my Breast Cancer blog

2004, age 34 — this is my story

Men Get Breast Cancer, Too

kiss-200jd101609

Photo: Howdy, I'm H. Michael Karshis, Flickr / Peter Criss, far right

Original KISS drummer Peter Criss is speaking out, sharing that men can get breast cancer, too. He knows, because he’s had it.

Criss found a lump in his breast after a workout in 2007, and went on to find out it was cancerous. He caught it early, had it removed, and now, the 63-year-old is apparently doing just fine. He reports that he is cancer-free.

Indeed, men are at risk for the disease. According to the National Cancer Institute, in 2009 an estimated 1,910 men in the United States will be diagnosed with breast cancer, and 440 will die. Not as scary as for women — in the same year, about 192,370 women will receive a diagnosis, and 40,170 will die. Still, the risk is real, and so men should follow up on anything suspicious they feel in their breasts.

“Don’t sit around playing Mr. Tough Guy,” says Criss. “Don’t say ‘It’s going to go away.’ It might not and you might not see life anymore and how beautiful that is.”

Right on!

Bus Driver Suspended for Wearing Pink

Maybe he should have asked first, but he didn’t, and so William Jones, a 46-year-old bus driver from Illinois has been suspended from his job for one day (without pay) for violating his district’s dress code. What ever did he do? He wore a pink tie. He did it to honor his relatives — grandma and sister — who’ve battled breast cancer, and it is Breast Cancer Awareness Month and all. Still, no forgiveness. And for that, Jones has filed a grievance against the transit district for being singled out for suspension.

The whole story here.

Pondering Pink

I just had the chance to write a story for AOL Health about the color pink and whether or not it’s gone too far. I’ve written about the breast cancer color before, and I’ve declared that I don’t find it personally offensive or anything — I kind of like it, really — but given the task to research it a bit, I came up with some thought-provoking stuff. Take a read for yourself, then tell me what you think about pink.

A Survivor Weighs In On Whether It’s Gone Too Far

Grateful Girl

pink ribbons

pink ribbon preparation

Just because I am totally and completely honored that so many people (57, to be exact) have donated to my Making Strides Against Breast Cancer Run, I’m listing each and every generous person right here. All these names will also appear on pink ribbons tied on my body as bracelets and anklets on the day of the race (Saturday, October 24).

I am a grateful girl, that’s for sure.

Aimee Piglia-Perry
Aunt Gay
8 Donaldson G Kids
Allison Lemon
Annie Frierson
Billy + Chris Donovan
Bobbi Nicol
Carmen Elliott
Cheryl Jorgenson
Dave, Lisa, Maggie, Jack + Annie Berrow
Dawn + Bill Breehl
Dr. Lynch
Dr. Copeland
Ericha Fryfogle-Joy
Freymann Family
Gainesville Family Eyecare
Gretchen
Hyundai, Lincoln, Mercury of Gainesville
J. Chokel
J. Hissem
Jen Weeks
Jim + Shannon Donaldson
Jordan + Tori
Julian Rosado
Karla Carrington
Kim Stigler + Family
Kristen Seymour
Louis Garcia
Lynn + Dave Broadway
Michelle Margolies Tran
Mike Clary
Millhopper Pediatric Dentistry
Nick + Lori Cheronis
Nick M.
Nicole Kotlan
Pat Nicol
Scott + Rachael Donaldson
Sean + Sarah Limon
softservegirl
Steph + Sierra
Sue + John Herr
Susan Edmonds
Thaler + Townsend, P.A.
The Dampier Family
The Ernst Family
The Galione Family
The Grant Family
The Herring Family
The Hines Family
The Mori Family
The Otis Family
The Sklar Family
The Spiegler Family
Tracey Reeves
Urban Meyer Family
Vicki
Walker Family

I Am Beyond … Water Bottle

i am beyond water bottle

This is the bottle on its side / iambeyond.com

I don’t drink enough water. I know it’s good for me, yet I still don’t do it. No reason, really, I just don’t get around to it. My crazy-busy schedule just keeps me moving, not drinking. I think things are gonna change, though, because I have this new water bottle in a pretty pink color, with an inspiring message and a charitable twist, too. (A minimum of $4 will be donated to the Women’s Cancer Research Fund for each bottle sold.)

Oh, and the best part: When I drink from this bottle, I don’t taste anything artificial or plastic-y at all. And with most bottles, I do. There’s also this cool flip top that makes it fun to open and close.

Clearly, I’m sold on this item, and I’m here to recommend it if you are in the market for something to hold your liquids. If you’re a good water drinker, then it will come in plenty handy. And if you’re not so good, like me, then, well, it will come in plenty handy, too.

Click over here and choose “charitable items” for the scoop on ordering. $36 for one bottle, by the way.

Pink Wallet Helps Young Survivors

lauren merkin wallet

www.laurenmerkin.com

Lauren Merkin is a huge supporter of breast cancer awareness, and every year she designs a special pink item from her collection, where 50 percent of the proceeds are donated to the Young Survival Coalition (this is a place for us under-40 breast cancer folks). This year she has designed a Fuchsia Tiled Embossed Lamb wallet, retail $175 — 50 percent going to YSC! Below, women sharing their thoughts about this international organization dedicated to the critical issues unique to young women and breast cancer.

Cupcakes Delivered to Your Door: Giveaway

Bangerang Bake Shop cupcakes

www.bangerangbakeshop.com

Every once in a while, one of my kids will ask how I’d like it if cakes and cookies and candies were healthy and I could eat as much as I’d like (they are quite the dreamers). I always tell them I’d love it.

Sadly, these sweets are not so nutritious, and limiting sugary goods is what we all should do. No reason we can’t indulge once in a while, though, and when that time comes, Bangerang Bake Shop delivers. And I mean literally delivers cupcakes right to your door (or mailbox). They just sent two beautiful masterpieces to me, one Cupcake For The Cure (white cake, pink frosting and edible little pink ribbons) and one Chocolate Chip Off The Ol’ Block (benefiting kids cancer). They arrived in a clever little package, each cake wrapped individually in blue and pink tissue paper (don’t you just love the perfect presentation?), and with two plastic forks, because this is the kind of treat you want to eat with silverware — cupcakes come in jars with fancy lids that are totally reusable, by the way.

So what happened after our cupcakes arrived?

salivating

We opened the box and licked our lips,

unwrapping

we unwrapped the cupcakes,

tasting

we tasted the treats,

sharing

we shared them, too!

And we want you to do the same. Want your chance? Just enter the giveaway below — Bangerang Bake Shop will give a $22 gift certificate to one lucky reader. What a delicious opportunity!

  • Visit the Bangerang Bake Shop Web site and leave a comment below sharing which cupcakes you’ll buy if you win.
  • Leave your comment no later than 5PM ET on Friday, October 16, 2009.
  • You may enter only once.
  • Open to legal residents of the 50 United States, and the District of Columbia, who are 18 and older.
  • One winner will be selected in a random drawing.
  • One winner will receive one Bangerang Bake Shop gift card, valued at $22.
  • Winners will be notified by email, so make sure to check next week to find out if you’ve won!

Straight Talk on Chemo Hair

straight hair

Photo courtesy of Jordan Pfaff, almost 5 years old

I’ve never really liked the curly hair I got post-chemo. Now, it’s not as curly as when it first sprouted, but it’s definitely wavy and full, and on a humid Florida day (that would be, like, seven days a week, mostly year-round), it grows really big. Thank goodness for the flat iron, because I use my pretty pink one every. single. day. no. exceptions. (Well, except for that one day I let my locks go natural and Joey greeted me after school with an enthusiastic, “What happened to your hair?”)

OK, so I overuse my flat iron, and the crazy-hot heat is damaging my hair for sure. So realizing my strands really needed a break, I had this hair-straightening procedure done two weeks ago. Here’s how it worked: My hair stylist washed my hair and dried it, rubbed and combed in this solution, dried it again and then flat ironed it all over. For three days — OMG, three days — I could not wash my hair (ewww!), supposedly so the magic could lock itself in and straighten my hair for up to four months. And now that I’ve been washing and conditioning my hair for a bit (with special no-salt products), I’m here to tell you what I think about what cost me $150 (plus tip, plus $30-ish for products).

The Coppola Keratin Complex Smoothing Therapy seems to have some merit. It has not worked miracles, and I still have a sort-of bend in my hair, and it’s not immune to the effects of weather, but my hair is smoother and straighter now than it was pre-expensive treatment. I can blow-dry it and leave it as is, if I’m OK with a tiny bit of fluff, or I can dry it and pass through a couple of times with the flat iron — which is what I’ve been doing. My ideal scenario would have been to pack away the iron entirely, but my hair is just not as poker straight as I’d dreamed it would be, so I use it a little — much less than before, though, so that’s a good thing.

When four months is up, or whenenver the effects wear off, I’m not sure I’ll do this again. Truth be told, the no-shampooing thing was really hard, mostly because I like to exercise and sweat every day (so hair washing really is a daily necessity for me) and also because my hair got heavier and greasier by the day, and that just basically grossed me out. I guess if after three days I was rewarded with perfectly super-straight hair, I’d take the plunge and empty my wallet again, but it’s just not. It’s an improvement. Just not dead-on straight — you know, like the hair I had pre-cancer, the hair I permed non-stop because I was sure I wanted curls forever. Well, I was wrong. I don’t.

Mammogram and MRI: Mix ‘Em Up

Check this out: I just read in Family Circle magazine (October 1, 2009) that alternating between mammograms and MRIs every six months is a potentially lifesaving measure for women at high risk for breast cancer. This comes straight from new research out of the University of Texas M.D. Anderson Cancer Center. I find this reassuring because it’s the exact schedule I follow — mammogram, MRI six months later, mammogram six months later, and so on.

More research, from Dartmouth University in Hanover, New Hampshire, found that MRIs can spot tumors not found in mammogram or ultrasound in 20 percent of breast cancers.

I think I’m covered. Whew.

License to Survive

breast cancer license plate

JD -- that's me!

I’m on a license plate. That’s me, the JD. HS is another breast cancer survivor girl, and the “5″ refers to five years of survival — we both will celebrate our cancerversaries very soon.

This is the doing of a friend of mine, who decided to honor us, and I am totally flattered that someone would do this for me. I feel kind of famous, too, you know, my initials driving around town on a fancy new Honda Accord. So cool.

Giveaway – For My Courageous Sisterchick

the courageous sisterchick placard

www.robingunn.com

Best-selling author Robin Jones Gunn’s  Sisterchick Series follows women, best-friend types, on adventures around the world, and her book “Sisterchicks in Wooden Shoes” narrates the story of a woman facing breast cancer. In the book, the main character comes across an adaptation of Psalm 23, and readers have had such a strong and positive reaction to the passage that it’s been made into an inspiring placard. For just $6, this frameable card can be yours.

Or you can win one here — I have three, and I’ll gift them to the first three people who leave a comment on this post.

Ready. Set. Go.

Wait, one more thing: I’ve got a coupon code for you — use it when you shop at shop.robingunn.com, and you’ll save 20% on your total order. The code: CANCERSPOT.

For My Courageous Sisterchick®

The Lord is my shepherd; I shall not freak out.
He makes me lie down under scanning machines,
He leads me to trustworthy doctors,
He restores my deductible.

Even though I walk through the valley of the shadow of death
(And keep on walking and don’t get stuck
or sit down or have a hissy fit),
I will fear no evil,
For You are with me.

Your new creation health renewal plan
And perfect timing, they comfort me.

You prepare an organic diet before me
In the presence of my injections.
You anoint my baldhead with oil
When my bra cup no longer overflows.

Surely goodness and mercy shall follow me all the days of my life,

And when You at last pull my chart and call my name,
I shall arise
And dwell with You in Your house,
Forever.

Adapted from the 23rd Psalm
Appears in “Sisterchicks® in Wooden Shoes!”
Copyright © 2009 by Robin’s Nest Productions Inc.

DIY Breast Cancer Prevention

Olive Oil

foodistablog, Flickr

Extra-virgin olive oil could suppress a breast-cancer promoting gene if used as your primary kitchen oil, says the team at Family Circle magazine (October 1, 2009).

That’s not the only do-it-yourself tip FC offers. Apparently, apples can help too (phenolics in the fruit may combat malignant tumors) and vitamin D can aid in the prevention of cell division and the activation of a tumor-suppressing protein.

And the one I love the most: Reducing calorie intake and exercising regularly can slow tumor growth and lower the amount of leptin (a fat-released protein linked to the disease) in the bloodstream.

Got any DIY tips for keeping cancer away?

Dear Doctor

waiting toes

Waiting, 10.5.09

Dear Dr. Lynch,

You don’t know this, but tears fill my eyes every time I drive to see you. It happens as I head east on Archer Road, right as that big Shands hospital comes into sight and just before I plant my feet in your waiting room and begin contemplating the reason you and I know each other. These are not sad tears, though. They are “Gosh, I am so glad I fell into your hands” tears. They are simply my body’s way of conveying what words cannot.

Thank you, my friend, for rescuing me from the doctor who told me to toughen up when my blood counts numbered 700, for telling me Taxol was not the drug for me (I knew it wasn’t!), for signing me up for the hopefully-life-saving Herceptin, for fielding my endless questions and worries, for helping fund my run (your name on a pink ribbon, October 24), for giving me another clean bill of health today and for so much more.

See, words just can’t sum it all up.

It’s happening again.

Tears.

In good health (yours and mine),

Jacki

Doctors, Doctors, All the Time

doctor office

Photo: meddygarnet, Flickr

It seems like I just went for a cancer follow-up, and here I go again, this morning, at 8 o’clock. There are just so many doctors and procedures. I have a radiation oncologist (she’s the one I saw five weeks ago), a medical oncologist (seeing him today), and I go for mammograms and ultrasounds, and MRI scans, too. All these appointments are scattered around my calendar, along with my annual physical, my OB/GYN check-up, dental appointments, eye appointments, skin cancer screenings, whew! Seems if ever anything is about to go wrong with my body, someone — one of these qualified docs — is going to nip it in the bud. That’s my hope, anyway — that this constant monitoring is prevention at its best, or at the very least, will lead to nothing more than early detection.

It makes me feel safe to weave myself through the maze of needle sticks and blue gowns. And safe I’ve been for almost five years now (November is the big remission mark). I think I won’t change a thing. Well, maybe just the long waits and never-ending co-pays.

Giveaway – STAND BY HER: A Breast Cancer Guide for Men

Leave a comment below to win this book!

Leave a comment below to win this book!

There’s a new breast cancer book out there, with a new twist — it’s for men. It’s called STAND BY HER: A Breast Cancer Guide for Men by John W. Anderson (AMACOM Books, October 2009).

Anderson watched his mother, Anne, die from breast cancer. Then, he watched his mother’s best friend Caryl, his sister Mary, and his wife Sharon battle breast cancer and survive. From these four extraordinary women, Anderson learned how breast cancer affects men and what men can do when women in their lives become its victims. After his wife reached her five-year cancer-free milestone, he decided to write a comprehensive reference and compass for husbands, fathers, sons, brothers and other caring men.

STAND BY HER is a step-by-step program targeted to men who want to become invaluable breast cancer caregivers to their loved ones, while at the same time helping them address and overcome their own personal fears, frustrations and anxieties caused by this disease. Combining anecdotes from his own and others’ secondhand experiences of breast cancer with extensive research and abundant resources, Anderson provides information, strategies and guidance on countless medical and emotional minefields men face, every day. Beginning with the challenge of interpreting and handling the initial diagnosis, he clearly explains the range of breast cancer treatments — from lumpectomy and chemotherapy to double mastectomy and reconstructive surgery.

Anderson is an Emmy-nominated director of television commercials, including Lifetime Television’s “Stop Breast Cancer for Life” campaign, and a writer, producer and director of television shows. He is a writer for newspapers and magazines, whose work has appeared in The New York Times, Rolling Stone, The Nation and many other publications. He has a blog www.standbyher.org.

And he’s going to be on The Today Show on October 8, talking all about the book. Check him out if you can.

And here’s some exciting news: One lucky reader is going to score a copy of Anderson’s book. Here’s the scoop on how to enter to win:

  • Leave a comment below sharing why you really want this book.
  • Leave your comment no later than 5PM ET on Friday, October 9, 2009.
  • You may enter only once.
  • Open to legal residents of the 50 United States, and the District of Columbia, who are 18 and older.
  • One winner will be selected in a random drawing.
  • One winner will receive one copy of STAND BY HER: A Breast Cancer Guide for Men, valued at $18.95.
  • Winners will be notified by email, so make sure to check next week to find out if you’ve won!

Visiting MizFit

I am visiting today over at MizFit’s blog, talking about why I exercise and what the heck it has to do with cancer. Readers are commenting, and they are saying the nicest things. Makes me happy. Check it all out right here.

BondiBand – Fashion Meets Function Meets Cancer

You might not think right off the bat that a company like BondiBand would have a cancer connection, but as I just recently found out, they do. At first, I just thought their headbands were way cool. I knew instantly I needed a few for myself after spotting them on my fitness trainer friend and then learning that they’re killer at holding back hair on workout adventures. So, I had a few shipped my way (thanks, Rebecca!), and that’s when I learned that they are perfect for the cancer people of the world. Not only do they offer inspiring messages and logos (proof is in the photos), but I’m thinking they could (1) help hold wigs in place and (2) cover the entire bald head if you opt for the full-hat option.

BondiBand headband

Cancer. Had it. Fought it. Beat it.

BondiBand headband

The trusty pink ribbon.

They’re good for everyone else too, with their super styles — available for chicks, dudes, babes and buddies (that would be pets).

BondiBand headband

Gotta love polka dots!

But back to the whole cancer thing: BondiBand donates some of their hard-earned profits to charity — and for 2008, they chose the Dana-Farber Cancer Institute (DFCI), a Comprehensive Cancer Center designated by the National Cancer Institute. A major affiliate of Harvard Medical School and located in Boston, Mass., more than 150,000 patients visit DFCI a year. About 200 clinical trials take place there annually, and the place is internationally known for its research and clinical excellence. Good choice, BondiBand!

If you decide to shell out some cash for your own bands (about $8 for one), you’ll be making a good choice, too. Promise. You might even get a chance to try them out for free — I’ll feature a giveaway of 5 headbands very soon. Keep checking back for your chance to win.

LIVESTRONG Day is Tomorrow

I hope you’re living strong every day, but if not, make tomorrow the day you go for it. Friday, October 2 is LIVESTRONG Day, after all. Know what that means? LIVESTRONG Day is the one-day initiative of the Lance Armstrong Foundation, intended to unite people affected by cancer by raising awareness on a global level and in communities across the country.

Now, there are all kinds of official things you could have done leading up to this day (and if you did, good for you!), and there might be events and activities taking place right where you live, but you don’t even need to put a whole lot of effort into it. Keep it simple — wear that rubbery yellow bracelet, donate a few dollars to a good cause, make a meal for a neighbor you know is going through cancer treatment. Gosh, even ask someone who is surviving the disease how everything is going.

Here are some ideas for celebrating at work. And if you want to eat out, why not head to Buca di Beppo, where 20 percent of your bill will be donated to the cause. If you really want to be inspired, check out what these clever folks have done.