my Breast Cancer blog

2004, age 34 — this is my story

Checking out my boobs

First, my boobs were squashed like pancakes in a digital mammography machine. They were squashed from the front and squashed from the side and when the squashing was done, I was called back for more. The doctor wanted to see additional images of my high-risk breasts, so the tender little things were flattened again, and again, so more shots could be snapped. It hurt, all that squeezing. It didn’t hurt as much as breast cancer hurts but still, it hurt.

Next was my ultrasound, a painless but messy test that involves loads of gel dripping from my breasts and a wand that travels every inch of skin in search of suspicious stuff. A few questionable areas popped up but were quickly dismissed. No breast cancer, according to that ultrasound. And the mammogram too.

A breast MRI rounded out my morning — I spent about an hour sliding in and out of a tube, IV in my arm, boobs dangling toward the floor through openings on a table, buzzing sounds blaring in my ears — and while I don’t yet know the results of this humbling experience, I am confident everything is A-OK. It has to be. I’m not sure I could handle it any other way.

The color pink

The other day, I took my kids for something to eat after school. We went to Moe’s, a southwest grill, and just after we’d parked, four women exited the restaurant. They were dressed in bright pink medical scrubs, which prompted Joey to ask what he always asks when he notices an obvious display of pink: “Is that cancer?”

“Is what cancer?” I asked.

“Are they cancer?” he replied.

“No,” I told Joey and then explained that (1) people are not cancer and (2) the color pink doesn’t always mean cancer. I told him the women we saw probably just work for a doctor, or a dentist, or someone of a medical persuasion. They must just like the color pink, I told Joey. He was happy with that.

The color pink has some true staying power in Joey’s world. For him, cancer and pink go hand in hand. They do for me too. And I suspect that for both of us, because of our dance with breast cancer over the past three years, they always will.

Funny how chemo does that

Funny isn’t the best word. It’s not really funny at all how chemotherapy messes things up. Interesting is a better word.

It’s interesting how I can no longer eat the food my sister brought me during each of my chemotherapy infusions. Tuna sandwiches from Panera Bread, gyro wraps from Pita Pit, and turkey sandwiches from Larry’s Subs will never again pass through my lips, because the last time I ate them, poison was sailing through my veins. Something about the combination of the food and the toxic solutions my body absorbed has permanently scarred some portion of me. It’s a repulsion, the feeling I have toward chemotherapy and the food I associate with it.

It’s no big deal that I’ve gone almost three years without these foods. There was nothing special about them, and I’m sure they weren’t so healthy for me anyway. Which brings me to these words of advice: If you’re about to begin chemotherapy, or you’re in the throes of it right now, consider eating the very foods you’d like to ditch from your diet. If your wish is to give up chocolate, or your favorite potato chips, or that high-calorie, high-fat treat you can’t seem to put down, this may be just the fix you need. Chemotherapy is one powerful force. It can kill cancer. It can kill cravings too.

I have hope

First I was diagnosed with breast cancer. Then a neighbor was diagnosed, then a friend from Ohio, and then another neighbor. Next came another friend and after her, my mom’s friend. Now another neighbor has breast cancer. She’s just had a mastectomy and is awaiting word on her prognosis and her specific treatment plan.

No one is immune to breast cancer. And sadly, the biggest risk factor for the disease is simply being female. This puts all women in the breast cancer lottery, and I know it’s just a matter of time before I learn that someone else I know is doing battle with this life-threatening disease.

Yes, breast cancer is everywhere. But so are survivors—which means this disease is beatable. I’m beating it. And of the six women mentioned above, five are healthy and happy. Amy, my Ohio friend, lost her short battle but still, surviving appears to be the norm. Thank goodness for that.

More good news: the longer a woman survives breast cancer, the greater the chance she will die of something other than the disease. It’s been just 18 months since my treatment ended and already, new and improved treatments and therapies are available. I’m confident if breast cancer pays me another visit, I’ll have an even better shot at conquering it than I did during my first go-round.

It’s all a matter of perspective, this cancer thing. Cancer can be dismal, and daunting, and of course, deadly. I like to view it through a more hopeful lens, though. You see, cancer can be controlled, and managed, even killed. And so this is how I will approach it. For me, it’s the only way.

About my hair

download.jpegJoey asked me about cancer last night before he went to sleep. I think it was an attempt at delaying bedtime—he often asks very serious questions at this inopportune time, knowing it will be hard for us to deny him an answer.

"Mommy, why did you cut off all your hair?" Joey asked just as I'd turned off his light and was making my dash out of the room.

"My medicine was making my hair fall out, so I cut it off before it all fell out," I told the boy who helped shave my head on February 5, 2005, just one month after his fourth birthday.

"Cancer made your hair fall out?" Joey asked.

"No, the medicine that killed my cancer made my hair fall out," I told him.

"So the medicine killed the cancer?" he continued.

"Yep, it did," I happily declared.

We went on to discuss my cancer at length. We talked about my operation, how I was sick, and about my scars.

"Can I see your scars?" asked little-brother Danny from a neighboring bed.

I showed Danny my scars, answered a few more of Joey's questions, and then slipped out of sight. My boys were sleeping peacefully moments later.

Perhaps Joey was buying himself some time by asking me about cancer last night. Or maybe he was really curious about my once-bald head, now covered by a mass of dark, wavy hair. Either way, it was my pleasure to talk with him about a topic that will forever be etched in our minds.

If Joey asks again to talk about cancer right at bedtime, I’ll honor his request—again. I won’t tell him that, though. It would be just the invitation he’s looking for in his pursuit of a later bedtime. Nope, this will be my little secret.

The 5K and more

I ran a 5K on my treadmill this morning. I love the sound of 5K. It sounds so much more accomplished than 3.2 miles. I’m all about accomplishment these days, especially when it comes to physical fitness.

In February 2007, study findings published in the Archives of Internal Medicine revealed that five hours of weekly strenuous exercise significantly cuts the risk of breast cancer recurrence. I think it’s safe to conclude that physical activity of this magnitude can help anyone wishing to achieve optimum health, not just those fearing a cancer return. So in the spirit of preventing another brush with breast cancer—and becoming as healthy as I can be—I jumped on the fitness bandwagon. And here I am, many months after this exercise news hit the media, running, and walking, and crunching, and doing whatever I can to keep cancer at bay. I’m also eating a cleaner diet, enjoying a leaner body, and trying to minimize stress. It’s the least I can do, I figure, if I want to live a long and healthy life. And I do.

The power of prevention

If you’re not convinced that the way you live your life is directly linked to your risk of cancer, you should read this. It’s a landmark report authored by the American Institute for Cancer Research (AICR) and the World Cancer Research Fund (WCRF), and it reveals this groundbreaking news: Excess body fat is now convincingly linked with cancer. So is the consumption of alcohol, red meat, and processed meat. Salt and sugar are no good either. But exercise is, and we’d be wise to get plenty of it if we wish to live long, healthy lives.

It’s taken five long years for all this data to come together. It’s taken nine independent teams of scientists from around the world and 21 international experts who analyzed nearly 7,000 large-scale studies to conclude what many have long suspected: Cancer is not all about genetics, family history, and bad luck. It’s about how we treat our bodies. Consider this: Body fat is linked to six different cancers—colon, kidney, pancreatic, adenocarcinoma of the esophagus and endometrium, and post-menopausal breast cancer. If that’s not proof we hold the power of prevention in our own two hands, I don’t know what is.

It’s time to take action, my friends and fellow survivors. Here’s how:

Recommendations for Cancer Prevention

1. Be as lean as possible within the normal range of body weight.
2. Be physically active as part of everyday life.
3. Limit consumption of energy-dense foods. Avoid sugary drinks.
4. Eat mostly foods of plant origin.
5. Limit intake of red meat and avoid processed meat.
6. Limit alcoholic drinks.
7. Limit consumption of salt. Avoid moldy cereals (grains) or pulses (legumes).
8. Aim to meet nutritional needs through diet alone.

Special Population Recommendations

9. Mothers to breastfeed; children to be breastfed.
10. Cancer survivors to follow the recommendations for cancer prevention.

This is for you, Bob!

joeyrace3.jpgToday, I ran two miles for Bob, my grandfather who passed away from cancer just recently. My sister ran too. And so did Joey, my six-year-old who announced just before the Gator Gallop—the kick-off to the University of Florida Homecoming parade—that he’d be racing. I think he liked the idea of pinning a race number on his shirt, and he loved the prospect of wearing a sign on his back stating, “This is for you, Bob!”

Joey made his own sign, with his signature first-grade writing, and he wore it with pride. Tracy and I also wore signs. John and Danny, not official racers, wore them too. We were quite a group, decked out in our orange construction-paper signs. And we got a lot of attention, Joey especially. You see, Joey amazingly—with no prior training or preparation—ran all two miles. When he crossed the finish line and plopped down on the curb to catch his breath, it was clear the guy had mastered a major feat—for himself, and for Bob. One passer-by came up to him and said, “Good job, buddy. I’m sure you made Bob proud.”

No one in the crowd of runners knew exactly why we were running for Bob. But we knew. We knew that when we finished our race in Florida, Bob’s funeral would be starting in Ohio. Our running was a tribute to him, our own kick-off to an event not as happy as a university homecoming but a ritual of sorts nonetheless. We thought it needed a proper introduction. And so we ran. It made us proud. We hope it made Bob proud too.

On the run

Tomorrow is the funeral for my dad’s dad, a 74-year old man who lost his short fight with esophageal cancer on October 28. In response to all death caused by cancer, I’m going to do what I do best: Run.

Ninety minutes before the start of tomorrow’s funeral in Ohio, I will begin running in a two-mile race in Florida. The run is a kick-off for the University of Florida’s Homecoming parade, and both my sister and I will pound the pavement while wearing signs on our backs in celebration of Robert C. Nicol, and his own homecoming.

Last year, I ran this same race just hours after hearing that my friend Amy had passed away after a 15-month journey with breast cancer. She was 35 years old. Just two weeks ago, I ran in my third Making Strides Against Breast Cancer event, for myself and every person who has ever done battle with such a treacherous disease.

When cancer takes a life, I feel it’s my duty—as someone fortunate enough to be alive—to do something. And that’s why I run. For Bob. And Amy. And myself. For everyone. It’s the least I can do.

Today

Today, I ran 3.2 miles in Gainesville’s Making Strides Against Breast Cancer event.

Today, I proudly branded my body with the names of those who generously contributed to my cause.

Today, I officially handed over $3,811 to the American Cancer Society.

Today, I was interviewed by WCJB TV 20 about my role as a breast cancer survivor.

Today, I was surrounded by family and friends.

Today was a big day, a day that comes just one month before I celebrate three years of survivorship.

My surgeon says that’s no small thing, surviving breast cancer for three years. He thinks I’m well on my way to a long and healthy life. I think so too.

Not my time

It wasn’t my time to die today. But it could have been. While driving to give a breast cancer awareness presentation for a University of Florida sorority, I drove through a traffic light, as is customary when the light is green. It’s also customary, as you know, to turn left on green, but only when there are no cars hurling in your direction. This morning, I was in the hurling car (truck, to be exact) as a little blue car turned right in front of me. We both must have been traveling at 40 miles per hour, so our intersection with one another could have been both forceful and tragic. Thankfully, the lane to my right was clear. So I veered as swiftly as I could in that direction while the barreling car sped behind me. We missed each other by a hair. And we were spared the misfortune that could have resulted.

I called John immediately after my near-collision to tell him two things. One: He was not meant to get a new vehicle just yet. You see, John would love something new. A brand new truck would be great. A Mustang GT would be even better. We toy with the idea of investing in something new but always fall back on what we have: no car payments. So it was a sign, perhaps, that the truck I drove today was not hit. We are meant to keep on driving the old thing. For now anyway.

The second thing I told John was this: Today was not my time. It’s a good thing. Because just 30 minutes after that blue car sent my heart racing, I was speaking with 100 young women and their parents about how I am surviving breast cancer. I simply had to be there to spread my message. Not surviving my trip to the presentation just would not have been acceptable.

I spoke about living in the moment at the sorority brunch I visited today. I mentioned the moment to my audience because of breast cancer. But I realize after today that the moment is important because of so much more than breast cancer. My near-car accident reminds me of this. There are so many forces at work that threaten our lives each and every day. Breast cancer is just one of them. And so now, more than ever, I know I must fight for my life while living each day as if it’s my last. It’s the only way, I think, to manage the unknowns in this world.

For now, I know one thing for sure: Today was not my day. And what a glorious day it was.

Beyond, for the last time

It’s been five months now since my mom and I returned from our Canyon Ranch spa getaway in Tucson, Arizona. I was sent by the editors of Beyond magazine to write about renewal after breast cancer (Canyon Ranch is all about health and healing and caters to survivors like me). and my mom went because I wanted her with me.

It was a grand trip. We got massages, pedicures, and facials. We ate delicious, healthy meals. We attended fantastic fitness classes. We hiked and explored and marveled at nature’s beauty. And when I came home, I wrote all about it.

My story has been published, and Beyond is now on newsstands. This third issue of the magazine is, sadly, the final one. The publication has been killed. The market wasn’t strong enough, the revenue wasn’t high enough, something like that.

Beyond
should be available in major grocery stores, Barnes & Nobles bookstores, and WalMart. Pick one up if you can. My story is on page 86, and the magazine is chock full of other inspirational and informational stories. Definitely worth a read, definitely worth passing on to the women in your life, definitely a tragedy Beyond will not live on.

Goodbye cancer, hello fitness

My days writing for The Cancer Blog have come to an end. The site is being retired, effective September 14, and so my thoughts will no longer be consumed with the disease that came barreling at me three years ago. Blogging about cancer for a year and four months was a great gig, and I truly believe I’ve somehow contributed to the world by informing readers about all sorts of cancer-related tidbits, both informational and personal. Still, I’m happy to move on.

I’m still blogging for pay, this time for a blog called That’s Fit. It’s about fitness, health, nutrition, and overall well-being. It’s right up my alley. Since May, I’ve been overhauling my own approach to diet and exercise (no sweets, no soda, low sugar, low fat, no red meat, and lots of fruits, veggies, and exercise) and so this career path suits me well. Plus, the content at That’s Fit is positive, light, happy, and has very little to do with cancer. It’s a refreshing change.

Come visit me when you can. That link above will take you directly to my posts. And keep stopping back here at my personal site. I intend to update it from time to time. Promise.

Third year, running

For the third year, I will participate in Making Strides Against Breast Cancer. It’s an American Cancer Society 5K event founded on the premise of raising breast cancer awareness, raising hope, and raising funds that may one day help land a cure for this dreaded disease.

Making Strides is an anniversary event for me. It takes place each October (October 20 this year) and comes just before the month of my diagnosis: November. So each time I conquer 3.2 miles, along with a crowd of others accomplishing the same feat, I reflect on having survived breast cancer for another year. It’s overwhelming, the feelings that rush through my body on these October days.

This year, in November, I will have survived cancer for three years. So I am preparing for my Making Strides celebration. Like last year, I hope to raise thousands of dollars. My goal: $4,000. Like last year, I will run the entire distance. Want to come with me?

Donate $25, your name goes on my leg

Donate $50, your name goes on my arm

Donate $100, your name goes on my back

Donate $250, your name goes on my face

Donate $500, you pick!

Click here to make a tax-deductible contribution. I will wear your name proudly with each step I take. And I will forever be grateful for your support in the fight against breast cancer.

Total achieved, August 18: $940.00
Total achieved, September 12: $2,290.00
Total achieved, October 6: $3,040.00

Total achieved, October 20: $3,811.00

Memories lost

As time marches on, I remember less and less about what my boys did as babies. I guess this is natural. My mom says she has no memory of her girls ever misbehaving, fighting, or challenging her in any way. Surely, we did. It’s mildly comforting to know I’m not alone, but my mom has had more years than me to forget. She is 60, and I am 37, and I worry that chemotherapy has burned some of the paths connected to my past.

While I can’t recall the specifics of what happened six years ago, when Joey was born, and four years ago, when Danny was born, I do have record of it all, thanks to my scrapbooks and the detailed journaling that fills its pages. Writing is a gift in so many ways.

In August 2003, I wrote about Joey:

He talks a lot about the big guy. We are not sure who the big guy is but sometimes when we say “no”to one of Joey’s requests, he says, “The big guy says “Yes.’”

I barely remember this.

When Danny was a baby, I wrote that he cried every time we rode in the car. Once the car stopped, he smiled. He smiled all the time, I described. He was such a happy baby. This memory escapes me.

There are still moments that are fresh in my mind, like when my mom noticed Joey’s runny nose and asked him if he needed a tissue. “No,” he replied. “I have a long-sleeve shirt.”

I remember when Danny grabbed my hot curling iron with his nine-month-old baby hand, how he cried, how I took him for treatment every week for weeks and weeks, how guilty I felt for allowing the cord of this appliance to dangle off the bathroom counter, right where he could grab it.

I don’t remember Joey’s phrase, “OK, cowboy!” or how Danny bounced endlessly to music while his big brother danced his little heart out. Maybe chemo is slowly killing my brain. Maybe this is just what happens as time passes and experiences stack one on top of the other. Maybe it’s just not possible to store all that’s happened in the six years since I’ve been a mom. That’s what I prefer to think, anyway.

Recalling chemotherapy

Two fierce forces are plaguing me at this very moment. They have been for one entire week.

It doesn’t seem to matter that it’s been two and half years since the last drops of toxic chemotherapy drugs made their way through my veins, hopefully putting a halt to any cancer cells trying to divide and multiply throughout my body. Still, all this time later, they can be recalled and can continue to poison me. That’s exactly what the force of chemotherapy is doing to me: it’s poisoning my skin.

The force of the hot Florida sun is chemotherapy’s partner in crime. When the two interact, my skin suffers. My dermatologist calls it UV Recall. She explains it like this: the sun has the ability to recall the toxicity of the chemotherapy drugs, even years after treatment, causing a severe reaction on my already-sensitive skin. Severe is no understatement. My skin is a mess.

Our family of four went to the beach last weekend. Despite my efforts to stray from the sun, I try with all my might to prevent skin cancer after years of basking in the dangerous rays, I still got burned. I was slathered in sunscreen, sat under an umbrella, and made only two brief appearances in the sun, once to cool off in the pool; once to walk on the beach. Somehow, though, I ended up with not only with a sizzling burn but with small little bumps all over my chest.

The bumps are nothing new. I’ve had them three or four times before, each time a result of the sun. They start small and cover a defined area of my body, then they spread, burn, itch, cause pain, and drive me virtually crazy. That’s what they’ve been doing for the past week. Today, they are just beginning to fade. Relief is in sight.

I’m not sure what I’ll do about future visits with the sun. Sunscreen obviously doesn’t work. It seems completely ineffective in fact. And seeking shade doesn’t always prove wise either. Trips to the beach? I’m not interested. Extended periods of time outdoors? No thank you. I think my last resort is to invest in some good ultraviolet protective clothing. I may end up covered from head to toe but as long my skin is safe in all areas in between, I’ll be happy.

Tonight as I tucked four-year-old Danny into bed, he said, “Can I feel your bumps?” There’s no missing them, and Danny has been an attentive observer of my growing rash. He’s watched them as they’ve appeared on my arms, legs, tummy, and back. “Yes, you can feel them,” I told him and so he proceeded to run his little fingers over the bumps, now dried-out and flaking. “Ewwww!” he exclaimed upon feeling their coarseness.

My sentiments exactly.

Ewwww!

A sensitive soul

Sometimes, six-year-old Joey is a little rough around the edges. Just the other day, after I told him he couldn’t do something, he told me he didn’t really like living in our house. On occasion, he’s told me he doesn’t love me anymore. When he was younger, he’d declare, “I’m not your mommy anymore.” I’d tell him, “OK, that’s fine” and try to move on and tuck away my hurt feelings. Joey always recovers after his stern declarations, though, and then out pops the sensitive soul I know so well.

The other day, Joey took a bad spill on his scooter. He hit a bottle cap in the street and scraped his long, lean body across the pavement. He wasn’t wearing much, only shorts and flip-flops, so he was left with cuts on his hip, elbows, knees, tummy, and knuckles. He cried, no, screamed and pleaded for someone to make him better. I tried. I put him a cool tub and let him soak his wounds. I gave him Ibuprofen for his pain, helped him find clothing that wouldn’t rub his sore spots, and allowed him to snuggle on my bed in front of the TV, even though it was nearly bedtime. He asked for a blanket and when I told him to use my quilt, the one friends made for me during my breast cancer treatment, he looked up at me with a somber a face and said, “But mommy, that’s your special blanket that your friends wrote on.” My friends had written inspiring messages on the patchwork of the quilt, and Joey was worried his boo-boos might dirty what he knows is one of my favorite possessions. I let him use it anyway. It fared just fine.

Joey and Danny love to sing in the car. Sometimes I join them, like I did a few days ago. I’m not sure what we were singing at the time but as we pulled into our garage, we decided to stay put for a few minutes so we could finish belting out our song. As we were finishing and I was turning off the car, Joey said, “Mommy, you should be on the stage. Your voice is beautiful.” No one has ever told me that before, probably because my singing voice is not really good at all. Still, Joey’s compliment sent my heart soaring. What a guy.

Joey is a sweet boy. He tells me my hair is pretty, even prettier than it was before cancer, he says, and that I am nice to him and that he is so glad I’m his mom. I tell him it’s my pleasure to be his mom. He tells me it’s his pleasure I’m alive after cancer.

I think it’s best to take parenthood one moment at time. If we don’t like what’s happening during one moment, we should simply let it pass. Because what happens next might just warm our hearts, lift our spirits, and validate all we do in our demanding jobs. It works well for me this way. One moment at a time.

Not like school at all

After his first day at Camp Invention, Joey told me his day was full of fun and playing. “It’s not like school at all,” he told me with a smile smothered across his six-year-old face. “Yes,” I thought to myself. He likes it. I wasn’t sure he would. He’s my tentative kid, the one most suspect of all new things. Danny, on the other hand, just goes with the flow.

Four-year-old Danny went to a local zoo today with his summer camp program. He’s never done anything with anyone other than family so this is a big deal. Simply going to camp on his own is an accomplishment. The successful zoo trip really makes me smile.

“We saw peacocks,” Danny reported just before dinner tonight. “They spread out all the feathers on their back. We saw a fat alligator too.”

“Was it hot outside?” I asked him. Danny tends to whine when we’re outside in our 90-degree Florida temperatures for extended periods of time. “I was hotter than the whole wide world,” Danny declared. Still he survived, had fun even. I am so relieved.

My boys are doing great during their time away from home. I’m doing well too. I’m exercising every morning, all by myself, for as long as I want. I’m taking showers in peace and getting ready at my own pace. I’m writing, tinkering, lunching, shopping, and soaking up every hour I have free of chaos and conflict. And then I’m rushing to pick up my boys, sometimes a few minutes early, because another moment without them would just be too lonely.

The three of us are surviving our test run with ease. I think we’re thriving too. No, wait, I know we’re thriving.

About to hit a milestone

On Monday, our family will embark on a trail we’ve never before traveled, one that will carry us through many joys, challenges, and years. When our journey comes to an end, our boys, now six and four, will be teenagers. It will be a long road. And one I suspect will go so very quickly.

Our adventure has been six years in the making. And now it is time for both boys, simultaneously, to leave the comfort of home for the world of school. Now this is just a test run. It will last for one week. Joey will go to summer camp at his elementary school, and Danny will go to summer camp at the site of his future preschool. At the end of the week, we will resume our at-home summer activities. But first, we will all learn what it will be like when August 20 rolls around, when Joey goes to first grade, Danny goes to Pre-K, and I come to terms with my empty house, with my changing role as stay-at-home mom.

What ever will I do with myself for this one week? I may get a pedicure with a gift card I’ve had since Christmas. I may get a massage. I may go shopping with my mom. I will revel in silence, cheer at the absence of squabbles and screams, eat in peace, and marvel at how my house can stay clutter-free for hours at a time. I will write for The Cancer Blog, for Gainesville Parenting magazine, for this blog and I will practice what I will do full-time when that August day arrives. And life changes for good.

As much as I will enjoy the pampering, the quiet, the solid chunks of time carved out just for writing, I think somehow this won’t measure up to what I’ve been doing for the past six years. You see, I consider myself lucky to have had the opportunity to stay at home with my babies. It’s been an honor and a blessing to witness all they’ve accomplished. It will be hard to say goodbye.

Luckily, I will remain at home. I will drop my boys off at school and pick them up when each school day is complete, and I will devote my afternoons and evenings to my favorite guys. I will do it again and again, day after day. I’m confident it will be a happy trail. Once we all get accustomed to the new terrain.

Letting go

I’ve been writing about cancer ever since I started this blog in December 2004. Nearly one month after I was diagnosed with breast cancer, I began journaling my experience. With each cancer twist and turn, I wrote. I wrote to communicate with friends and family, to reach others, to cope. After a while, I wrote for editors who offered me money for my words. I’ve been earning money off this whole cancer gig for more than a year now. It’s my new career, this writing thing, and when my little boys are both in school come August, I will spend my morning hours tucked away in my cozy home office, writing my little heart out. I will still write about cancer. But I also plan to write about other topics. After all, there’s more to me than cancer. I want to branch out.

I’ve taken my first step toward a new writing genre. I’ve chosen parenting as a topic. It’s one I know well and a good distraction from all things disease-related. So I’ve volunteered to write a monthly column for my local Gainesville Parenting magazine. My first columnThe Art of Letting Gowas published in the July 2007 issue. I just picked up a copy today. I flipped instantly to the very back page, and there was my name, my article, a photo I’d submitted of my oldest son, Joey, picking pretty purple flowers in a field. It looked great. And for the first few paragraphs, it read great too. And then I stumbled upon a change made to my words by the editor. Mostly, I don’t mind when someone edits my work. My uncle, a writer himself, once told me that someone else can always make our work better. I try to remember this. And so I didn’t mind that she cleaned up some of my wording here and there. What I mind is that she placed two extra words in a sentence that changed the whole tone of my story.

My story was about letting go, about giving up extra commitments and responsibilities so that I could spend the summer just being with my boys. No imposed structure, no timelines, no forced fun. Just the three of us, doing what we choose, free of boundaries. I introduced my message with a reflection of something Joey said when he was just three years old (now he’s six). It went like this:

One day long ago, Joey, three at the time, asked me, “Where’s daddy job?”

“Daddy works in an office,” I told him. “He goes away to work, and I stay home with you.”

“Joey’s response was prompt and powerful: “I want you to go away to work. I want daddy to stay home.”

Joey didn’t get his wish. His daddy still works in an office, and I stuck with my at-home job until life became more complicated and my responsibilities began mounting.

Here is what happened: the editor changed “I stuck with my at-home job” to “I was still stuck with my at-home job.” Call me crazy, which the editor just may do once she reads the e-mail I sent her addressing my concerns, but these two words say to me that I feel stuck in my job as a stay-at-home mom. I wanted my words to say that I kept at my job, I continued it, I remained an at-home mom. I have never felt stuck. And I’m sad my column comes off as such. I’m sad readers may get this impression. I’m sad that I don’t want my kids to see this column. I’m sad my very first non-cancer story came off with such a negative spin.

In the spirit of my “letting go” story, I plan to let this go. It’s the only healthy strategy, really. I have no control over what’s been done and all I can do is try to ensure it doesn’t happen again. It’s not a life and death matter. Therefore, I can move on and let this fade into the background.

Yes, writing helps me cope. And I feel better for having simply written about this.