Posts Tagged ‘Chemotherapy’

Hair Loss: How Did You Handle It?

Wednesday, June 23rd, 2010
Photo: "passamanerie", Flickr

Photo: "passamanerie", Flickr

It’s got to be one of the hardest things about cancer — hair loss! And I know my friend is hating the idea of being bald, just like most of us do, but still, she is handling it with such grace. Her technique: she cut her very long hair very short in anticipation of the big fallout. I like her approach, which is so totally different than mine.

I kept my very long hair around until the very last moment. I think I wanted so badly to not lose it, that I fought back by making not one single preparation. Silly me. The docs and nurses and every other breast cancer survivor I’d met told me it would happen, plus pretty much exactly when it would happen (about day 11-16 after the first chemo treatment), and still, I crossed my fingers tight and hoped like mad that I’d be the exception. And on the day of my second chemo dose (day 14), I wore a hat on my head to hold each hair in its place — it was starting to fall out in clumps, wash away in the shower, and it was pulling so hard on my head it hurt — when I should have accepted the inevitable and surrendered. I did surrender that night — cut off three ponytails, and handed the clippers to my husband and 4-year-old, who shaved while I cried — but only because I could no longer hold onto the hair I so desperately did not want to lose.

My friend has accepted the inevitable, and I love that about her!

How did you handle your hair loss?

Grateful, plus the Curse of Cancer Treatment

Friday, June 18th, 2010
Photo: LaserGuided, Flickr

Photo: LaserGuided, Flickr

I’m a grateful girl. Really, I am. In fact, I can’t even put into clear and concise words how very thankful I am for the breast cancer treatments that have kept me alive for five years. If I even try to put my thoughts into words, I promise you tears will stream down my cheeks. I’m about to turn 40 on Sunday, and WOW, I wasn’t sure I’d make it to that age, what with birthday No. 34 followed by such fear and uncertainty.

Just so we’re clear: I am so. very. happy. to be alive and writing this. I’m simply amazed by what medicine has done for me.

I’m amazed by what medicine is doing to me, too. Five years later, and it finds a way to make me a little bit miserable. Right now, actually, a lot miserable.

I’m covered in red, itchy, drive-me-crazy bumps on my shoulders, chest, back, and areas around my armpits. It happens every year, and it’s called something like UV Recall. Years after treatment, the sun reacts with my skin and the poisonous drugs, and the remnants of radiation, and sunscreen (I’m not sure about what order this all follows or if it’s one or several of these factors), and my skin pays the ultimate price. You’d think I’d have figured it out after all this time, but I haven’t, because sometimes (like last year at the beach), nothing bad happens. I find a sunscreen for sensitive skin, lather it from head to toe, and I’m just fine, maybe even a tiny bit tan, which is a treat for a fair-skinned gal like me. Other times (like this year at the beach), I find a sunscreen for sensitive skin, and, well, the bumps begin — just a few here and there, then some more, until they’ve climbed all over my body, making me more and more wacky by the day.

“Are you not so happy?” Danny asked me today.

Gosh, how I’m trying to be happy, plodding along through these summer days like everything is fine. But it’s not. I’m itchy and scratchy, showers hurt my skin, clothing bothers it, too, the Florida heat (it’s been like 100 degrees here lately) agitates every inch of me, and well, no, Danny, I am not so happy. (Add head cold to the equation, and you might imagine how poorly I really feel.)

The end is near, I know. The bumps will dry up and slowly disappear, and I will do what I always do — slink into the shadows at the pool, sit under an umbrella at the ocean, hide under the bimini of a boat. It’s no fun to be the mom always seeking shade and avoiding fun in the sun. I guess that’s why, year after year, I keep trying to jump waves, and find sea shells along the seashore, and splash in the pool — because I want to think cancer treatment won’t keep plaguing me. But it does, and it probably always will. And that’s just how it is. The very thing allowing me the pleasure of birthdays is torturing me, too.

OK, I’m getting a grip here. This skin ordeal is short-lived. It will consume about a week of my life (couple more days to go), and then I’ll move on. Maybe I’ll even be free and clear by Sunday, when I blow out 40 candles and celebrate another year of life.

See, I’m grateful. Really, I am.

Note: If you caught this post just as it published, you got a glimpse of what I look like. But the photo I put up at first has been taken down. It’s just too icky, and while it’s definitely educational, I decided to shield you from the yuck. And me, too. Looking at the mess in the mirror is enough. Online is just too much. And so I give you: flowers, pretty flowers.

Time Heals My Wounds

Thursday, May 27th, 2010
flower-200jd052710

Photo: tanakawho, Flickr

Time may not heal all wounds, but in my case, it definitely blurs them. Let’s talk chemo, that horrible thing from which most of my breast cancer wounds developed.

For each of my four dose-dense infusions of adriamycin and cytoxan, my sister delivered lunch to the pink pretend-leather recliner I called home for hours at a time. There was a yummy gyro, a delish tuna sandwich, a great turkey sub, and I can’t remember the fourth one — which is exactly my point: I can’t remember. Time has erased my memory of the food that so repulsed me I couldn’t eat it for years. Years!

It’s been five years since my chemotherapy ended. And just now have I realized that the thought of these foods does not make me want to vomit. They actually sound pretty appetizing.

All it took was time. The same time that has allowed my hair to grow back, my surgery and port scars to fade, and my fear of recurrence to morph into something almost unrecognizable.

Yes, my wounds have healed — not completely and entirely, but mostly.

I love that.

Peeking in at Breast Cancer: Lynea

Thursday, April 1st, 2010

Lynea was diagnosed at age 39 with breast cancer following a “baseline” MRI. She’d had a mammogram 8 weeks prior, and her OB/GYN’s office pushed for a MRI due to family history, just so she’d have records to look at years from now. Forget years from now — the cancer was already there! Lynea is stage I, triple negative, and her treatment plan includes 4 dose-dense AC and 4 T. No need for radiation. Here is a snippet of her story:

First day of chemo, 2/2/10

First day of chemo, 2/2/10

I came up with the idea of taking pictures at the beginning of my treatment, at mid-point and at the end. I joked that presidents have their pictures taken to show how old they got, so why shouldn’t I have pictures to prove how bad it has made me look — or how well I did!

Halfway done with chemo, 3/30/10

Halfway done with chemo, 3/30/10

I think so far, I don’t feel like I look much different, although, unfortunately, I have found some weight due to the lovely steriods they give me, but I figure there is always time to worry about my weight later.

Just think, Lynea: one day, that tree will be covered with leaves, and your head will be covered with beautiful hair!

Zac Smith Praying to Survive

Tuesday, March 30th, 2010

Second Opinions Matter

Friday, March 19th, 2010
Photo: cjc4454, Flickr

Photo: cjc4454, Flickr

My darkest hour arrived while I was cooped up in a hospital room with chemo-induced fever and other mystery symptoms. I was bald and bloated and beyond hope when a well-respected attending oncologist swung by my room with a crowd of med students and announced it could be another cancer causing my illness. Probably leukemia or lymphoma. A bone marrow biopsy would determine my fate, this doc told me, just before he casually strolled away from my despair and moved onto his next patient.

It wasn’t a biopsy that greeted me a few days later. It was a new doc, starting a new rotation.  A second cancer wasn’t even on his radar. Rather, he was convinced my dose-dense chemo (given every two weeks instead of three) was to blame. Nothing some heavy-duty meds couldn’t fix.

A few days later, I was home, healthy, and once again, hopeful.

That was five years ago, and it was not the first time I was misguided by a well-meaning doctor, which brings me to this very important medical conclusion:

Second opinions matter.

I’m living proof.

Chocolate: The New Chemotherapy?

Thursday, February 11th, 2010
Photo: rosevita, morgueFile

Photo: rosevita, morgueFile

If research says it, it must be true, right? I’m not so sure about that. I mean, some science says as little as one drink per day can up your breast cancer risk, and extra weight by way of stuff like chocolate can do the same. Yet new research presented just yesterday reveals that Cabernet and chocolate are cancer killers.

Yes, food matters. And Angiogenesis Foundation head William Li, who has been rating foods based on their cancer-fighting qualities, says: “What we eat is really our chemotherapy three times a day.” I get that — when it comes to blueberries, garlic, tea and a whole bunch of other healthy goods. But alcohol and candy? It’s all so confusing.

It might help to know that it’s actually red grapes and dark chocolate that apparently choke off blood supplies to tumors, starving them to death. Yes, red grapes are used to make red wine, but can’t we just eat the grapes? (Any smart nutritionists want to weigh in?). And the chocolate, well, the dark version is much better than all others, so if you want to enjoy, then, by all means, do! Just keep in mind that a portion size is something like 1 ounce.

So, even though headlines might have you all giddy about the permission you’re getting to indulge, you might want to think twice or at least commit to some careful moderation. Well, on Monday, anyway — you know, after Valentine’s Day.

Flashback: December 24, 2004

Thursday, December 24th, 2009
Side effect of radiation: limited range of motion in my left arm

Side effect of cancer treatment: limited range of motion in my left arm

I do have my breast. And I have a fairly good prognosis. My lump was removed and measured 1.1 cm, which is small. My lymph nodes were negative for cancer, although four were removed for biopsy purposes. My margins were clear, and there was no apparent spread of cancer. My cancer is considered stage 1. And that is good. I have two incisions, one in my armpit where lymph nodes were taken and one underneath it, on the side of my breast. They are both about 3.5 inches long. Besides a bad skin reaction to the tape I was bandaged with, everything went well. There are minor inconveniences right now. As my incisions heal and my skin tightens, it’s harder to lift my arm. So I have exercises I must do each day. Because of the missing lymph nodes, I may have trouble with swelling in my arm so I have to watch for that. I have not been able to shave my armpit since my surgery on December 3.

And now I await the next step in this battle. I will begin receiving chemotherapy in mid-January. This will last for three months. I will go for treatment four times, once every three weeks and will have a combination of drugs sent through my body via IV. The purpose of chemo is to kill rapidly growing cells, and cancer cells are rapidly growing. Unfortunately, all rapidly growing cells are killed, like hair cells and bone marrow cells. The chemo should kill any cancer cells that floated away from my breast, if any did. I don’t know how I will react to this process, as each person responds differently. At the very least, I hear I will be tired at times during each three-week time frame. I may also be tired from the radiation. This will begin three weeks after chemo ends.
NOTE: It didn’t happen exactly like that: Instead of receiving chemo every three weeks, I had it every two weeks — it’s called dose-dense chemo, and if the patient can tolerate it, it’s thought to be more effective. Did I tolerate it? Well, I survived, but I was hospitalized twice because it was so hard on my body.

I will receive radiation every day for 6 weeks. The purpose of radiation is to zap the actual area where the cancer was found to prevent it from recurring. Many women take a drug after chemo and radiation to prevent recurrences. The drug (usually tamoxifen) is taken for five years. My body will not respond to this type of drug due to negative estrogen receptors (if they are positive, the drug can be taken) so chemo and radiation will be my only two real treatments.
NOTE: Radiation went just fine. It was a breeze compared to chemo, and my skin didn’t burn too badly. The biggest hassle was the drive to and from the appointments. And while it’s not such a big deal, my left arm has limited range of motion due to the combo of surgery, scar tissue and radiation. See photo above — my right arm touches the ground, but my left arm won’t.

For now, I am trying to keep life simple. Joey and Danny help me do that. Joey knows I am frequently going to the doctor for a “boo-boo” I had in my “booby” and he has been very attentive. One day after a doctor appointment, he said, “Mommy, you need to go home and rest. I’ll bring you a banana.” He is almost four years old. Danny, at 19 months, does not seem to know anything is going on and it’s my hope that he never has any recollection of this path our lives are taking. I will never forget it, though, and that’s OK. I will take this experience and make it matter. A friend sent me a breast cancer bracelet inscribed with trust your journey. I do. I trust that I will be fine in the end. And I trust that I was given this fight so I can help others. That is why I have written this. I hope everyone who reads about my journey is affected in some way. Perhaps it will increase the amount of women who do self-exams. Maybe it will arm others with information to help loved ones who are affected by this common disease (about 1 in 8 women will get breast cancer at some time in their lives). Maybe it will spread hope. At the very least, writing helps me. And for now, that is enough.
NOTE: Writing still helps, five years later.

Wishing You Well

Saturday, December 19th, 2009
SuperFantastic, Flickr

SuperFantastic, Flickr

Sending out some well wishes to a few friends — Carmen, who, on her second run with breast cancer, is recovering from tram flap surgery. And Lynea, she’s navigating the murky waters that come flooding in after a new breast cancer diagnosis. Also, Stacie, sporting a newly-shaved head as she fights her way through the burden of chemotherapy. Genne, too. She is healing from a mastectomy and reconstruction, and the whole ordeal has challenged her to the core.

If you are somewhere along the path of cancer survival and would like a wish sent your way, please leave a comment and tell me what’s going on in your world.

Flashback: November 24, 2004

Tuesday, November 24th, 2009
 alanclarkdesign, Flickr

alanclarkdesign, Flickr

My phone rang at 10:00 a.m., and the doctor who did the biopsy said the pathology report was back already. He said that unfortunately, cancer cells were found. He said I would need a lumpectomy (surgery to remove the lump), radiation, and possibly chemotherapy. He told me to buy a book called Dr. Susan Love’s Breast Book. I got the book that day.

Somehow, I made it though the Thanksgiving weekend, with my thoughts jumping from the hope that this would turn out OK to the fear that I would not see my boys grow up. My mind wandered and worried about surgery and what treatments I would have. I wondered if I could have more kids and whether or not I would lose my hair. I cried and lost sleep and was hopeful, too.

I learned a lot from reading my new book. I learned that many women do go on to have kids after cancer, but I also learned that chemotherapy in young women could cause early menopause. I learned that I have an 85 percent survival rate, and also that I will get tiny little tattoos surrounding my breast to aid in the proper delivery of radiation. These permanent tattoos will also alert any future doctors that my breast has had radiation because I can never have it again in that same area. The book helped me feel positive about this journey, but it also helped me face reality.

Note: My survival rate turned out to be more like 93 percent for five years. And here I am — at five years.

Every Scar Tells a Story

Saturday, August 22nd, 2009

Every scar tells a story. Here’s Angi’s:

angi-port-scar-240jd1082209

Angi Navarro

I got my first port in April 2005.  I was told I should probably get a port prior to chemo (for breast cancer), so I found a general surgeon who could perform the surgery ASAP.  I only had to do four rounds of chemo, but I didn’t want to take any chances with ruining my veins.  As it is, I only have one arm which can be used since I had lymph nodes removed on the other side.  After I completed my chemotherapy, I went ahead and set a date to have it removed, since it was pretty much useless as far as using it instead of an IV for surgery and such. My general surgeon didn’t find it necessary to take me back into the OR to remove my port. Instead she did it right in her office, claiming it wouldn’t hurt.  At the time I had it removed, only three months had passed. So when she took a scalpel and sliced through the original incision, she was cutting through a healing wound — and it hurt. The site never healed correctly after that. Scar tissue formed on top of scar tissue. But still, it wasn’t all bad.

In 2008, when my cancer returned, it was thought that I would have to endure chemo again. So when the breast surgeon went in to remove bits of my chest wall, she placed a port so I wouldn’t need another surgical procedure. It wound up unnecessary, as I underwent radiation instead. The port sat unused until April of this year. I was undergoing breast reconstruction surgery, so my plastic surgeon removed it. Not long after, as it was healing, I noticed some areas that hurt when I touched it. Upon closer inspection, I found that I had very small bits of nylon surgical sutures poking out of the scar. I couldn’t pull them out or cut them any closer to the skin. These stitches sticking out, along with scar tissue on top of scar tissue, made for a pretty uncomfortable area. When I found out that I would be having revisions made to one of my breast implants, I asked my surgeon if he could make it a little less sightly. He agreed to revise the scar for me as part of my procedure on Monday. I’m looking forward to being able to wear my seat belt and bra straps comfortably again.

There’s a lot more to Angi’s cancer story than this. You can read all about it on Cancer is NOT a Death Sentence.

If you’ve got a story you’d like to share, please leave a comment, and I’ll be in touch.

It’s a Wrap, For Free

Wednesday, August 19th, 2009
www.franceluxe.com

www.franceluxe.com

For the most beautiful hair ornaments in the world, France Luxe is the place to shop. Headbands and barrettes are the specialty at Laurie Erickson’s store, but for those without hair, she’s got something pretty amazing, too.

Through her Good Wishes program, Erickson is donating silk headscarves to women and girls losing their locks to illness or treatment. Why? “Our goal is to provide a small bit of comfort and share the power of positive thinking and good wishes with these individuals on their path to healing and recovery,” says the company website.

Yes, you can score a scarf for free (value: $72-$94) if you are dealing with the crappy state of hair loss. Even better, you get to pick your print. Just call this number to request your fancy freebie: 888.884.3653.

Comfort From a Boy

Tuesday, July 7th, 2009

Writer Abigail Thomas offers in her book “Thinking About Memoir” the following writing exercise: Write two pages (one post) in which a child comforts an adult.

That’s easy.

The child was Joey. The adult was me. And it happened in February, 2005, one day after I realized my hair was shedding from my scalp faster than I could say chemotherapy. It had been 13 days since my second treatment with the toxic breast cancer drugs Adriamycin and Cytoxan, and not a rubber band nor a hat could hold my wisps in place. My scalp was sore, each hair still attached to my head hung with a weight that was nearly unbearable, and it had become abundantly clear that the moment had arrived: It was time to shave my head.

“Don’t worry, mom, you’re not going to die,” announced my almost 4-year-old boy, who was taking his turn shaving away the last of my chemo-stricken hair. “It’s only a haircut,” he assured me.

Whether he knew it or not, Joey was absolutely right. It was only a haircut. I didn’t die. And while some of his comments during my years fighting breast cancer weren’t as comforting — “You look like an alien,” he revealed while visiting me in the hospital in March of that same year — this is the one that still brings tears to my eyes, because, well, it was innocent, it was real and most of all, it was damn comforting.

joey-shaving-head-400jd0708

The child, almost 4 years old

The adult, 34 years old

This post can also be found at Braving Boys.

Look Good … Feel Better

Friday, May 22nd, 2009

nancy_both

The toughest part of my dance with breast cancer was losing my hair. Seems crazy, doesn’t it, that a tumor was living in my body, threatening to take my entire life away, and I was worried about my hair. Yea, crazy. I know that now that I’m alive, probably because the same drugs that left me bald also wiped out a treacherous disease. Still, it’s heartbreaking to lose a headful of hair. Even Farrah Fawcett, who is courageously fighting her own cancer battle, hung onto her famous hair for as long as she could, only succumbing recently to the toxic hair-stealing chemotherapy drugs.

The reality of cancer treatment is that many people will lose their hair. And lots of them, like me, will determine it a tragedy. That’s why the Look Good … Feel Better (LGFB) program exists — to help women face the challenge of a lifetime. LGFB (organized by the American Cancer Society) offers workshops to help cancer survivors feel better. I attended one, and I learned how to draw on eyebrows (yes, chemo takes those too), apply make-up on blotchy skin and cover my head with wigs and scarves. I went home with my very own cosmetic kit, matched to my skin tone, and I met a whole bunch of women walking in shoes that were much like mine. LGFB also offers one-on-one consultations, self-help materials and a 24/7 toll free information and help line — 1-800-395-LOOK.

Take advantage of LGFB if you can. And suggest it to any loved ones who might need it. And do you know of any survivors who deserve to win a trip to NYC (you, maybe)? Check out this contest. LGFB is celebrating its 20th anniversary by searching for five Women of Hope they can pamper with a complimentary make-over and a trip to the annual DreamBall, a black-tie gala and the program’s largest annual fundraiser.

By the way, that’s Nancy up top. She’s a LGFB participant. Doesn’t she look good?

Happy Mother’s Day!

Sunday, May 10th, 2009

the power of songHere I sit in a chemo chair in February 2005, getting dosed with the toxic drugs that are hopefully saving my life, while my mom sits nearby, holding my baby niece Jordan. This lovely man toured the infusion center on this Friday, singing a personalized song to each patient in my similar predicament. He sang about me, my mom and Jordan — the two girls who sat with me for every chemo session. Click on the photo to start video.

Thanks, mom.
I love you.
Happy Mother’s Day.

What Breast Cancer Looks Like – Iris

Wednesday, April 1st, 2009

095

Iris says, “Much more than cancer, are friends with whom you can rely on during the most difficult stages of treatment, they do look as a beautiful field of lavender. I had the privilege of being supported by my friends, who planned for my an amazing visit to flower fields of lavender in Quebec after my last session of chemotherapy.”

Want to show me what you think breast cancer looks like? Please send me a photo that captures the essence of breast cancer, and I will display it here. Email to jackidonaldson@gmail.com, make sure your shot is at least 450 pixels wide and tell me something about the photo. No blurry pics, please.