Guilty of Overshare

I am pretty sure I overshare.

An oversharer, from what I gather from a variety of sources, is someone who divulges more information than is necessary. The info-share is usually marked by intimate, gross, and disgusting life details, typically broadcast in writing where anyone can see them—you know, like on Facebook, Twitter, and blogs.

I tend to blurt out my personal details, which most always have a medical undertone, because (a) I think that what I publish can help others (case in point: this blog, where hundreds of people visit each day for information about breast cancer and a reminder that people, like me, do survive the disease, even after harrowing experiences) and (b) I know that what I publish helps me (case in point: this blog, where, over the span of almost eight years, bunches of well-wishers have lifted my spirits and led me to resources for better living.

Oversharing is probably expected on a breast cancer blog, where details and graphic photos (like the one of my boobs all marked up and ready for radiation) are key for raising awareness. Lately, though, my tendency to overshare has funneled over to Facebook. Here’s what I wrote today:

For those who love a good medical update — A dose of propofol (yes, the Michael Jackson drug), a tube and camera down the throat, a biopsy of a few parts, a groggy wake-up, and now I’m home. Findings are as follows: gastritis, duodenitis, hiatus hernia, and some iffy mucous in pancreas. Next up: MRI to investigate pancreas thing + a follow-up with doc to determine course of action. The good news is that my esophagus and cardia (the opening that connects the esophagus and the upper part of the stomach) are normal. Well, that’s good, right?

Some people would never dream of such a share. I’m an open book though, so it doesn’t phase me to tell you that I suffered a miscarriage 12 years ago, that I vaginally delivered two bigger-than-10-pound babies (reason for some current pelvic issues), or that my tummy (which was “tucked” to remove excess pregnancy skin) is so troubled that I ended up with an endoscopy today, and I am a little worried about what might come back in the pathology report.

Oversharing is just part of who I am. And I hope that one day, maybe, what I so freely spout out helps you, or helps me, and if you hate that I tell you everything you never wanted to know, just steer clear of this blog and my Facebook page, and you’ll stay happily in the dark.

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$3 to Save the Boobies, Score a Button

Teather Sanders wants to help save second base, but she needs a little help. I could tell you all about her hopes, dreams, and entrepreneurial spirit, but I’ll let her do that. Take a peek at the cute and clever video featured below, then read the story behind her desire to make a difference. (In a nutshell, a donation of $3 helps Teather reach a goal and gets you a boobie button of your choice.)

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LympheDIVAs Compression Sleeve (GIVEAWAY)

I have a compression sleeve. I just don’t wear it much—mostly because I’m not at high risk for developing lymphedema, but also, I think, because the thing is sorta scratchy, and it pretty much blends into the corner of my closet withs its flesh-colored boring-ness, and, so, I usually forget to wear it when I mow the lawn (which, to be honest, is rarely) or when I travel by plane (which I hardly ever do). I’ve got to tell you, though—I’m pretty sure times are gonna change.

I just received a new fancy, schmancy sleeve from LympheDIVAs—a small, family-run company that provides fashionable, medically correct compression garments for upper extremity lymphedema. Lymphedema in breast cancer patients is manifest as swelling that can occur when a sentinel node or a number of lymph nodes are removed or when the nodes receive radiation therapy. Having a sleeve on hand is key—it’s one of the tried and true therapies for lymphedema. Now that I have my newbie, I’m thinking it might become more fashion accessory than cancer-surviving burden.

There’s a great story behind LympheDIVAs: The company was founded in 2006 by three inspirational women, two of whom had lymphedema themselves. One of these women—Rachel Levin Troxell—pushed that hot, thick, itchy, beige compression garment option into the shadows by launching some comfortable, breathable, aloe-vera infused, and fashionable arm candy. Seriously, isn’t my arm beautiful?

Sadly, Rachel passed away in 2008, but her creation lives on, thanks to her dad and brother, who are working to fulfill Rachel’s mission to bring lymphedema awareness to the breast cancer community and beyond. Thanks also to Anna, the designer of all the beauty—the same Anna who is GIVING AWAY one sleeve and one gauntlet to one lucky reader.

Ready, set, enter to win:

  • Browse the LympheDIVAs online shop and pick out your favorite pattern; leave a comment naming your fave.
  • Leave your comment no later than 5:00 p.m. EST on Thursday, July 26, 2012.
  • You may enter only once.
  • Open to legal residents of the 50 United States and the District of Columbia, who are 18 and older.
  • One winner will be selected in a random drawing via random.org.
  • One winner will receive one sleeve and one gauntlet in the pattern of her choice. Gift valued at $153.
  • Winners will be notified by email, so make sure to check next week to find out if you’ve won!

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Grace Under Pressure

I’m tempted to use this space to moan and groan about a recent medical condition—not cancer and likely curable—that has me feeling pretty bummed. But I can’t bring myself to publicly mope because I am not very sick, really, and when I think about it, never have I been really sick. Not when I think about my new faraway friend Lauren, who blogged today about true sickness. Lauren, a breast cancer survivor, is battling leukemia, and the fight is really taking a toll on her body. She is sick.

I once thought I was sick. That time chemo kicked the crap out of me and left me all dizzy and light-headed and almost incoherent, with low blood counts and the need for hospitalization (twice), a blood transfusion, and some growth-hormone-type injections—yea, that was pretty convincing. But considering what Lauren is enduring, that wasn’t sick.

I had jury duty recently, and an attorney asked me to define “grace under pressure.” I told him, “it means maintaining a sense of calm in the midst of a difficult situation.” What I wanted to tell him is, “Lauren.”

Lauren is grace under pressure. If you read her story, I think you’ll agree, and I’m pretty sure you’ll be inspired to live strong, in sickness and in health.

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Cancer Is Relevant

"Relevancy" — Jason Arnold — http://redbyrd.tumblr.com/

Says the artist about his iPad sketch, “Relevancy” is about how words are taken for granted until something urgent happens.

For me, cancer was just a word — until it crashed into my world. Now, the word has relevance in everything I do.

What word have you taken for granted that now has relevance?

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Eight Birthdays After Cancer

I remember prom like it was yesterday (I think my date probably remembers, too, considering the display of my way-too-big boobs in that white strapless dress), and now, somehow, today is birthday No. 42. Gosh, the time has just disappeared. So have the big boobs, which were reduced in 1996. Funny things, those boobs. They tried to kill me. That was back in 2004. Now, it’s 2012. Eight birthdays since cancer. I love that.

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Tummy Troubles Linked to Chemotherapy

About a year ago, I went to see my OB/GYN for bloating, cramping, and pelvic pressure. I was sure I had ovarian cancer. I didn’t. My doctor sent me to a internist. She tested me for celiac disease. Nope, not that, either, although I did follow a gluten-free diet for a couple of months thinking maybe it would help. It did not. There were other tests I could have taken — one would track an egg moving through my body — but my tummy troubles subsided, and so did my pursuit of an answer.

Eventually, the discomfort came back, then it went away, and this has been the pattern for quite some time now. If I eat healthy, my stomach sometimes hurts. If I eat junky, my stomach sometimes hurts. Often, the pain is so great it makes me want to cry, and at night, I curl up in the fetal position and will myself to sleep. I usually feel better in the morning. To try to cure myself, I’ve played with what I eat and how I eat. I’ve found some recipes that soothe my system — my favorite is a brown rice cake with peanut better and sliced red grapes on top — and I’ve eliminated a few items I believe were twisting up my insides (lettuce). Still, although I can go weeks without symptoms, they always sneak up and cause me at least a day’s worth of sick. This is why I contacted the internist again. She referred me to a GI specialist. I saw her today.

My new doctor believes the culprit might be chemo drugs, which could have mucked up my system. Antigen was the word the doc threw around, and she has ordered a bunch of blood tests, plus a surgical procedure to take a biopsy of some of my intestines and stomach. I will also submit to another test, which will hopefully explain some issues that might be related to my big ‘ol babies (10 pounds, 9 ounces and 10 pounds, 2 ounces). They probably did a number on my pelvic health, my GI friend said, so this test will help investigate further.

I went to the doctor today hoping she wouldn’t just throw meds my way in an attempt to mask what’s going on. She didn’t. For that, I am grateful. She wants to locate the cause of my complaints — I like that. I also went to the doctor today in no way suspecting cancer treatment might come up the guilty party. I’m not surprised, though, because cancer never really goes away. It might not be threatening my life right now, but its presence is always with me.

Beating cancer is half the battle. Living with its aftermath is the other half.

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Dr. Susan Love Diagnosed With Leukemia

I’ve been following Dr. Susan Love‘s wisdom ever since I was diagnosed with breast cancer in 2004. Her book was the first I’d consulted in search of answers to scary questions, like,  “What are my chances of living long enough to see my little boys grow up?” and “Can I have more babies after breast cancer?” and “Why did I get this crappy disease, anyway?” She told me that I had a pretty good chance of surviving, that many women do go on to have kids after breast cancer, and that given all the details of my personal history, I was likely just a random victim of cancer. Now, the woman who taught me so much has been diagnosed with leukemia. She tells her followers she will receive treatment over the next few months, and she fully expects to rise above this challenge. The business of understanding breast cancer will go on at the Dr. Susan Love Research Foundation, she declares, and she welcomes well wishes from anyone who wants to send some her way.

Be well, Dr. Susan Love!

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my Breast Cancer blog — A Redesign

I like to change things up now and then, and I love, love, love simplicity. That’s why I’ve launched a little redesign of this blog. It’s pretty plain, I know, but I kinda like that. I don’t like clutter and scatter. Minimal makes me happy, and if you could see my kitchen counters, you’d know what I mean (they are pretty bare).

I’m also a fan of how readers can easily scroll headlines in this new format without viewing a post in its entirely. Just read a small snippet of a story, then click on your desired title to roll out the whole story. Or course, you can also search topics under My Categories on the right-hand side of the screen.

Crisp and clean is my goal when I write, edit, and create, and I think this site delivers — do you?

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A Little Piece of My Cancer Story

I was interviewed recently by a writer at Healthmonitor for the new Guide to Chemotherapy. It’s the kind of mini-magazine you’ll find in a doctor’s office, so be on the lookout because you just might spot the glossy guide while you’re waiting, waiting, waiting to see your medical people. The 36-page publication (which is free, and you can grab one for home) is filled with so much wisdom — chemo questions are answered, side effects are addressed, nutrition is covered, date nights are encouraged, and there are two pages devoted to a piece of my story. The article, called “Circle of support, chain of love,” is about my blogging (and my wig sharing), and if you wish to read just a bit of my almost-eight-year-long journey, this is your chance. Just click, navigate to pages 22 and 23, then read.

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I’m Just Editing

I know I’m not around here much anymore. I apologize if you keep coming back hoping to find new content and inspiration. It’s just that I’ve been working, and, now, I spend much of my time over at Just Edits — my new-since-March one-stop edit shop, “where you hire me to clean up your copy, and I teach you tips and tricks sure to make you look super smart.” Please bookmark me at justedits.org, and stop in anytime — you won’t find much in the way of breast cancer material, but I will tell you exactly how to use periods with closing quotation marks and how to properly place apostrophes for last names that end in sCome “Like” me at Facebook, too.

Breast cancer — important stuff, yes, and I promise to come back when I’ve got meaningful stuff to say. Proper grammar — pretty important, too, I think, and that’s why I’m making a career out of correcting the written and spoken mistakes of the world. Well, some of them, anyway.

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The Hair Hits the Road

It’s been on my head.

It’s been to Melbourne, Florida — twice.

It’s been to Akron, Ohio.

And off it goes now to Vienna, Virginia, where newly diagnosed Michelle will wear this wig once chemo takes full effect. Michelle, just now recovering from a mastectomy, is a married, working mom of two little boys, ages 1 and 4.

Michelle found me via this blog and reached out to ask some questions — several of which were about hair. She liked the look of my “underhair” — cotton on top, human hair around the sides, meant to be worn with hats — and she was thinking of getting such a cover-up for herself. No sense in that. I have a perfectly good one crumpled up in a box in my closet, I told her, and I pleaded that she let me send it to her. She accepted, so I shampooed, conditioned, dried, flat ironed, and topped with a bucket hat. Next, I’ll box it up and mail it off. She should have it in a few days, just in time to bring her some comfort before her own blond hair is gone.

Gosh, this hair tells such a story — I ordered it because I’d tried on a few traditional wigs, and the way they framed my face screamed, “She’s wearing a WIG!” Desperate to look like my own normal in the midst of cancer chaos, I loved the thought of a ballcap on top of hair that looked real. A hundred bucks (plus) later, I had in my hands a perfect solution — the not-scratchy, cottony-soft, blond-like-my-own-hair fix that was so believable a neighbor once commented on how great it was that I had not lost my hair. I attribute the facade to the human hair, the perfect shade of color, cut to just the right length, and looking fresh and clean and bouncy thanks to the recommended Frizz-Ease products.

This wig, which ironically looks nothing like my hair now (chemo can change the color and texture of hair), brought me peace when my world was crumbling.

I think it will do the same for Michelle.

And for whoever is in line next to her.

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