Raw October: raising breast cancer awareness — one fact, figure, feeling, and photograph at a time.
No one gives better breast cancer advice than survivors. Keep reading, and you’ll see what I mean.
Katie: Get “wigged” out — find a wig that matches your personality and have fun with it! There’s no other time in our lives when we can have a blonde pixie do one day and long flowing brown hair the next.
Kimberlee: Always take someone who is emotionally strong with you to your first few appointments. You will be inundated with information and will most likely be too overwhelmed to remember everything. Taking someone with you who can jot down pertinent information, while remaining a shoulder for you to lean on, will be extremely helpful.
Me: If you need chemo, get a port — this prevents multiple needle sticks in arms and hands — and purchase a numbing cream for the skin on top of the port, unless, of course, you have a high tolerance for pain, which I do not.
Sue: Ha! I got the numbing cream too! My advice . . . if you’re not confident in your doctor or have hesitation, switch doctors. I stayed with my first onc for 4 months. After chemo and some iffy blood work, she believed the cancer came back. We got a second opinion and saw an onc who ordered the biopsy needed. It came back negative. My first onc was ready to have me do six more months of chemo. Guess which Dr. I still see, 8 years later?
Tracy: Let people help you. Give them the direction and approval to do so. Friends and family need it as do you.
Lisa: Wish I’d known about numbing cream — those port insertions hurt, and the regular nurse didn’t understand why I didn’t want to draw my counts from the port but use my arm instead! I usually drink lots of water but couldn’t because of the taste in my mouth — crystal light lemonade cut through the bad taste and helped me!
Amy: I’ve learned that everyone is different even if you have nearly identical diagnoses, so try not to compare treatment plans and try not to worry if something that worked for someone else doesn’t work for you. And drink a ton of water on the day of chemo before it starts to taste nasty!
Tina: Even though your world has just been turned upside down, nothing seems to make sense, and you feel like your world has just become filled with nothing but Dr. appts. with many different doctors, hospitals, surgeries, procedures, chemo, radiation, etc., etc. and life seems like it will never be the same, it does get better. I know it took me about 2-3 years after I was diagnosed to just feel like ME again. I was terrified I would never feel like me again, but I do. I have a new appreciation for the little things in life, and I don’t take anything for granted anymore. It made me a stronger person.