth fighting for. Just everyone send me your prayers and positive vibes. Quoting the cancer crusade couple, “Setbacks are a chance to pause and review the lesson of life.”

Amy, the one staring down death—doctors said she had two to 12 months to live—was comforting me. Amy, with her spunk and spirit, convinced me she would annihilate this evil disease. I believed her.

Amy lived for only five weeks after she wrote these words. Ericha called me with the news of her death just as I was leaving my house one Saturday morning to run in a race. I stopped in my tracks when Ericha told me—Amy passed yesterday—and I felt nothing but shock and sorrow for the duration of the run I struggled to finish. I finished for Amy, though. If she could fight cancer—twice—then I could surely pound out a few miles in honor of a friend whose face I never did see.

Amy and I talked about meeting at the beach with our families one day after we’d survived cancer for a few years. We dreamed of going on the Oprah show and proudly announcing our survivorship. We talked about a lot in our short 15-month friendship. What we didn’t talk about was that our situations really were very different. Perhaps we weren’t aware of it at the time. Perhaps we subconsciously chose to find common ground in the midst of our harrowing journeys, to ignore the fact that we were not traveling the same path at all.

Amy had a family history of breast cancer. I did not. Just after Amy completed her chemotherapy, her mother was diagnosed with the same disease that now has affected four generations in her family. Additionally, Amy’s tumor was slightly larger than mine, she received a different chemotherapy protocol than I received, she was not eligible for a year-long drug treatment I accepted to keep cancer at bay and because she had chosen the radical route of removing both of her breasts—I had a lumpectomy—Amy was not a top candidate for the radiation therapy that zapped me five days per week for seven weeks. She wondered if she should have demanded this treatment. She wondered if it would have made a difference in her survival.

The final and perhaps most significant difference in our diseases is that while Amy’s cancer, like mine, had not spread to her lymph nodes, it had found a way to penetrate her bloodstream and was spreading in a secret, silent, and deadly fashion. My oncologist, who dried my tears when I sobbed about the unfairness of Amy’s death, said some young women have a very aggressive disease right away. Amy was one of these women. I, apparently, am not.

There’s nothing fair about the way it happened, how Amy died just 15 months after a breast cancer diagnosis I have now survived for almost four years, how Amy died so quickly and I didn’t, how there is no cure for this mysterious disease that strikes far too many women and some men too.

Amy’s husband sent me an e-mail just after she died. He wrote:

You were a great inspiration to Amy. Your quote ” Fight the Good Fight” was front and center on our fridge. Please don’t let this news get you down, Amy would want your chin up, would want you to keep fighting. Thanks for all your support.

My chin is up. I am fighting. And Amy—thank you for your support.

“C” is not for cookie

Cookie Monster may say “C” is for cookie—although I hear a new, more health-conscious Monster may be cutting back on the sweet treats—but blogger Stephanie says “C” is for cancer.

Stephanie is 35 years old and has breast cancer. She has good news too—her recent lumpectomy went well, and she has reason to believe her cancer did not spread to her lymph nodes. She’s hoping her disease will be named Stage I and that her survival rate will number in the 90% range. Her pathology report is coming soon.

Go see my new friend when you can. Click here. You’ll like her way with words. And you just might learn something too.

Not knowing

I have a friend. She had a lump. Then she had surgery. And now it’s gone. She doesn’t know whether the lump is benign or malignant. She’ll find out on Monday. I feel like I’m in her shoes. Except it’s four years ago. And the lump is mine. And I’m waiting to hear if it’s cancer.

The waiting is the hardest part. The finding out it’s cancer is pretty hard too. But the waiting is killer. Knowing means planning and plotting and strategizing. Or what I hope for my friend: Celebrating that it’s not in fact cancer. Not knowing means uncertainty, anxiety, an unsettled heart and head.

Three more days. Then she’ll know. And everything will be alright, no matter what she knows. Because, she’ll know.

It could be worse

jt-aug-2008-034.JPGJoey's new mantra: It could be worse. He uses it to excuse his questionable behavior—like when he was playing at the dinner table recently, waving his arms all around like we tell him not to do, and he knocked over his cup of milk. "It could be worse," he announced after locking eyes with my frustrated gaze. Not exactly my preferred response—"I'm sorry, mom, I know I shouldn't have been horsing around and it won't happen again" would have been my pick—but hey, the kid is seven. How much can I expect, really? Besides, he's right. It could be worse.

Sometimes Joey is wise beyond his years. The kid always gives me something to think about. Once Joey told his dad about the grandfather he never knew (he died before Joey was even born): "Don't worry that your dad can't see you anymore. He's in the sky now and the clouds are his eyes." He told me three years ago that cancer is "medicine and love." Pretty good way to sum it up—I got lots of medicine and lots of love. I'm not sure in hindsight that I'd describe it much differently.

It could be worse. I keep thinking about this and realizing Joey is right on with this perspective.

Back to cancer.

I found a lump—early. It could have been worse. It could have spread. It could have been larger.

I had a lumpectomy. It could have been worse. I could have had a mastectomy.

I had chemo, and it made me sick. It could have been worse. My cancer could have been so bad chemo wouldn't have worked.

I was hospitalized twice during treatment. It could have been worse. I could have been hospitalized three, four, five times.

I had radiation, and my skin burned slightly. It could have been worse. My skin could have been left sizzled and scorched. I could have been in pain. I wasn't.

I had more drug therapy. It could have been worse. I could have been a non-candidate for the treatment (Herceptin), which could be the very thing saving my life.

I went to counseling for more than one year and took an anti-depressant too. It could have been worse. I could have denied these forms of help and could be battling depression and anxiety at this very moment. I'm not. I'm happy.

I could go on and on, but I think you get my drift. I hope you get how this applies to your life too. Try this next time you’re down in the dumps: Tell yourself: It could be worse. See if it makes a difference. It does for me.

And Joey too.

100%

There is no 100% when it comes to cancer. There just isn’t. No doctor will ever tell you 100%: you won’t get cancer, or 100%: cancer won’t come back, or 100%: surgery and chemotherapy and radiation will save a life. This is why actress Christina Applegate’s recent comment about her breast cancer battle bothers me.

“I’m clear,” Applegate, 36, told Good Morning America the other day. “Absolutely 100 percent clear and clean. They got everything out so I’m definitely not going to die from breast cancer.”

Now, I’m all for hope. Gosh, I I’d love to say I’m definitely not going to die from breast cancer. But I just can’t say that with complete conviction. No one can. Applegate’s own mom has had breast cancer—twice. And the actress herself has tested positive for the genetic mutation BRCA-1, a big risk factor for breast cancer diagnosis and recurrence—and for ovarian cancer too. There is simply no lifetime guarantee on breast cancer survival.

I know it’s only been a few weeks since Applegate had her double mastectomy and perhaps the girl is just elated that she caught her cancer early and feels in her gut it will not return. I understand—my instinct tells me mine won’t come back either. But to broadcast to the masses, most of who may know nothing about breast cancer and its implications, that beating the disease is as simple as removing breasts and moving on, seems a little simplistic. When explaining why she opted for a prophylactic mastectomy when her cancer was early stage and had not spread, Applegate said: “I didn’t want to go back to the doctors every four months for testing and squishing and everything. I just wanted to kind of be rid of this whole thing for me.”

OK, so she won’t need mammograms anymore—there’s nothing to squish and squash anymore—but breast tissue remains. And cancer cells sometimes get away—my friend Amy had both breasts removed and then discovered cancer in her lungs and brain. She died 15 months after her initial diagnosis.

My bottom line is this: There is no 100% when it comes to cancer. I wish there was. But there just isn’t.

Photo courtesy of tanakawho on flickr

Two more

savethetatas.pngIn a day—yesterday—I learned of two more women diagnosed with breast cancer. First was former Married with Children and current Samantha Who? actress Christina Applegate. A young woman, just 36 years old, and already cancer has descended upon her, like it did me when I was 34. The second, a friend of my mom's friend, who happens to be surviving breast cancer herself—it's been one year since she had a mastectomy following a diagnosis of Paget's disease. One in eight women are diagnosed with breast cancer nowadays. I guess it's no surprise then that I'm notified of cases like these so often.

Both women mentioned above are apparently doing fine. Applegate's spokesperson says she caught her cancer early and is expected to make a full recovery. My mom's friend's friend just had surgery and will begin treatment soon. I wish them both the best as they embark on their journeys.

Photo courtesy of savethetatas.com.

See my boobs

dsc_0195.JPGSee these boobs? Protruding outward in all their glory. Pushed up in a fancy bra, positioned under a tight pink shirt, pointing right at you as you read this post. These are the very boobs that threatened to take my life almost four years ago. Well, the cancer inside the boob—just the left one, to be exact—is what made the threat. The boob was simply the packaging for the tumor that presented itself underneath my fingertips on that horrible November day, in that hot, steamy shower where I thought I would merely wash my body, not find a cancerous mass.

A mass I did find—a mass a surgeon removed, an oncologist poisoned, another oncologist radiated, and the first oncologist targeted with the glorious drug Herceptin. Thanks to these two men and one woman, the mass I found is gone. So are all traces of cancer that could have started pouring through my system but for now, have not.

Yes, the mass is gone. My boobs, they are not. And this is such great news that I just have to share—my joy, my relief, my pride over having two very healthy and hearty boobs that will be featured in published form in September when they hit the newsstands inside Family Circle magazine.

Six weeks

img_1446.JPGSix weeks, my plastic surgeon told me. Six weeks to fully recover from my tummy tuck surgery.

Sure enough.

It's been six weeks—seven now, actually—and I am back to doing everything I want to do. Some tasks came earlier than others, like driving—did that after nine days—and walking upright, and sleeping in my bed instead of a recliner, and lifting increasingly heavier objects. But my compression garment didn't come off until the six-week mark and the biggie—exercise—was off limits for the entire six weeks. But now, I'm back at it.

This morning, I walked up and down the seven steep hills in my neighborhood with my niece Tori in her jog stroller. Yesterday, I did a pretty strenuous treadmill workout. A week ago, I took a long bike ride with my mom and Joey. I've also lifted a few weights, held myself in the plank position several times, and have been trying to tone my legs and butt—six weeks of sitting have not been kind to them. My tummy, though: I love it.

Here is my tummy, in all its glory, prettier than it's ever been. Finally, I am comfortable in my skin—well, my lack of skin.

Forecast: sunny

img_1249.JPGimg_1247.JPGIt's been 16 days since my tummy was tucked.

And I'm back.

Back to standing upright, back to driving my kids to and from school, back to walking for exercise, back to my bed—so long, recliner.

Still no running, still no functioning without a compression garment wrapped around my middle, still a bit of swelling—which means still no blue jeans—but mostly, I'm back. It feels good.

John feels pretty good too, despite a small skin cancer surgery he had yesterday to remove a squamous cell carcinoma from his left hand. The procedure—called Mohs—went well. The doctor got the cancer by taking just one chunk of skin. Armed with a few stitches, John is on his way to a speedy recovery.

In honor of Skin Cancer Awareness Month—it's this month, May—take a peek at this site, home of The Skin Cancer Foundation. While there, find out how to best prevent, detect, and treat this all-too-common disease. By too common, I mean this: About one million people in the U.S. are diagnosed with basal cell carcinoma each year. About 250,000 get the squamous cell variety. And nearly 60,000 are stricken with melanoma, the deadliest form of skin cancer.

Before you're done investigating this disease, pay a visit to my friend Miss Melanoma. She'll surely convince you that skin cancer is nothing to mess with. Her nine toes are a constant reminder.

Blue jean blues

If you find yourself in the market for a tummy tuck—translation: You’ve gained lots of weight, had great success at losing it, but find shockingly a good chunk of skin dripping from your mid-section—and you actually go through with this major abdominal procedure, like I just did, I have one solid piece of advice for you: Do not try on your jeans eight days after surgery, like I just did.

Why?

Because not only will you find that you are not several sizes smaller—a possible eventual result of the tummy tuck—you’ll discover that your pre-surgical jeans will have somehow shrunk in size during the short amount of time it took for you to go under the knife and then come out of your pain-medicated fog.

Yep. The jeans will be too tight. And if you’re like me, you’ll convince yourself that your hips and butt have grown in epic proportions in the mere week you’ve spent recovering from that belly-perfecting operation.

OK, so my body parts are likely the same size as they’ve been for some time now. I’m just swollen. Not above my incision that runs underneath my new belly button, from hip to hip—this looks amazingly flat and tight and well, perfect. But below the taped-up cut my doctor carved into my stomach is a bulging, newly-pregnant looking clump of skin that is pushing out so far my jeans can’t rise above. It’s solid. It’s jam-packed. It’s driving me crazy.

I’m an impatient patient. I don’t like that I must wait weeks—months even—to see my final result. I’m so impatient I told my doctor on post-op day number six that it seemed the problem he removed had moved down lower. “No,” he told me. In time, it will be flat. Flatter than it’s ever been, he said. And then he issued me this strict warning: Do not shop for new clothes for three months. Two days after he handed me this advice, I’m tugging at my favorite Lucky jeans, trying to inch them up over my swollen mound. Am I crazy? Perhaps. But I can also learn from my mistakes.

My jeans are back in the closet, and my stretchy athletic shorts are back in place—where they’ll stay until my body heals and rebounds from its trauma and I attempt once again to hoist those denim blues up over all my body parts.

In three months.

Sitting

joey2.jpg"Sometimes having surgery is a good thing," seven-year-old Joey told me yesterday.

"Oh Yeah," I said. "Why?"

"Because you get to sit around and do nothing," he answered.

Wait. It gets better.

Joey went on to tell me: "You are always driving us around and doing things for us and now you get to sit and rest."

I love that guy.

Sitting is exactly what I've been doing ever since my tummy was tucked on Wednesday. I've been sitting in my living room recliner, sitting at the kitchen table, sitting in my mom's car traveling to and from post-op appointments, sitting in my back yard watching Joey and Danny splish and splash on their new Slip-n-Slide. I can't yet recline in a flat position, and I can't stand for extended periods of time. Sitting. That's what I've been doing. That, and taking pain medication. And emptying drains. And sleeping. And writing. And doing quite well, I think.

I'm not in horrible pain. I'm tight, and hunched over, and I feel a bit of pressure and pulling. But I'm not miserable. I predict, in fact, that before too long, I'll be back to my routine—the one that involves driving my boys around and doing things for them. For that, I can't wait.

Tummy transformed

tummyafter.jpgMy tummy is tucked. It’s flat, tight, and oh how I love my new belly button. Amazing. Simply amazing how that loose and saggy skin that troubled me for so long is now gone. Completely gone.

My surgery yesterday went well. My excess belly skin was removed, my baby-stretched muscle was repaired, and my umbilical hernia was fixed. One day later, I’m walking in hunched-over style, spending a lot of time in my living room recliner, and staying on top of my pain medication so misery doesn’t set in. I have two drains dangling from my belly, one pain pump strapped to my side, and a compression garment holding me tight. I feel some pressure and some minor throbbing, but nothing serious is plaguing me at the moment. Could it get worse? Probably not, says my doctor who will remove my pain pump and one drain on Saturday. The second drain will come out on Tuesday. Then I’ll be on my own—well, maybe I’ll keep my pain meds on board just in case—to recover and heal.

tummybefore1.jpgJust after I had my second baby, I asked my OB/GYN about a tummy tuck. He wasn’t a fan of the procedure and suggested I give it five years. Five years to allow my body to bounce back from two whopper pregnancies and to achieve a healthy weight and fitness routine. The five-year mark would also put both of my boys in school so I’d have time to rebound from this serious surgery without tending to their every need all day long. Good advice.

Today, both of my boys are in school. Danny turns five in May.

Finishing Touch

I never thought I’d elect to have surgery after going under the knife for the removal of a cancerous tumor that somehow lodged itself in the tissue of my left breast. Surgery is bad enough when it’s medically necessary. It seems silly then to choose to submit to general anesthesia and all that follows, like the slicing and sewing of skin and muscle, the pain, the recovery, and the potential for complications. Yet I’m considering it. I’m more than considering it, actually. I have a surgery date—April 23—and one week from today, I am scheduled for a pre-op appointment that will seal the deal. I have 7 days then to determine whether I’ll keep or cancel this appointment. I’m leaning toward keeping it.

Seven years ago, I had a baby boy. He weighed 10 pounds, 9 ounces. Almost five years ago, I had another baby boy. He weighed 10 pounds, 2 ounces. I gained 50 pounds and then 42 pounds with these monster guys, and all these years later, I’m left with loose, sagging stomach skin and a separated muscle underneath. I’ve tried all I can to get rid of these battle scars. During the past year, I really kicked my efforts into high gear. Motivated by the urge to prevent a cancer recurrence, I overhauled my diet—no soda, no sweets, no red meat, plus low fats, calories, and sugars—and began exercising more vigorously than ever. My results have been grand. My heart is strong, my energy is high, and my weight is down 15 pounds. Still, my tummy skin remains. It’s worse really. The less fat I have, the more the skin hangs. I want it to go away.

No amount of diet or exercise will fix my problem. But a tummy tuck will. So that’s what I’m pursuing. Some think I’m crazy, selfish even—a few years ago, while in the throes of cancer treatment, I would have, too—and some think I deserve it. Here’s what I think: I want to feel comfortable in my skin and in my clothes. Right now, I don’t.

If all goes according to plan, a surgeon—a guy who happens to specialize in breast cancer reconstruction using tummy-tuck skin—will remove a football-shaped chuck of skin from my abdomen. He will repair and reshape my muscle, reposition my belly button, fix an umbilical hernia—yep, I’ve got one of those, too—and then sew me back up. This outpatient surgery will cost me a few hours in recovery, 10-12 days of difficulty at home, 6 weeks of healing, and a few thousand dollars—no insurance help for this cosmetic procedure. The more I think about it—the good, the bad, the unknown—the more I want this tummy tuck. Even after breast cancer. Maybe because of breast cancer. I want to feel the best I can possibly feel—on the inside and out. I’ve done all I can do on my own. I consider this my finishing touch.

Clarification

My doctor says those disturbing words used in my echocardiogram report to describe the valves of my heart—dilated, thickened, insufficient—are “normal variants.” They are medically insignificant. Just as I’d imagined they must be. I’m thankful for the clarification, though. And my doctor is glad I poked around for more information.

“I would have been disappointed if you didn’t ask about them,” he said.

I would have been too.

Context matters

Quick. Get me a cardiologist. My right ventricle is mildly dilated. My aortic valve is mildly thickened. And my tricuspid valve is mildly insufficient.

I’m sure this is all somehow medically insignificant. Otherwise my oncologist would not be telling me I’m good to go should I opt for a tummy tuck surgery (more about this tummy business later). If my heart couldn’t take it, surely he’d be warning me. The guy did save me from breast cancer, after all. He clearly knows what he’s talking about.

This morning, my good doctor e-mailed me a copy of my latest echocardiogram—that’s how I was able to pour over the details of this July 2006 report. I’d asked him for it as I continue to search my soul for guidance regarding my tummy, and he swiftly sent it my way. I wanted to know how my strong my ticker is—both my year-long therapy with the breast cancer drug Herceptin and my four doses of the chemotherapy drug Adriamycin put me at risk for compromised heart function and so my heart was monitored for a bit. I wanted to know today, based on my last screening, how I’d fare under general anesthesia and how my heart would tolerate a two-hour surgery—should I go through with it.

I’m good to go, says my doc. Still, I’ve asked him for a bit of clarification. What does this troublesome wording—dilated, thickened, insufficient—mean, I want to know.

This is what I want you to know: Context matters.

More and more, we patients rely on information via the Internet or in this case of mine, e-mail. These methods of research are void of human contact and medical opinion and therefore lack context. Who knows, maybe a thickened aortic valve is a good thing. Maybe it’s not necessarily good but not bad either. I don’t know. Until someone clears things up for me, I will remain uncertain. That’s why I’m following up with my doctor. You should too.

Whenever you are concerned about your health, do your research, ask around, dig up all you can. Then talk to a medical professional who can iron out all the kinks in what you’ve gathered. Balance is always a good bet. Really, it is.

My story

I don’t often tell my entire breast cancer story all at once. I usually share just bits and pieces of it. This afternoon, I talked about a few chapters with a fellow mommy while waiting in a doctor’s office. It turns out while I was being diagnosed with cancer three years ago, this woman found herself in a serious car accident. We talked about physical therapy, our long lists of doctors, our respective survivals. Our chat was short and sweet—and powerful.

This morning, I told my whole story. I talked about diagnosis, surgery, chemotherapy, hair loss, radiation, drug therapy, counseling, anti-depressants, hospitalizations, and doctor relationships. I talked about my hopes, my fears, my attitude, and my state of mind every step of the way. It took more then one hour of phone time to pour out every last detail for the researcher who will somehow use my information to help better the business of cancer. Our chat was long and involved—and powerful.

Talking about cancer is emotional. It forces me to revisit my travels with a life-threatening disease. It also helps me appreciate how far I’ve come, how well I’m surviving, how important it is to talk.

I told my researcher guy today that I’m willing to talk about anything related to cancer. Sure, I could be private about it all. I could keep my information inside. But I figure that doesn’t do anyone any good. Talking—and writing—about cancer is what helps. It helps me. I hope it helps others.

If you want to know something about cancer, especially breast cancer, ask me. My information is yours for the taking.