my Breast Cancer blog

2004, age 34 — this is my story

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Bald Isn’t Bad Forever

If cancer ever forces you to lose your hair, you will probably be devastated, like I was.

But, in time, you might like the benefits of bald.

Like no shampoo; no hair drying, curling, flattening; and no time at all to get ready in the morning. (No shaving or eyebrow tweezing either.)

Not that you won’t love it when your hair returns, but bald isn’t the worst thing forever. Just in the beginning.

Borrowed Wig Back Home

"Underhair" from www.hatswithhair.com

It makes me happy to send off my wigs to friends in need, but it makes me happier to get them back — not because I need a cover-up (please, let me never lose my hair again!), just because it means those once lost in cancer crises are all done covering their bald heads. Sporting their new sprouts, they box up the blond locks and return to sender.

Back to my bedroom closet goes this hair — until someone else needs it.

(Thank you, Tina, for your sweet note. I am so thrilled by your progress.)

For the Love of Hair

Photo by Joey, 9 years old

I love my hair!

I’ve long had a love affair with hair. My mom suspected it the moment I got my first Barbie doll and started cutting away, and she was convinced by the time I owned a whole score of dolls, all with the same short styles. My intention was always to make Barbie more beautiful and stylish than ever. How she ended up looking more like Ken, I’m not sure.

I got better at my art as time went on. I mean, I knew a good pony-tail when I saw one, and that’s because I rarely saw one on my own head. My mom just never could get the hair smooth enough and perfect enough, and forget about two matching ponies — the part was forever zig-zaggy, and I always felt lop-sided, with more hair on one side than the other. This motivated me to master my craft, and I practiced on any head of hair I could get my hands on — sister, friends, sister’s friends, friends’ kids — and whenever I got to see my grandma, we practiced the French braid. It became my signature thing, and my best friend Kim always had a beautiful braid or two when she ran up and down the basketball court in high school.

When I was old enough, I enrolled in a high school Cosmetology program, and I spent my junior and senior years prepping to pass the Ohio State Board exam. And I did, which means I got my very own license to do hair. I still have it. It’s not valid in the state of Florida, and I never did keep up with continuing education or anything, and I don’t really broadcast that I have it, because I don’t want to do anyone’s hair anymore (well, except for family, and, of course, French braids for little girls). I just keep it in a drawer by my bedside — right next to my one remaining Barbie doll, whose hair I never did cut. It’s long, blond, curly and just as it should be.

My point in telling you this story: I love hair, especially my own. It’s because I spent a fair amount of time without hair that I adore it so. And on days when I sit in hair salons, looking at every strand that pours from my scalp, I realize just how important hair really is. Look at the industry built around it and the time we spend washing, conditioning, curling, straightening and coloring what we’ve got. Consider the moods that are born of bad-hair days, the celebrities whose hair we copy and the styles that will go down in history (’80s hair, the Mullet, the Mohawk my 9-year-old wants so badly).

OK, so hair is not everything, and if I had to go bald for the rest of my life to ensure I’d never, ever get cancer again, I’m pretty sure I’d do it. Still, I think you know what I mean, and that’s why I share with you my hair (above). I just got it cut today, and, well, I love it.

Comfort From a Boy

Writer Abigail Thomas offers in her book “Thinking About Memoir” the following writing exercise: Write two pages (one post) in which a child comforts an adult.

That’s easy.

The child was Joey. The adult was me. And it happened in February, 2005, one day after I realized my hair was shedding from my scalp faster than I could say chemotherapy. It had been 13 days since my second treatment with the toxic breast cancer drugs Adriamycin and Cytoxan, and not a rubber band nor a hat could hold my wisps in place. My scalp was sore, each hair still attached to my head hung with a weight that was nearly unbearable, and it had become abundantly clear that the moment had arrived: It was time to shave my head.

“Don’t worry, mom, you’re not going to die,” announced my almost 4-year-old boy, who was taking his turn shaving away the last of my chemo-stricken hair. “It’s only a haircut,” he assured me.

Whether he knew it or not, Joey was absolutely right. It was only a haircut. I didn’t die. And while some of his comments during my years fighting breast cancer weren’t as comforting — “You look like an alien,” he revealed while visiting me in the hospital in March of that same year — this is the one that still brings tears to my eyes, because, well, it was innocent, it was real and most of all, it was damn comforting.

joey-shaving-head-400jd0708

The child, almost 4 years old

The adult, 34 years old

This post can also be found at Braving Boys.

Look Good … Feel Better

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The toughest part of my dance with breast cancer was losing my hair. Seems crazy, doesn’t it, that a tumor was living in my body, threatening to take my entire life away, and I was worried about my hair. Yea, crazy. I know that now that I’m alive, probably because the same drugs that left me bald also wiped out a treacherous disease. Still, it’s heartbreaking to lose a headful of hair. Even Farrah Fawcett, who is courageously fighting her own cancer battle, hung onto her famous hair for as long as she could, only succumbing recently to the toxic hair-stealing chemotherapy drugs.

The reality of cancer treatment is that many people will lose their hair. And lots of them, like me, will determine it a tragedy. That’s why the Look Good … Feel Better (LGFB) program exists — to help women face the challenge of a lifetime. LGFB (organized by the American Cancer Society) offers workshops to help cancer survivors feel better. I attended one, and I learned how to draw on eyebrows (yes, chemo takes those too), apply make-up on blotchy skin and cover my head with wigs and scarves. I went home with my very own cosmetic kit, matched to my skin tone, and I met a whole bunch of women walking in shoes that were much like mine. LGFB also offers one-on-one consultations, self-help materials and a 24/7 toll free information and help line — 1-800-395-LOOK.

Take advantage of LGFB if you can. And suggest it to any loved ones who might need it. And do you know of any survivors who deserve to win a trip to NYC (you, maybe)? Check out this contest. LGFB is celebrating its 20th anniversary by searching for five Women of Hope they can pamper with a complimentary make-over and a trip to the annual DreamBall, a black-tie gala and the program’s largest annual fundraiser.

By the way, that’s Nancy up top. She’s a LGFB participant. Doesn’t she look good?

Bald

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I haven’t been watching much of “Grey’s Anatomy” lately, but I do know that Katerine Hiegl’s character Izzie Stevens has cancer, so when I caught tonight’s episode, I was somewhat prepared for the storyline. What I wasn’t prepared for was my reaction to the end of the show, when Izzie pulls fistfuls of hair from her head.

She cried.

I cried.

I cried big, sobbing tears, because even though I am almost five years removed from that same helpless, hopeless feeling, it was still there, right in the pit of my stomach, waiting to be called up.

My cancer memories are vivid. Every one of them. But nothing is as vivid as the feeling that suffocated me the day my hair started falling out, when it washed from my head in the shower and gathered in the drain, and wound around my brush, and then covered my pillowcase when I woke up the next morning.

“That was the worst,” I told my husband as “Grey’s Anatomy” ended tonight and Izzie sat in a hospital bed with a completely bald head. “You survived it,” John said. Yes, I did. But I’ll never forget it.

What Breast Cancer Looks Like – Tracy

Tracy says, “I decided to shave my head before my hair started falling out.  I asked my family and some friends to come with me so that I wouldn’t lose my nerve.  It was an extremely emotional day for everyone as you can see from the picture of my husband and children.  But what I found out in the end is that I still looked like me when I looked in the mirror and once I accepted it, my family did the same.  One of my favorite pictures of all time is the picture of my newly shorn head with the hands of my husband, my mother and my two children on it.  I think it shows strength and acceptance and that has been the story of my breast cancer journey.  Strength from family and friends, strength of my own and acceptance that these are the cards we were dealt.  I have recounted the entire head-shaving day on my own blog and find that it is one of my favorite entries.”

To read more about Tracy and her inspiring journey, visit her blog here.

Want to show me what you think breast cancer looks like? Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.