my Breast Cancer blog

2004, age 34 — this is my story

Shabby Apple offers discount to all

My Shabby Apple pals are not only giving Cathy a free dress, valued at $64. They are also giving you a 15% discount on anything in their online store. Check out their dresses and accessories here (they even have little girl stuff) and then get shopping.

To get your discount, just do this: When you are about to check out online, enter the coupon code mybreastcancer15off (case sensitive and one word).

Pictured: Small daisy hair clip. 2 inch diameter. Clip on back of flower to help hold it securely in hair. Comes in chocolate, black, baby pink and white. Price: $12.00, but less if you use your discount.

Shabby Apple has a winner

“What I love most about my body is my skin,” says Cathy in her comment for my Shabby Apple dress giveaway. “I have been blessed with great genetics and protect my skin with SPF so that I always look younger than I am. Now, I am teaching my daughter to take care of her skin, which is also beautiful. I have been every size there is between 8 and 16 and sometimes it is difficult to be comfortable in my own skin, but its mine and I love it!”

And now Cathy gets to showcase her beautiful skin in her brand new jersey dress. Yes, she’s the winner. And I just know she’s going to look smashing and dashing and all things radiant in that trendy yet sophisticated little number.

Congrats to you, Cathy. And thanks to you, my Shabby Apple friend Ashely, for making this giveaway possible.

The doctor is in

If you’re new to the world of breast cancer, you need to see this doctor. I don’t mean you need to actually visit her, but you should consult her. Her name is Dr. Susan Love and she is, like, the expert, the guru, the absolute best. When I was first diagnosed, someone told me to buy her book—Dr. Susan Love’s Breast Book—because it’s considered the breast cancer bible. It was my constant companion for a long time. Late at night, when fear raced through my head and panic paralyzed me, I grabbed the good doctor and flipped through her pages. She always set my mind at ease and while some things she told me were scary, she mostly armed me with hope.

You should get her book—check it out right here—and you should visit her website too, right here. I promise you’ll like her. She’s warm, caring, smart, and she just happens to have all the latest and greatest facts on breast cancer. What are you waiting for? Your appointment awaits you.

Just stand up

On September 5, 2008, all three major TV networks aired Stand Up To Cancer. Nearly 170 countries had access to the show, bunches of celebrities participated, and loads of money was raised—like $100 million, to be exact.

Check out this song, titled Just Stand Up and featuring artists like Mariah Carey, Beyoncé, Mary J. Blige, Rihanna, Fergie, Sheryl Crow, Melissa Etheridge, Natasha Bedingfield, Miley Cyrus, Leona Lewis, Carrie Underwood, Keyshia Cole, Leann Rimes, Ashanti, and Ciara.

Inspiring. Simply inspiring.

Cozy, Fuzzy socks

My favorite of all cancer gifts was a pair of cozy, fuzzy, yellow socks sent in the mail from a friend named Ginger. Ginger, I don’t know where you are or if you’re reading, but I am so thankful for those socks. They warmed my tootsies and my heart. And every time I look at them, crumpled and stuffed in my sock drawer, I think of you and how those socks are a testament to my survival. They are worn and dirty and the fuzzies are all flattened, which means I’ve had them for awhile, which means I’ve been alive for awhile, which means I am happily surviving the disease that prompted my friend to send me such a special package.

Four years ago, Ginger gave me my favorite socks. And for four years, I’ve been giving the gift of socks to others who need comforting. Need a gift for a special someone? I recommend socks. The cozier and fuzzier, the better. Click here to buy the ones pictured above.

Circus of Cancer

I’ve read her book, The Middle Place, and I tell you: It’s the best. Really, a touching story of her life with cancer, her dad’s life with cancer, and her relationship with one husband, two kids, a mom, brothers, and others. Read it if you can. You’ll laugh. You’ll cry. You’ll be inspired, by the one and only Kelly Corrigan.

Corrigan also has a cool website, called Circus of Cancer. I’m just starting to find my way around this magical place. Want to join me? Click here and you’ll find all sorts of great stuff—photographs of Corrigan during her cancer days, tips on how to help friends with cancer, gifts and free e-cards, and the latest on Corrigan’s writing endeavors. Even her little girl are getting in on the writing gig—check out this picture book, pictured above, written for mommy’s with cancer.

Cancer won’t win

When I run, I always think the same thing: That I’m conquering cancer. It’s like my mind plays on repeat as I put one foot in front of the other and pound the pavement. Maybe it’s the research clogging up my brain—the stuff that says five weekly hours of vigorous exercise helps prevent a recurrence of breast cancer. Maybe it’s the feeling of power I get from logging mile after mile, the knowledge that my body really is strong—if it were not, I wouldn’t be able to run. Maybe it’s both, or something else entirely. It doesn’t matter. What matters is that when I run, I believe I am leaving cancer far behind. I believe I am crossing the finish line, and cancer never will. Running is my preventative medicine. So far, it’s working.

Chemo and Angels

During chemotherapy, I had a few angels—chemo angels, to be exact. They wrote me letters, filled my mailbox with gifts, sent good wishes my way, and brightened many of my cancer days.

If you’re enduring chemotherapy, you too can have a chemo angel, maybe even more than one. And if you are lucky enough to not be enduring chemo, you can be an angel.

Check out this website
, where you’ll learn that Chemo Angels is a volunteer organization dedicated to adding a ray of sunshine to the lives of those undergoing IV chemo treatment. The angel folks believe people going through the physical, emotional, and mental rigors of chemotherapy deserve some encouragement.

Indeed, they do.

Be an angel or get an angel—I think you’ll be happy either way.

Happy Love Your Body Day

Today is Love Your Body Day. We’re talking about it on That’s Fit, readers here on my personal blog are sharing what they love most about their bodies for my latest giveaway—click here, reveal your most prized body part, and enter to win a dazzler of a dress—and now, I’ll tell you what I love about this 38-year-old body that belongs to me.

To be honest, I’ve always been a bit hard on my body, generally wishing it was thinner, stronger, tanner, tighter, more toned. I’ve even gone as far as reducing my once-too-big boobs and tucking in my sagging-skin tummy. I explain my breast reduction as necessary for comfort—four pounds of heavy, dense tissue were removed—and I justify the tummy tuck too. Comfort again. After seven years, I just couldn’t deal anymore with the excess post-pregnancy stuff hanging from my middle. Comfort aside, though, I admit both surgeries gave me an appearance I wanted: Small boobs and a flat tummy, both better matches for my other body parts.

I love my boobs and my tummy now. Truly love them. There are other parts I love too—parts never reconstructed or enhanced, like my toes.

John told me on one of our first dates that my toes are cute. I agree. They look best in flip-flops, painted just right with my favorite really dark color.

I also love my hair. Never thought I’d say that after shaving off my blond locks nearly four years ago in preparation for the big chemotherapy fall-out. But my hair grew back better. And my hair stylist Trippe cuts it perfectly, which makes me love him almost as much as I love my hair.

Other parts I love: My arms, for toning up so nicely; my legs, for allowing me to run lots of miles; my brain, which is getting smarter by the day, thanks to second-grade homework and four tests per week; the whole darn thing, really. I mean, this body of mine delivered two whopper-sized baby boys and beat breast cancer too. I love it. Simply love it.

What do you love about your body? Name something. Anything. Your eyes, your ears, your lips, your fingernails. Surely, there’s something that makes you happy. Think about it, and share by leaving a comment, either here on this post or on the giveaway post, where you stand to win something pretty.

Jersey Dress Giveaway: Not Too Shabby, eh?

I wish I’d known about Shabby Apple months ago when I was shopping for a black dress for my 20-year class reunion. I couldn’t find a cute one anywhere, which worked out just fine since my generous sister set me on a shopping spree in her jam-packed closet and let me pick out a perfect little number for my August festivities. Next time I’m in the market for something snazzy, though, I’m heading online—check out these everything ebony dresses. Just what I was looking for.

Shabby Apple is the best. Not only because it’s a trendy dress boutique, owned by women, operated for women, and always supporting women but because the folks there want to give away one dress here. Why? Well, because, in the spirit of breast cancer awareness, they want to honor women. How nice is that? They also will offer a 15% discount to readers. Stay tuned for more on that.

Want to win that not-so-shabby jersey dress pictured above? Here’s what you’ve got to do—leave a comment and tell me what you love most about your body. Seems a fitting question since on October 15, it’s Love Your Body Day. Feel free to share more than one loved body part if you wish. I’ll start: I love my calf muscles. And although I don’t come by it naturally, I love my tummy too.

OK, so here’s the deal: Leave your comment before 5 PM on Tuesday, October 21, because after that, I’ll conduct my random drawing, which probably will involve one little boy’s hand pulling a name from a hat. After that, I’ll announce the winner, who will work with my Shabby Apple friends on sizing and delivery of this wondrous dress, which incidentally is called 90 Words Per Minute and comes with the following stats:

Turquoise secretary dress. The dress has ruching at the sides to flatter hips and a tie at neck. The dress’s puff sleeves have a band that hits just above elbow. The skirt hits just below knee. The dress is made of poly/rayon/spandex jersey. To care for this dress, machine wash in cold on the delicate cycle or hand wash. Hang to dry. This dress FITS GENEROUSLY. Price, which you won’t have to pay: $64.

Hip Hats With Hair

One day, while in the midst of chemotherapy and walking for exercise, a neighbor noticed me and waved. A few days later, she told my sister: “That’s so great your sister didn’t lose her hair.” Ah, but I did. My neighbor just couldn’t tell because my wig was pretty darn deceiving.

My pretty-darn-deceiving wig came from a pretty great place called Hip Hats With Hair. I bought something called Underhair, which isn’t a full wig but this really soft cotton thing with hair on the sides and back. Hats, scarves, or wraps go on top. There are other products—the PonySport, the Scarfabulous, the PonyMode, and the SydneySwim. All made from human hair, these cool cancer cover-ups can be cut, washed, dried, and styled. You can even request hair samples and check out various colors, textures, and lengths.

These hip hair options are not cheap (they can cost hundreds of dollars) but for people like me, who want to look not so bald, price might be a non-issue. Looking like I didn’t have cancer was my issue. If it’s yours too, check out this pretty great place, right here.

Oh, get your doctor to write you a prescription for a wig and you might save some bucks. My insurance covered $40 for me.

The Survivor Movie

I first wrote about The Survivor Movie on July 10, 2005, nearly eight months after my breast cancer diagnosis.

It was a day filled with cancer worry and panic, a day perfect for watching this inspiring video.

Whether you have cancer or not, I think you’ll find it uplifting.

See for yourself. Click here.

Want some history on how this movie came to be? Hop on over here.

Boo-Boo in my boobie

I wrote this essay on December 4, 2006 for Orato.com. It still appears on this site in its original published format. Keep in mind that it’s a two-year-old story. My boys are not four and 18 months anymore. They are seven and five. It has not been two years since my diagnosis. It’s been almost four.

Two years ago, I told my two little boys—then four and 18 months—that I had cancer. I told them cancer meant I had a boo-boo in my boobie. I told them doctors would take it out, I would take medicine, my hair would fall out, and I would get better. They heard my words, translated them into their own meanings, and have been caring for me ever since that November day in 2004 when my life suddenly appeared anything but a guarantee.

My breasts have been abundantly front and center in my life for dozens of years. First they were too big—34 DDD—and I tried valiantly to disguise the bulk on my chest with large shirts, harness-type bras, and rounded shoulders to shelter others from my most obvious feature. Then came a breast reduction surgery to remove four pounds of dense tissue and to augment my waning self-confidence. Cute bras, tight shirts, and better posture became staples in my life. My breasts made me happy—finally—despite surgery scars, occasional numbness, and an eventual inability to breastfeed my babies.

My small, perky breasts made me happy for eight years. Then I found a lump in the left one—a hard, pea-sized lump that presented itself right beneath my fingertips one day while I was in the shower. It became my obsession for the days leading up to my official clinical examination. I touched it and maneuvered it and examined it until I was sure it was growing with each moment.

And so was born the boo-boo in my boobie—the boo-boo my family and friends and doctors predicted was nothing to worry about. The boo-boo that was in fact cancer—housed in a tumor 1.1 centimeters in size, which had not yet spread to my lymph nodes and was considered stage I.

I found my lump early, and my prognosis was good—in some ways. In other ways, I faced a not-so-good prognosis. I was young—34 years old—and tumors found in young women are typically aggressive. My tumor also contained too much of a certain protein that made it wildly aggressive. So for the 24 months that have followed my diagnosis, I have been receiving intensive treatment for a mass that appears treatable and at the same time threatens to take my life.

A lumpectomy took my tumor and four lymph nodes. Four doses of chemotherapy—given every two weeks in a dose-dense fashion— took my hair and my energy and my overall sense of wellness. It landed me in the hospital twice due to fever and a suppressed immune system and was cause for a blood transfusion during one hospital stay. Radiation took hours of my day—five days per week for seven weeks—and left me with temporary burns and ten tiny permanent blue tattoos. And then one year of targeted drug therapy took me back to the chemo room for every-three week infusions of a new wonder drug intended to block that same protein that made my tumor so deadly.

This whole journey, complete with stops for physical therapy, counseling, and treatment with an anti-depressant, is winding down. With surgery and treatment behind me, I have just one final counseling session remaining. And when the session ends and my case is closed, I will begin a new version of my life—free of constant medical intervention and with just a touch of monitoring.

I will visit my medical oncologist every three months for the next five years—when, if cancer has not returned, it will be safe to say I am in remission. For five years, I will also see my radiation oncologist every six months. For the rest of my life, I will receive a mammogram and ultrasound every six months, will report for a breast MRI once every year, and will conduct my own breast self-exams every month. And while there is no comprehensive blood test or can available to offer me peace of mind that cancer is not taking up residence in my body again, I will closely monitor every bit of pain and discomfort, every bump and lump that gives me reason to worry. And I will pursue it all—with a vengeance—so I can catch anything that creeps up on me with enough time to conquer it.

If cancer must enter my world, I will only allow it to stay for a short time-because I have a lifetime of joy and happiness ahead of me, and I cannot be distracted for long. I have two little boys—now almost six and three and a half—whose lives I must witness. They are the boys who propelled me through my darkest days and have touched me deeply with their unwavering love and concern and simple wisdom.

When radiation zapped every bit of energy I possessed and caused me to unintentionally fall asleep in my living room recliner, Joey—my oldest—would ask me when I opened my eyes, “Mommy, did you have a nice rest?” One day when I felt terribly ill, he said, “Mommy, you go to your bed and I’ll bring you a banana.” He worried that my port—or stone, as he called it—might hurt me and when I told him it did not hurt, he replied, “Won’t you be so happy when you can be on your own without cancer?”

I’m not sure Joey has ever really understood the magnitude of cancer. Still, he sensed I needed him during my battle with this mysterious condition. He assured me the day he and his daddy shaved my head prior to my chemotherapy fallout that I should not cry. “It’s only a haircut, mommy,” he said. “You are not going to die.”

He was right. It was only a haircut. And Danny—my youngest—may not even remember that my hair, now dark and curly, was once blond and straight. He has just recently started catching on to the series of cancer events unfolding in our household. A few months ago, he asked, “Why you keep doing that?”

“Doing what?” I asked him.

He replied: “Going to the doctor.”

I told him I go to the doctor so I can stay healthy.

Two years ago, I told my two little boys I had cancer. I told them cancer meant I had a boo-boo in my boobie. I told them doctors would take it out, I would take medicine, my hair would fall out, and I would get better.

This is exactly how it happened.

Dianne

A friend of a friend called me the other day to thank me for loaning her a book. The book: Love, Medicine and Miracles: Lessons Learned about Self-Healing from a Surgeon’s Experience with Exceptional Patients
Love, Medicine, and Miracles
by Dr. Bernie Siegel. It’s a book about exceptional patients—you know, the ones who do battle with diseases like cancer not only with surgery, chemotherapy, and radiation, but with attitude. Not just any attitude. I’m talking positive, hopeful, this-won’t-get-me-down-or-kill-me attitude. I thought it was an appropriate book for this young woman, a wife and stay-at-home mom of two little boys, who finds herself fighting stage 3 lung cancer. But what I realized when I talked to Dianne on the phone is this: The girl doesn’t need this book. She’s already exceptional.

Dianne is a non-smoker, an active gal who had no risk factors for such a horrible disease. She got it anyway, though, and by golly, her mission is to get rid of it. Knee-deep in both chemotherapy and radiation, her spirit is amazing. She’s strong, tough, and willing to do what it takes to crush cancer. Crush it is exactly what I think she’ll do. She’s an exceptional patient, after all. I think she’ll realize this as she flips through the pages of her new book and realizes she’s the very person Dr. Siegel discusses. Yes, Dianne, is going to do just fine. It’s the cancer that won’t fare so well.

Spotlight on breast cancer

John thought the folks at the University of Florida should hear my breast cancer story. I’m a Gator grad, so is he, and he works for UF’s College of Education. Clearly, we have a connection to the place. Enough of a connection, John said, that I should be featured as one of three spotlighted people on the University website.

So John made a call, then I received a call and did an interview, then I met a photographer on campus for a photo shoot one September afternoon.

And now, here I am. On the website. Just like John wanted.

Sue’s Boob Blog

Sue has just been diagnosed with breast cancer. Here is her blog. It’s really quite good. Full of up-to-the-minute details about her disease and the survival trail she is blazing, overflowing with great attitude, and decorated with photos that are purely powerful.

Visit Sue when you have a minute. Send her your get-well wishes too. Cheerleaders are key in the fight against breast cancer. Trust me, I know.

May you find peace and happiness through this journey, Sue. I’ll be keeping tabs on you.

Think before you pink

I’m not opposed to the color pink. At all. I happen to like it. And the fact that it’s associated with breast cancer is not a problem for me. I happen to like that my disease has it’s own color, and I truly think the color alone helps raise awareness—sometimes. Other times, the color pink raises red flags. Just ask the folks behind the Think Before You Pink campaign.

Apparently there are companies out there capitalizing on breast cancer by slapping pink on their products and generating income because of it when their products are somehow linked to the disease. Pinkwashers, these companies are called. Yoplait is reportedly one of them, asking women to support the breast cancer cause by eating yogurt made with dairy from cows that have been treated with the artificial growth hormone rBGH. There are numerous health concerns surrounding the use of rBGH, and breast cancer is one of them. Cosmetics companies: Same thing. They make products with parabens, phthalates, and other ingredients possibly linked to breast cancer. When they place a pink ribbon on their lipsticks, foundations, and powders, they become pinkwashers.

The Think Before You Pink people want you this October to do something besides shop for breast cancer. Read more here. I want you to simply investigate the pink products you want to buy. Determine how safe they are, and find out if proceeds really help find a cure for breast cancer. Then make your call. Because pink it nice. And if used for good, I say you should fork over your cash. That’s what I plan to do.

I hate tumors

There’s nothing fair about the way it happened, the way Amy died just 15 months after a breast cancer diagnosis seemingly similar to mine. She heard the same string of chilling words—you have cancer—as I did, just months after a doctor hurled them at me, over the phone, a day before Thanksgiving. Both in our early 30s with husbands and small children, Amy and I felt like two peas in a pod, situated in what we believed were almost identical positions. We were both young, both with early stage breast cancer. We both knew our cancers, while caught early, were considered aggressive because of our age—young women tend to have aggressive forms of the disease—but we also knew we had a high likelihood of survival, about 93% for at least five years.

Amy and I had common hopes, fears, and worries, and on several occasions we cried tears we were sure flowed from the same well. We also shared an instant urge to reach others with our breast cancer stories. Amy welcomed local newspaper reporters into her world and allowed them to capture through words and photographs her most intimate cancer moments. I began authoring my own breast cancer blog and then ventured into the world of freelance writing. We both wanted to make our experiences matter. And judging by the flood of reaction we received from our combined efforts, it’s clear we did.

Amy and I shared victories—we both managed to escape the threat of lymph node involvement—and we shared cards and e-mails. Thank you for holding my hand through this journey—it would have been pretty lonely without you, Amy wrote in one e-mail.

Amy and I also shared care packages, family photos, even hats. If misery loves company, then Amy and I were in love. And in celebration of our love, we basked in the glory of our most important similarity—our cancers had not spread. This was key to our survival. Or so we thought.

A mutual friend—her high school buddy and my college roommate—matched Amy and me. Ericha was one of a few close friends who after my diagnosis offered to hop on a plane and come to my rescue in Florida. I never accepted her offer—I was sure I could handle cancer all on my own—and so she stayed in Ohio where Amy, also an Ohio girl, welcomed her assistance. It worked out well this way.

Ericha helped Amy as she recovered from surgery, reconstruction, chemotherapy, and countless physical and emotional twists. She watched Amy’s kids—ages four and one at the time—and cleaned her house and drove her to appointments and selflessly assumed some of the burden drowning this young wife and mother who continued working as a nurse while managing a life with cancer.

“I quit my job,” Amy told me just after she announced her cancer had returned. She said she should have quit after her first diagnosis. She should have taken better care of herself. She should have played with her children, spent time with her husband, given up the chore of work. She would do it right this time, she said. She would crush cancer. She was sure if it.

I wrote and published a post about Amy on The Cancer Blog just after she told me how cancer had shown up in her brain and lungs, just five months after her chemotherapy for breast cancer ended. I wrote about my shattered hope, my fear this would happen to me, my complete and total sadness. And then Amy left a comment on my post. She wrote:

Jacki, I am not giving up. I will beat this again. Don’t you give up yet. I have Luke and Ella and they alone are worth fighting for. Just everyone send me your prayers and positive vibes. Quoting the cancer crusade couple, “Setbacks are a chance to pause and review the lesson of life.”

Amy, the one staring down death—doctors said she had two to 12 months to live—was comforting me. Amy, with her spunk and spirit, convinced me she would annihilate this evil disease. I believed her.

Amy lived for only five weeks after she wrote these words. Ericha called me with the news of her death just as I was leaving my house one Saturday morning to run in a race. I stopped in my tracks when Ericha told me—Amy passed yesterday—and I felt nothing but shock and sorrow for the duration of the run I struggled to finish. I finished for Amy, though. If she could fight cancer—twice—then I could surely pound out a few miles in honor of a friend whose face I never did see.

Amy and I talked about meeting at the beach with our families one day after we’d survived cancer for a few years. We dreamed of going on the Oprah show and proudly announcing our survivorship. We talked about a lot in our short 15-month friendship. What we didn’t talk about was that our situations really were very different. Perhaps we weren’t aware of it at the time. Perhaps we subconsciously chose to find common ground in the midst of our harrowing journeys, to ignore the fact that we were not traveling the same path at all.

Amy had a family history of breast cancer. I did not. Just after Amy completed her chemotherapy, her mother was diagnosed with the same disease that now has affected four generations in her family. Additionally, Amy’s tumor was slightly larger than mine, she received a different chemotherapy protocol than I received, she was not eligible for a year-long drug treatment I accepted to keep cancer at bay and because she had chosen the radical route of removing both of her breasts—I had a lumpectomy—Amy was not a top candidate for the radiation therapy that zapped me five days per week for seven weeks. She wondered if she should have demanded this treatment. She wondered if it would have made a difference in her survival.

The final and perhaps most significant difference in our diseases is that while Amy’s cancer, like mine, had not spread to her lymph nodes, it had found a way to penetrate her bloodstream and was spreading in a secret, silent, and deadly fashion. My oncologist, who dried my tears when I sobbed about the unfairness of Amy’s death, said some young women have a very aggressive disease right away. Amy was one of these women. I, apparently, am not.

There’s nothing fair about the way it happened, how Amy died just 15 months after a breast cancer diagnosis I have now survived for almost four years, how Amy died so quickly and I didn’t, how there is no cure for this mysterious disease that strikes far too many women and some men too.

Amy’s husband sent me an e-mail just after she died. He wrote:

You were a great inspiration to Amy. Your quote ” Fight the Good Fight” was front and center on our fridge. Please don’t let this news get you down, Amy would want your chin up, would want you to keep fighting. Thanks for all your support.

My chin is up. I am fighting. And Amy—thank you for your support.

Making Strides Against Breast Cancer

Yesterday, I ran a few miles, turned over a couple thousand dollars, and made some strides against breast cancer. My sincere thanks to those who contributed to my cause and came along with me on my run—see your name on my body? It’s there, somewhere.

Special thanks go to my three guys and my mom who keep life happy; Tracy, my sister, best friend, and running partner; Jack, my other best friend and photographer; Miriam, my friend and neighbor who joined us today, sporting a pink ribbon on her face and pink braces on her teeth; and Ms. Griffith, Joey’s teacher who walked and ran for me too.